allinyourhead

Getting so frustrated with being treated like a crazy person seeking attention or faking symptoms. Saw my doctor again yesterday and was sent to the ER, because I had been experiencing shortness of breath, extreme muscle fatigue that made it hard to walk, dizziness, and lightheaded when standing and muscle twitching and shaking. Blood pressure dropped and heart rate spiked when standing. I go through a lot everyday, but this was not my "normal". IV was started and so much blood work done. Then they sent me up to CT. Hours later he comes back in as I am still shaking and twitching and dizzy and tells me that all tests were normal and that medically speaking I am "The picture of health". He said not sure what's going on, but maybe it was my antidepressant causing "side effects". Told me to check in with my doctor next week. I asked him what else could be going on as my meds weren't new and this has never happened before. He said well, you have fibro and are taking pain pills and muscle relaxers, I'd start with that. He said he had to go and that I would be discharged. They pushed me out in a wheel chair (because I couldn't walk) and said have a nice night. I left crying and defeated. It's not that I was hoping they found anything wrong, I was just hoping to be validated in what I'm feeling. To prove that it's not all in my head. To be believed and taken seriously, not dismissed like I am faking it...My husband is having a hard time believing me now because he keeps just repeating the doctors saying, well they say you're fine. He says it's always something, so he never knows what to take seriously...All of it! all of it is serious to me. It's scary and painful everyday, all day. And I just want to know that I am not going through it alone. That he is on my side, that he is there for me and will fight for me to figure this out!
Back to the pain specialist next week for hopefully some better insight. Just needed to vent for a minute as I am sure I am not the only one feeling "dismissed " by the doctors. It's like they take one look at my chart, see my meds and instantly write me off! Thanks for listening warriors! We got this and will keep fighting everyday!
#Fibromyalgia #EDS #CFS #Depression #itsnotallinmyhead #InvisibleIllness #realsymtoms #Spoonie