spoonie

Shame is a difficult feeling to have. Coming from personal experience, shame can be debilitating and hard to move past. Right now I'm battling the shame that comes with having a mental health condition and not seeming like I have things "all put together."

🌹 P.S. If shame is getting you down right now, know that you're not alone and it's OK to not feel OK. We can take baby steps together in getting to a better place. We won't feel this shame forever.

#CheckInWithMe #Grief #MentalHealth #Anxiety #Depression #BipolarDisorder #BorderlinePersonalityDisorder #ObsessiveCompulsiveDisorder #PTSD #EatingDisorders #ChronicIllness #RareDisease #ChronicPain #Spoonie #EhlersDanlosSyndrome #CrohnsDisease #Cancer #Migraine #Fibromyalgia #MultipleSclerosis

Being undiagnosed has its host of challenges, which can include (but is absolutely not limited to) what to expect during medical appointments: from umpteen physical examinations to never-ending appointments; from the slew of prescription medications to the constant shoulder shrugs… none of it feels great!

What do you find to be the most challenging thing about visiting the doctor as someone who is undiagnosed?

#Undiagnosed #CheckInWithMe #ChronicPain #ChronicIllness #RareDisease #MentalHealth #Spoonie

Navigating the workforce or employment in general can be challenging, but it also can be rewarding — especially in a work environment that’s a comfortable fit.

Have you ever had a job that you really liked? What made it perfect for you?

I really like working for The Mighty because I’m able to be creative every day and work at times that are best for me.

#CheckInWithMe #MentalHealth #Anxiety #Depression #BipolarDisorder #BorderlinePersonalityDisorder #ObsessiveCompulsiveDisorder #PTSD #ADHD #ChronicIllness #RareDisease #ChronicPain #Spoonie #EhlersDanlosSyndrome #CrohnsDisease #Migraine #Fibromyalgia #MultipleSclerosis

Sharing your experiences with others about living with chronic fatigue syndrome can be incredibly validating, but sometimes other people’s reactions can be disappointing and hurtful (even if done unintentionally).

Have you been told something unhelpful or harmful when talking to others about your CFS? How did you respond?

#ChronicPain #ChronicIllness #COVID19 #ChronicFatigueSyndrome #PosturalOrthostaticTachycardiaSyndrome #AutoimmuneDisease #Spoonie #Fibromyalgia #IrritableBowelSyndromeIBS #Migraine #Depression #Raynuads

I’m going with Steel Magnolias—not because I have Type I Diabetes, but because of the journey it depicts. Cutting my hair short due to chronic illness ✔️ making hard choices because of chronic illness ✔️ going to hospital because of my chronic illness ✔️ having to consider that I might die young(ish) from my chronic illness ✔️

And there’s that scene where Sally Field rages and howls at the injustice of her daughter being taken away from her because of chronic illness which speaks for itself. I also find some hope in the sense of community that Shelby has around her. I certainly don’t have anything as great as that in my everyday life, but I have a supportive husband and have a Mighty community in you all ❤️

What’s your Chronic Illness Life TV show or movie choice? 🎥

#Movies #TV #Netflix #netflixandill #ChronicIllness #Spoonie #SpoonieProblems #TheDisabledLife #Fibromyalgia #ChronicPain #MyCondition #MyalgicEncephalomyelitis #DistractMe #MightyTogether #MightyQuestions

If you’re living with a chronic illness, mental health diagnosis, or disability, searching for a job can get challenging — especially finding a job that best fits your needs.

If you’re currently working, where did you find your current role? Did you search on social media, LinkedIn, or Indeed? Perhaps you saw a "help wanted" sign and decided to check out that job opportunity or you already know someone from the company you work for.

I’ve been writing and collaborating with The Mighty since 2016/2017, going from contributor to event host, to group leader, and helping with creative projects to becoming the Mighty Mentor by helping navigate new members and finally transitioned to become one of the Community Managers this year 💃!

#CheckInWithMe #MentalHealth #Anxiety #Depression #BipolarDisorder #BorderlinePersonalityDisorder #ObsessiveCompulsiveDisorder #PTSD #ADHD #ChronicIllness #RareDisease #ChronicPain #Spoonie #EhlersDanlosSyndrome #CrohnsDisease #Migraine #Fibromyalgia #MultipleSclerosis

Do you have any comfort items, accessibility tools, or even pets that help you while you're in bed? What makes your bedside helper helpful to you?

#ChronicIllness #Disability #ChronicPain #Pain #BackPain #Spoonie #Fibromyalgia #Neuropathy #MyalgicEncephalomyelitis #Lupus #Cancer #Gastroparesis #MultipleSclerosis #RheumatoidArthritis #IrritableBowelSyndromeIBS #InflammatoryBowelDiseaseIBD #ChronicEpsteinBarrVirus #MentalHealth #ChronicDepression #Anxiety #PanicAttacks #InvisibleIllness #alwaysinbed