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    What was the last health appointment you had to reschedule?

    Gather round, ye rescheduling Mighties. Welcome to the club. You’re safe here.

    It feels like a rather mundane question, but there’s a lot that goes into rescheduling an appointment — how we feel on the day (sometimes leaving the house just isn’t in the cards), what’s going on in the people’s lives around us, transportation snafus, or maybe even cost/insurance workarounds.

    Here are a few recent schedules from Mighty staff: an annual OB-GYN exam (for two of us!), pelvic PT, and a couple of urology appointments. SO FUN.

    What about you?

    #MightyMinute #MentalHealth #Anxiety #Depression #ChronicPain #ChronicIllness #Disability #RareDisease #CheckInWithMe #Spoonie #Therapy

    90 reactions 37 comments
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    I just want a diagnosis

    About almost every week I have an episode or complete paralysis. I go to a high school and I see the nurse all the time.

    Today I had an episode so bad that the nurse had to come in class and pull me out. Luckily my boyfriend was there and my dad came. Now I have to go back to the doctor.

    I’m just scared. I want this to be over with. I don’t want people to see me like this. It’s just hard. My friends my family the nurses my teachers and of course my boyfriend worry about me.

    I’m just going to have my fingers crossed that this appointment gets somewhere. 🤞🏽

    💕🥄✨ #Undiagnosed #mentally tired #Spoonie #chronicallyill

    5 reactions 5 comments
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    What’s something you have to consistently rely on others for?

    When you live with a disability or have a chronic health condition, sometimes it’s necessary to ask for help. Whether it’s to assist with chores or other everyday activities or errands, relying on others is how the task gets done and thats totally OK, we definitely can relate 🙋.

    What do you have to rely on others for? How does that make you feel?

    P.S. There’s no shame at all in asking for the help you need.

    ❤️ If you’re looking for something Mighty to read on the topic, check out Larissa Martin’s experiences here:
    themighty.com/topic/cerebral-palsy/personal-care-needs-bathr...

    #ChronicPain #ChronicIllness #MentalHealth #Disability #Caregiving #RareDisease #Migraine #Stroke #CardiovascularDisease #AutonomicDysfunction #PosturalOrthostaticTachycardiaSyndrome #Spoonie #Lupus #Endometriosis #Hospital #Cancer #Anxiety #PTSD #CheckInWithMe

    57 reactions 35 comments
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    “Navigating a flawed Healthcare System & an ableist society”

    I’m sick of trying to navigate a Healthcare system that doesn’t give a shit about me. ⚛️ ##Ableism #ChronicIllness #Disability #disabilityawareness #DisabilityInclusion #DisabilityRights #Spoonie #spooniesupport #spoonielife #zebrastrong

    25 reactions 5 comments
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    How often do you feel like you know more than your doctor?

    Living with chronic or complex health conditions can sometimes mean needing to explain and express your thoughts, concerns, and knowledge of your diagnosis to anyone and everyone… yes, even to your doctor.

    What’s been your experience? What emotions pop up in those moments when it feels like you’re the expert in the room?

    📚 Want a relevant Mighty read? Check out Tierra Drollinger’s experience in her recent Mighty article here: themighty.com/topic/chronic-pain/know-more-than-your-pain-ma...

    #ChronicPain #ChronicIllness #MentalHealth #Disability #Caregiving #RareDisease #Migraine #Stroke #CardiovascularDisease #AutonomicDysfunction #PosturalOrthostaticTachycardiaSyndrome #Spoonie #Lupus #Endometriosis #Hospital #Cancer #Anxiety #PTSD #CheckInWithMe

    30 reactions 13 comments
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    Chronic Migraine awareness

    Today I am featured as blogger on Chronic Migraine Awareness website. Please go support them as we try to raise awareness about these poorly understood and researched conditions.
    chronicmigraineawareness.com/2023/03/07/mitas-story

    #chronicmigraine #ChronicMigraineSyndrome #ChronicVestibularMigraine #Migraine #MigraineBrainFog #MigraineWithAura #VestibularMigraine #migraineawareness #ChronicPain #Pain #ChronicIlless #Raiseawareness #ChronicMigraines #ChronicHeadaches #OccipitalNeuralgia #Dysautonomia #Fibromyalgia #ChronicFatigue #Spoonie #SpoonieProblems #spoonielife #Support #resilience #creativecopes

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    Just moved #CFS #Costochondritis #Fibomyalgia #ChronicDepression #Anxiety #CPTSD

    I'm about done lately. All the month I moved I had the CFS, Costochondritis and Fibromyalgia flaring to the point I went to the ER. They did nothing since it wasn't deemed an emergency. I don't have a PCP because they've treated me badly and basically told me it's in my head. My parents are making things worse and treating me like an idiot (I do not live with them). They told me I have to be nice to them because they're my parents. They're not nice to me. I rely on them for money or I'd be homeless. They don't understand chronic illness or mental health at all and make things worse. They are cruel.
    The whole month of the move I was flaring and in extreme amounts of pain. I had one friend and two days her other friend helping and I couldn't keep pushing myself. I'm getting a cleaning fee and my apartment complex is trying to add on other fees. My parents are going to be pissed. I want to cry. I want to die. I'm talking with my psychiatrist tomorrow morning and my counselor Friday. I just don't know if I can make it that long. My cat is my anchor right now.
    Any kind words or advice would be appreciated.
    #Advice #Autism #SuicidalIdeation #Selfharm #Selfhate #Selfblame #Arthritis #Spoonie #ChronicFatigueSyndrome #ChronicIllness #MyalgicEncephalomyelitis #ChronicFatigue

    6 reactions 2 comments
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    We want people to feel less alone.

    My friend and I host a Podcast called Creative Copes. It’s a labor of love- for ourselves, our own journeys and the compassion for others. We hope it becomes an aid for people in similar situation as us. We also have this idealistic approach of trying to end stigma and raise awareness about these conditions life has thrown at us by openly talking about them.
    We set out to share our personal stories and how we creatively cope; with humor and with sprinkles of scientific studies that we have looked up.

    We want YOU to feel less alone.
    Honestly, we all want to feel less alone on this windy road that’s is chronic illness.

    You can find us on Instagram @ creative.copes and on any listening platform just search up the name. Listen in, subscribe and message us. We would love some conversations with like-minded people.
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    #Podcast #ChronicIllness #ChronicPain #Pain #Fibromyalgia #MyalgicEncephalomyelitis #Agoraphobia #Anxiety #SocialAnxiety #CopingTips #Endometriosis #MentalHealth #spinalinjury #OccipitalNeuralgia #Dysautonomia #ChronicVestibularMigraine #Migraine #Community #Disability #youarenotalone #Spoonie #SpoonieProblems #spoonielife #CheerMeOn

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    How does where you live affect the type of health care you receive?

    Receiving health care and having access to the resources and services you may need can look different depending on where you live. From the number of hospitals to the types of specialist that are available in your area, you may need to travel or seek support elsewhere in order to get the treatment necessary for your care.

    What has been your experience with health care where you live? Have there been any challenges?

    📑 Need a Mighty read on the subject? Here is an insightful article written by Alex Tomlinson:
    themighty.com/topic/arthritis/patient-experience-failing-rur...

    #ChronicPain #ChronicIllness #MentalHealth #Disability #Caregiving #RareDisease #Migraine #Stroke #CardiovascularDisease #AutonomicDysfunction #PosturalOrthostaticTachycardiaSyndrome #Spoonie #Lupus #Endometriosis #Hospital #Cancer #Anxiety #PTSD #CheckInWithMe

    49 reactions 30 comments