spoonie

Gather round, ye rescheduling Mighties. Welcome to the club. You’re safe here.

It feels like a rather mundane question, but there’s a lot that goes into rescheduling an appointment — how we feel on the day (sometimes leaving the house just isn’t in the cards), what’s going on in the people’s lives around us, transportation snafus, or maybe even cost/insurance workarounds.

Here are a few recent schedules from Mighty staff: an annual OB-GYN exam (for two of us!), pelvic PT, and a couple of urology appointments. SO FUN.

What about you?

#MightyMinute #MentalHealth #Anxiety #Depression #ChronicPain #ChronicIllness #Disability #RareDisease #CheckInWithMe #Spoonie #Therapy

When you live with a disability or have a chronic health condition, sometimes it’s necessary to ask for help. Whether it’s to assist with chores or other everyday activities or errands, relying on others is how the task gets done and thats totally OK, we definitely can relate 🙋.

What do you have to rely on others for? How does that make you feel?

P.S. There’s no shame at all in asking for the help you need.

❤️ If you’re looking for something Mighty to read on the topic, check out Larissa Martin’s experiences here:
themighty.com/topic/cerebral-palsy/personal-care-needs-bathr...

#ChronicPain #ChronicIllness #MentalHealth #Disability #Caregiving #RareDisease #Migraine #Stroke #CardiovascularDisease #AutonomicDysfunction #PosturalOrthostaticTachycardiaSyndrome #Spoonie #Lupus #Endometriosis #Hospital #Cancer #Anxiety #PTSD #CheckInWithMe

I’m sick of trying to navigate a Healthcare system that doesn’t give a shit about me. ⚛️ ##Ableism #ChronicIllness #Disability #disabilityawareness #DisabilityInclusion #DisabilityRights #Spoonie #spooniesupport #spoonielife #zebrastrong

Living with chronic or complex health conditions can sometimes mean needing to explain and express your thoughts, concerns, and knowledge of your diagnosis to anyone and everyone… yes, even to your doctor.

What’s been your experience? What emotions pop up in those moments when it feels like you’re the expert in the room?

📚 Want a relevant Mighty read? Check out Tierra Drollinger’s experience in her recent Mighty article here: themighty.com/topic/chronic-pain/know-more-than-your-pain-ma...

#ChronicPain #ChronicIllness #MentalHealth #Disability #Caregiving #RareDisease #Migraine #Stroke #CardiovascularDisease #AutonomicDysfunction #PosturalOrthostaticTachycardiaSyndrome #Spoonie #Lupus #Endometriosis #Hospital #Cancer #Anxiety #PTSD #CheckInWithMe

Today I am featured as blogger on Chronic Migraine Awareness website. Please go support them as we try to raise awareness about these poorly understood and researched conditions.
chronicmigraineawareness.com/2023/03/07/mitas-story

#chronicmigraine #ChronicMigraineSyndrome #ChronicVestibularMigraine #Migraine #MigraineBrainFog #MigraineWithAura #VestibularMigraine #migraineawareness #ChronicPain #Pain #ChronicIlless #Raiseawareness #ChronicMigraines #ChronicHeadaches #OccipitalNeuralgia #Dysautonomia #Fibromyalgia #ChronicFatigue #Spoonie #SpoonieProblems #spoonielife #Support #resilience #creativecopes

My friend and I host a Podcast called Creative Copes. It’s a labor of love- for ourselves, our own journeys and the compassion for others. We hope it becomes an aid for people in similar situation as us. We also have this idealistic approach of trying to end stigma and raise awareness about these conditions life has thrown at us by openly talking about them.
We set out to share our personal stories and how we creatively cope; with humor and with sprinkles of scientific studies that we have looked up.

We want YOU to feel less alone.
Honestly, we all want to feel less alone on this windy road that’s is chronic illness.

You can find us on Instagram @ creative.copes and on any listening platform just search up the name. Listen in, subscribe and message us. We would love some conversations with like-minded people.
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#Podcast #ChronicIllness #ChronicPain #Pain #Fibromyalgia #MyalgicEncephalomyelitis #Agoraphobia #Anxiety #SocialAnxiety #CopingTips #Endometriosis #MentalHealth #spinalinjury #OccipitalNeuralgia #Dysautonomia #ChronicVestibularMigraine #Migraine #Community #Disability #youarenotalone #Spoonie #SpoonieProblems #spoonielife #CheerMeOn

Receiving health care and having access to the resources and services you may need can look different depending on where you live. From the number of hospitals to the types of specialist that are available in your area, you may need to travel or seek support elsewhere in order to get the treatment necessary for your care.

What has been your experience with health care where you live? Have there been any challenges?

📑 Need a Mighty read on the subject? Here is an insightful article written by Alex Tomlinson:
themighty.com/topic/arthritis/patient-experience-failing-rur...

#ChronicPain #ChronicIllness #MentalHealth #Disability #Caregiving #RareDisease #Migraine #Stroke #CardiovascularDisease #AutonomicDysfunction #PosturalOrthostaticTachycardiaSyndrome #Spoonie #Lupus #Endometriosis #Hospital #Cancer #Anxiety #PTSD #CheckInWithMe