spoonie

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    What brings you the most shame?

    Shame is a difficult feeling to have. Coming from personal experience, shame can be debilitating and hard to move past. Right now I'm battling the shame that comes with having a mental health condition and not seeming like I have things "all put together."

    🌹 P.S. If shame is getting you down right now, know that you're not alone and it's OK to not feel OK. We can take baby steps together in getting to a better place. We won't feel this shame forever.

    #CheckInWithMe #Grief #MentalHealth #Anxiety #Depression #BipolarDisorder #BorderlinePersonalityDisorder #ObsessiveCompulsiveDisorder #PTSD #EatingDisorders #ChronicIllness #RareDisease #ChronicPain #Spoonie #EhlersDanlosSyndrome #CrohnsDisease #Cancer #Migraine #Fibromyalgia #MultipleSclerosis

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    If you’re currently undiagnosed, what’s the most frustrating part about medical appointments?

    Being undiagnosed has its host of challenges, which can include (but is absolutely not limited to) what to expect during medical appointments: from umpteen physical examinations to never-ending appointments; from the slew of prescription medications to the constant shoulder shrugs… none of it feels great!

    What do you find to be the most challenging thing about visiting the doctor as someone who is undiagnosed?

    #Undiagnosed #CheckInWithMe #ChronicPain #ChronicIllness #RareDisease #MentalHealth #Spoonie

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    What’s the best job you’ve ever had?

    Navigating the workforce or employment in general can be challenging, but it also can be rewarding — especially in a work environment that’s a comfortable fit.

    Have you ever had a job that you really liked? What made it perfect for you?

    I really like working for The Mighty because I’m able to be creative every day and work at times that are best for me.

    #CheckInWithMe #MentalHealth #Anxiety #Depression #BipolarDisorder #BorderlinePersonalityDisorder #ObsessiveCompulsiveDisorder #PTSD #ADHD #ChronicIllness #RareDisease #ChronicPain #Spoonie #EhlersDanlosSyndrome #CrohnsDisease #Migraine #Fibromyalgia #MultipleSclerosis

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    Share an example of something unhelpful or harmful someone has said to you when discussing your CFS.

    Sharing your experiences with others about living with chronic fatigue syndrome can be incredibly validating, but sometimes other people’s reactions can be disappointing and hurtful (even if done unintentionally).

    Have you been told something unhelpful or harmful when talking to others about your CFS? How did you respond?

    #ChronicPain #ChronicIllness #COVID19 #ChronicFatigueSyndrome #PosturalOrthostaticTachycardiaSyndrome #AutoimmuneDisease #Spoonie #Fibromyalgia #IrritableBowelSyndromeIBS #Migraine #Depression #Raynuads

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    Trying out a new type of #Yoga content

    It's taken me ages to build up the courage but I finally did it. I made my first video on yoga and chronic pain :) . I made a voice over on how I use yoga as a tool to manage my pain. It isn't a silver bullet but it helps. I have so much more #Spoonie content planned. I'm excited, but I need to pace myself from burning out. I am recently recovering from a 4 week #flare .
    #InvisibleIllness #ChronicPain

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    TV Show / Movie That Best Describes Your Chronic Illness Life?

    I’m going with Steel Magnolias—not because I have Type I Diabetes, but because of the journey it depicts. Cutting my hair short due to chronic illness ✔️ making hard choices because of chronic illness ✔️ going to hospital because of my chronic illness ✔️ having to consider that I might die young(ish) from my chronic illness ✔️

    And there’s that scene where Sally Field rages and howls at the injustice of her daughter being taken away from her because of chronic illness which speaks for itself. I also find some hope in the sense of community that Shelby has around her. I certainly don’t have anything as great as that in my everyday life, but I have a supportive husband and have a Mighty community in you all ❤️

    What’s your Chronic Illness Life TV show or movie choice? 🎥

    #Movies #TV #Netflix #netflixandill #ChronicIllness #Spoonie #SpoonieProblems #TheDisabledLife #Fibromyalgia #ChronicPain #MyCondition #MyalgicEncephalomyelitis #DistractMe #MightyTogether #MightyQuestions

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    Question request

    Are there questions for a get to know me or just a q and a video anybody has? I really would like to make one but I’m not sure where to start, so any questions about chronic illness or living with one are welcome #ChronicIllness #EhlersDanlosSyndrome #PosturalOrthostaticTachycardiaSyndrome #Spoonie #Tips

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    Where did you find out about your current job?

    If you’re living with a chronic illness, mental health diagnosis, or disability, searching for a job can get challenging — especially finding a job that best fits your needs.

    If you’re currently working, where did you find your current role? Did you search on social media, LinkedIn, or Indeed? Perhaps you saw a "help wanted" sign and decided to check out that job opportunity or you already know someone from the company you work for.

    I’ve been writing and collaborating with The Mighty since 2016/2017, going from contributor to event host, to group leader, and helping with creative projects to becoming the Mighty Mentor by helping navigate new members and finally transitioned to become one of the Community Managers this year 💃!

    #CheckInWithMe #MentalHealth #Anxiety #Depression #BipolarDisorder #BorderlinePersonalityDisorder #ObsessiveCompulsiveDisorder #PTSD #ADHD #ChronicIllness #RareDisease #ChronicPain #Spoonie #EhlersDanlosSyndrome #CrohnsDisease #Migraine #Fibromyalgia #MultipleSclerosis

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    Would anyone watch YouTube videos

    Hey everyone, I have been thinking about starting a YouTube channel, mainly to make videos about hacks and tips to living with a Chronic illnesses, but also thinking about doing some vlogging as well To show what it’s really like to be chronically I’ll , would anyone be interested in watching? Or have any video ideas? Would really like to start it but I am scared that no one will watch haha, any thoughts are welcome😊😊 #EhlersDanlosSyndrome #ArnoldChiariMalformation #Syringomyelia #Gastroparesis #ChronicVestibularMigraine #Dysautonomia #AutonomicDysfunction #Anxiety #Spoonie #Vlog #spoonielife #PelvicOrganProlapse #ChronicPain #Hope