Invisible Illness

Join the Conversation on
Invisible Illness
11.6K people
0 stories
1.3K posts
Explore Our Newsletters
What's New in Invisible Illness
See full photo

What do you find to be the most challenging part about crafting?

Crafting, like any other skill, takes practice; there’s always a new technique to learn or improved products or materials to get used to. And let’s not forget to mention the consistency it takes to keep up with it all!

For me, my biggest challenge is remembering all the steps I need to take when I use my Cricut to make a design, or learning to adjust my printer for different types of paper.

Whether you’re a beginner or a pro, what do you find the most challenging about practicing your craft? How does your health interfere?

#CheckInWithMe #MentalHealth #CheerMeOn #DistractMe #ChronicIllness #Disability #InvisibleIllness

22 reactions 17 comments
See full photo

Never let anyone treat you like regular glue, be the fabulous sparkly glitter glue you are ❤️

#MentalHealth #healingvibes #ChronicIllness #Selfcompassion #InvisibleIllness

16 reactions 2 comments
See full photo

Not All Disabilities Are Visible

❤️ not all disabilities are visible ❤️

this is one of the patches l've made for my shop Fever Dream Boutique

it is often uncredited on Pinterest and social media reposts

#chronicillness #autoimmunedisease
#disability #Art #CrohnsDisease #Fibromyalgia #ChronicPain #InvisibleIllness #FeverDreamBoutique

17 reactions 3 comments

Thank You

A special Thank You to The Mighty and everyone who participates here. This is the only non-toxic social media community I've encountered. Every place else is filled with anger and divisiveness. People are always so eager to fight. We're living in a very dangerous time, and most social media adds fuel to the fire. Here at The Mighty, people are far more compassionate. They know what it is like to deal with significant challenges for themselves and others, so they come here to share their struggles and extend support to other people. Thank you for your kind heart. You're making the world a better place.

#MightyTogether #ChronicIllness #InvisibleIllness #CheerMeOn #RareDisease #FamilyAndFriends #Depression #MentalHealth

22 reactions 6 comments
See full photo

What advice would you give to someone who wants to start the craft you’re currently practicing?

Hi Mighty crafters!

Sometimes starting a new craft can be really intimidating 😳. I literally have so many things I would like to try but often stop myself because I don’t know where to begin. From gathering the right supplies to learning the skills that are involved, it definitely requires a leap of faith and dedication.

So let’s give each other some beginner’s advice today.

I’ll go first!

I currently make and design my own stickers and I’d recommend — especially in terms of products — using vinyl, waterproof sticker paper. The stickers come out looking so good and can be placed on on a variety of different surfaces. The product I use is called PaperVisual Printable Vinyl sticker paper on Amazon. Also in terms of finding a design software, I really like using Canva!

#CheckInWithMe #MentalHealth #CheerMeOn #ChronicIllness #Disability #InvisibleIllness

39 reactions 43 comments

Medical Appointment Nerves

I have an important medical appointment today, and I'm very nervous about it. I've asked before, and I'll ask again. In your kindness, would you please send any encouragement and positivity you can? Thank you.

#MightyTogether #ChronicIllness #ChronicPain #InvisibleIllness #Disability #MedicalProfessionals #Erythromelalgia #RareDisease #Anxiety

19 reactions 8 comments

Never thought I’d Glad My Illness is Invisible #InvisibleIllness #Lupus #Fibromyalgia

Usually I think I wish my illnesses was visible then people would see how bad I feel. But today I was driving my daughters in the car and as I felt bad and wondered how I would get through the evening, I realized how thankful I was that they couldn’t see my illnesses. They are still young and need me as a stable figure in their lives and the last thing I want is for them to worry about me. So I was glad they couldn’t see, Glad they couldn’t tell just how bad I felt as long as I can hold it together and only cry in the bathroom where I’m alone. I never thought I’d be thankful for that.

20 reactions 7 comments
This photo may contain sensitive content.

Accidental Ableism & The Sh*t People Say

When it comes to interacting with people with disabilities and chronic illnesses, sometimes people without these conditions can be a bit...well, sh*tty. You'd think that common sense would prevail, but alas, the foot-in-mouth syndrome is apparently more catching than the latest covid strain du jeur. Here are a few of the things that I think are some of the sh*ttiest things ableists most commonly say.

*1. “But you don't look sick!"*

Well, by golly Sherlock you’ve solved it! 🧐 Now I can back to living a normal life—I’ll just ignore all these debilitating symptoms I’m experiencing, because through your powers of reduction, you have concluded that my outsides are a complete picture of my insides. (Eyes do a full exorcist rotation in head!)

*2. “Have you tried essential oils/going gluten-free/yoga [insert snake oil here]?"*

Tell me what medical school you went to again? Also, not that it’s any of your business Todd, but I could do the warrior yoga pose with lavender shoved up my backside while avoiding all gluten, and it *still* wouldn’t change much, besides possibly giving me splinters. (Ouch!)

*3. At least it's not [insert worse condition (usually cancer) here]."*

True, things could always be worse, but actually Margo, I’d rather have a medical condition that is diagnosable and treatable, rather than having someone like you invalidate my ongoing everyday limitations.

*4. You're too young to be sick!"*

Well, this is super awkward, because my body clearly didn't get the memo.

*5. “You're so inspiring for"*

While I get the intention may be sweet, I’m just trying to my best to cope with the sh*tty hand I’ve been dealt. I also have no desire to be your token inspo friend that you tell stories to your friends and family about, as if repeating anecdotes about my life, somehow make you more interesting as a person. I mean, WTAF?

*6. “It's all in your head."*

Ah, your parents must be so proud of you Todd, for having a fake psychology degree to match that fake medical degree!

*7. “Can you have a baby?"*

And the award for the most inappropriate question goes to... this person! This is obviously nobody’s business, but it also (wrongfully) implies that every person with a womb must have an automatic desire to procreate. If I were to answer this question honestly, I’d have to say that with my dysfunctional family, I have plenty of grown kidults in my life. And anyone who has been there, knows that a crying baby is a doddle compared to dealing with toxic narcissistic assholes, but that would just make things even more awkward—for you.

*8. “But you were fine yesterday! Also, “You’re always sick!”*

Both less of a question; more of an accusation. What am I supposed to do—live stream the two days I spent resting before I went out, and the 3-4 days after when I’m crashed out for you to believe me when I say I’m not fine? And while we’re at it, why is it woke to believe every self identifying victim of discrimination, yet people with disabilities continue to be marginalised, or we just not cool enough for you Margo?

*9. “Everything happens for a reason."*

Comes with a matching faux serene / smug face that suggests my suffering is somehow connected to a higher purpose, that serves only to comfort the person saying this, rather than them having to you know… show any real understanding or empathy. Probably the kind of person you might want to consider keeping on your Christmas card list and leave it at that!

*10. “My aunt's neighbour’s dog's cousin's owner had that, and they're fine now."*

As my doctor always says, anyone who claims to have recovered within a few months, *never* actually had Chronic Fatigue, Myalgic Encephalomyelitis, or Fibromyalgia, in the first place. Now, please tell me more about your aunt’s neighbour’s dog—preferably with pictures 😍

These are some of the most cringesh*tty things people have said to me about my chronic illness. What do you think? Any other ableist comments that compel you want to rotate your head or worse, à la the exorcist?

#MyCondition #ChronicIllness #ChronicFatigue #MyalgicEncephalomyelitis #Fibromyalgia #Disability #InvisibleIllness #DistractMe

81 reactions 22 comments

Thank You. Yes, You!

Thank you to everyone who has been and is here to listen when I need to vent and to offer a word of encouragement and understanding when I need that too. You and your gracefulness make a difference in my life. I hope I'm able to show you the same same kindness. May your life be filled with love and goodness. #MightyTogether #ChronicIllness #ChronicPain #InvisibleIllness #RareDisease #Insomnia #MajorDepressiveDisorder #Depression #Anxiety #Gratitude

54 reactions 11 comments
See full photo

What type of mattress helps you to stay comfortable in bed?

We all have different needs and preferences when it comes to picking the right mattress, especially for those of us who spend a lot of our time in bed. Some of us may prefer firm mattresses, others soft or memory foam, maybe even Tempur-Pedic (or for the real adventurers among us… water!).

What type of mattress do you prefer? I like my mattress more on the firm side with gel infused breathable memory foam.

#ChronicIllness #Disability #ChronicPain #Pain #BackPain #Spoonie #Fibromyalgia #Neuropathy #MyalgicEncephalomyelitis
#Lupus #Cancer #Gastroparesis #MultipleSclerosis #RheumatoidArthritis #IrritableBowelSyndromeIBS #InflammatoryBowelDiseaseIBD #ChronicEpsteinBarrVirus #MentalHealth #ChronicDepression #Anxiety #PanicAttacks #InvisibleIllness #alwaysinbed

28 reactions 16 comments