No Longer in Remission
I know in my soul it is well, but right now, while I am battling lupus coming out of remission and all that entails- ER trips, seizures, out of wack INR, blood clots, excruciating pain…
I feel like a failure. Only 33% of people with lupus can work, I am one of them but because my body decided it didn’t want to be in remission, I was taking too much time away from work and I was dealt the cards to take FMLA and Short Term Disability.
Now, I will say, I am blessed to have these options in the first place. I am blessed to have an understanding and compassionate employer who puts my health first when I need to have 2-3 days off a week for imaging, radiology, tests.
Despite all of this- it takes a toll on me. Emotionally, physically. I’m tired, stressed to the point that I got strep 2 times within a month a half. My body cannot fight sickness.
I’ve gone off grid from my family and friends. I’m isolating myself, I don’t want to be a burden, I don’t want to exist.
Because this isn’t living. It’s existing. And I don’t even want that.
Beyla has been my lifeline through it all.
#MentalHealth #Bipolar1 #Lupus
