In 2014 I presented with an abnormal heartbeat, superventricular tachycardia (SVT), in January 2015 I had a catheter ablation and expected life to go on as normal... I was sadly mistaken. Later that year I found out I had a rare adrenal tumor, pheochromocytoma, I had it removed along with my left adrenal in May 2016. While struggling with this tumor I also found out that I have hypermobility Ehler's Danlos Syndrome (hEDS), a rare (or underdiagnosed) connective tissue disease. Shortly after my tumor was removed I was then also diagnosed with Mast Cell activation syndrome (MCAS) and Postual orthostatic tachycardia syndrome (POTS). Life has not been easy but I feel so blessed to have discovered the illnesses I have as I was able to pave the way for my mom and my sister who also struggle with hEDS and POTS.

#RareAndMighty #HEDS #POTS #pheo #RareDiseaseDay #zebrawarrior #blessedtwinmommy2018