I had a robotic hysterectomy 2 days ago and I am so happy! I’m only 24, but the constant pain and bleeding have made it so worth it!
I designed and crocheted this angry uterus for the occasion!
#PolycysticOvarySyndrome #EhlersDanlosSyndrome #Hysterectomy #zebrawarrior
Reposting the poem I wrote during my senior year of high school about living with EDS #EhlersDanlosSyndrome #EDSAwarenessMonth #EDS #zebrastrong #zebrawarrior #Zebra #Poetry
1 reaction 
I really think in this life
We find what we are ment to do
When we stop focusing on
What we are kept from doing
A thoughtful gift in my email yesterday
I sent a thankyou reply because I found this very powerful and helpful after watching the news.
Love n hugs my Mighty family
Tj
💝🤗💖💓🐾🐕🐈🍞☕🍯
#52SmallThings #Selflove #Joy #PsoriaticArthritis #TrigeminalNeuralgia #Anxiety #PanicAttacks #Helpsomeone #Bekind #SphincterOfOddiDysfunction #InflammatoryArthritis #RareDisease #zebrawarrior #Alwaysbekind #MightyTogether #Friends
Sent from app 
I'm new here! Where are all my invisible zebras at? Looking to check out your watering hole, let's connect :) #EhlersDanlosSyndrome #EDS #zebrawarrior
In 2014 I presented with an abnormal heartbeat, superventricular tachycardia (SVT), in January 2015 I had a catheter ablation and expected life to go on as normal... I was sadly mistaken. Later that year I found out I had a rare adrenal tumor, pheochromocytoma, I had it removed along with my left adrenal in May 2016. While struggling with this tumor I also found out that I have hypermobility Ehler's Danlos Syndrome (hEDS), a rare (or underdiagnosed) connective tissue disease. Shortly after my tumor was removed I was then also diagnosed with Mast Cell activation syndrome (MCAS) and Postual orthostatic tachycardia syndrome (POTS). Life has not been easy but I feel so blessed to have discovered the illnesses I have as I was able to pave the way for my mom and my sister who also struggle with hEDS and POTS.
#RareAndMighty #HEDS #POTS #pheo #RareDiseaseDay #zebrawarrior #blessedtwinmommy2018
Latest
