zebrawarrior

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Hysterectomy

I had a robotic hysterectomy 2 days ago and I am so happy! I’m only 24, but the constant pain and bleeding have made it so worth it!
I designed and crocheted this angry uterus for the occasion!
#PolycysticOvarySyndrome #EhlersDanlosSyndrome #Hysterectomy #zebrawarrior

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A thoughtful gift #CheckInWithMe #DistractMe

I really think in this life

We find what we are ment to do

When we stop focusing on

What we are kept from doing

A thoughtful gift in my email yesterday

I sent a thankyou reply because I found this very powerful and helpful after watching the news.

Love n hugs my Mighty family
Tj
💝🤗💖💓🐾🐕🐈🍞☕🍯

#52SmallThings #Selflove #Joy #PsoriaticArthritis #TrigeminalNeuralgia #Anxiety #PanicAttacks #Helpsomeone #Bekind #SphincterOfOddiDysfunction #InflammatoryArthritis #RareDisease #zebrawarrior #Alwaysbekind #MightyTogether #Friends

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Zebra Warrior

In 2014 I presented with an abnormal heartbeat, superventricular tachycardia (SVT), in January 2015 I had a catheter ablation and expected life to go on as normal... I was sadly mistaken. Later that year I found out I had a rare adrenal tumor, pheochromocytoma, I had it removed along with my left adrenal in May 2016. While struggling with this tumor I also found out that I have hypermobility Ehler's Danlos Syndrome (hEDS), a rare (or underdiagnosed) connective tissue disease. Shortly after my tumor was removed I was then also diagnosed with Mast Cell activation syndrome (MCAS) and Postual orthostatic tachycardia syndrome (POTS). Life has not been easy but I feel so blessed to have discovered the illnesses I have as I was able to pave the way for my mom and my sister who also struggle with hEDS and POTS.

#RareAndMighty #HEDS #POTS #pheo #RareDiseaseDay #zebrawarrior #blessedtwinmommy2018

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