I need advice. Or just some positive thoughts. I’m at a breaking point and don’t know what to do.

I’ve been taking Pregabalin for my #Fibromyalgia . I was on 2 pills a day but at my last appointment with my rheumatologist, she suggested going down to one to help with how tired I was (also taking Amitriptyline). So I went down to one for about 3 weeks and I wasn’t feeling great and felt I needed the second dose. I messaged her on MyChart and she approved going back onto two pills a day.

Well….when I refilled it last, I didn’t realize this until this past Sunday, but the instructions still say 1 pill once a day. Therefore, I took a 2 month supply in 1 month, leaving me completely out and empty. I’m on day 4 of no medication. Sunday night, I sent in the refill. Monday, I called the pharmacy and really realized why my prescription couldn’t get filled. But I still had mondays pills. I called my doctor monday. Left a message. Tuesday I was completely out. Called again. Decided to speak with the operator and she transferred me to the same line I left a message on the day prior. Left another message. Wednesday I was so over it so I didn’t attempt it. Yesterday, I really started getting upset. I called my rheumatologist again. Tried to speak to a nurse. Phone rang and rang and rang. Called again. Left ANOTHER message. I sent her a message on MyChart yesterday, which the staff viewed 2 hours after I sent it. I called my pharmacy and asked them to reach out. THEY left a message. I contacted my primary. She’s out until Monday and he nurse suggested I call the rheumatologist’s nurse. I called the nurses line again today and someone answered. Told her what the deal was, I’ve been out and today was the first time I’ve actually spoken to anyone. She was going to send her a message and get back to me. This was probably 6 hours ago? I thought maybe she was on vacation, but no one said anything and there should be plans in place for docs who go on vacation. So here I am, 4 days without the only relief I’ve had since being diagnosed. I’m upset. I’m frustrated. I’m at a point where I just want to cry. I JUST need the instructions changed so I can refill it. I feel miserable. I’m back to barely being able to walk, my arms can barely hold my phone….I’m exhausted.

#Spoonie #chronicillnesproblems #help