ClassicalEhlersDanlosSyndrome

I have to have my husband carry most of my weight when trying to walk if I'm going through a bad flare or very tired with fatigue due to chronic pain & hypermobility. I don't always have the strength in my muscles to hold my joints in a stable placement. With every step I've tried to take today, with my husband holding most of my weight, my knee has shaken, given way & gone inwards, the knee cap pointing to the left. It causes so much pain around my knee when it does this. I'd appreciate any comments on anyone's experience with this & advice on what to do about it. Thanks in advance.

#ChronicIllnessEDS #elhersdanlossyndrome #Hypermobility #ClassicalEhlersDanlosSyndrome #ChronicIllness #LifeLongCondition #bendyjoints #justpoppingout #ClassicalLikeEhlersDanlosSyndrome

It’s also difficult because I have body image issues, and it doesn’t help that it causes me so much pain (no it’s not a physical manifestation of anxiety), I’ve tried protein powder (pain), and avoiding my “trigger foods” which is basically all foods. #EhlersDanlosSyndrome #ClassicalEhlersDanlosSyndrome