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A poem called Pain Ridden Rainbow by Mica Warsop

I created this poem based on my chronic pain. It's easy to lose hope when you deal with something that can't be cured or something you live with trying to manage everyday. One thing I have to hold on to is hope it gets better in tiny small doses. I have never experienced a day without pain.. even as a child I always felt my body. So for myself I have to hold on to the hope that my pain may not go all together but changes levels, like the spectrum of a rainbow. It always ranges from 5-10 the 5-7 levels are my best days that come few and far between, but they still come. That's my hope for tomorrow. I hope this poem brings you hope too. #ChronicPain #EDSAwareness #Hypermobility #elhersdanlossyndrome #EDSHT #ChronicIllness #InvisibleIllness #LifeLongCondition #lifelongillness #Fibromyaliga #hypermobileehlers-DanlosSyndrome(hEDS)


Is my right knee subluxing?

I have to have my husband carry most of my weight when trying to walk if I'm going through a bad flare or very tired with fatigue due to chronic pain & hypermobility. I don't always have the strength in my muscles to hold my joints in a stable placement. With every step I've tried to take today, with my husband holding most of my weight, my knee has shaken, given way & gone inwards, the knee cap pointing to the left. It causes so much pain around my knee when it does this. I'd appreciate any comments on anyone's experience with this & advice on what to do about it. Thanks in advance.

#ChronicIllnessEDS #elhersdanlossyndrome #Hypermobility #ClassicalEhlersDanlosSyndrome #ChronicIllness #LifeLongCondition #bendyjoints #justpoppingout #ClassicalLikeEhlersDanlosSyndrome