I have come across this website for many years. Now I am officially signed up :-) I wanted to let all of you know that I have noticed there are a handful of people within my support groups that not only have Ehlers-Danlos syndrome but have a diagnosis or a family member diagnosis of neuroendocrine cancer. for those who are also a “double zebra“ I have a brand new Facebook Group. Please message me if you’re interested in joining it. #unicornzebras #doublezebra #NeuroendocrineCancers #EDSAwareness