unicornzebras

Hi all! After years of struggling with bleeding esophagus and stomach varicies I was hospitalized this week due to a blood clot. I have to say I am beyond terrified!!
After years and years of staying away from blood thinners and Advil due to my constant bleeding varix I am now taking the one thing that could hurt me the most. The doctors say I have to take the chance of bleeding to save other organs from blood clots but the idea terrifies me.
So for all those on blood thinners of all type (I’ll be on warfarin) any advice as to how to handle this new challenge? Diet tips? Excercise tips? Side effects to watch for ? Anything at all friends!
#BloodThinner #varices #bleeding #Stroke #ChronicIllness #Zebra #unicornzebras

#EhlersDanlosSyndrome
I have come across this website for many years. Now I am officially signed up :-) I wanted to let all of you know that I have noticed there are a handful of people within my support groups that not only have Ehlers-Danlos syndrome but have a diagnosis or a family member diagnosis of neuroendocrine cancer. for those who are also a “double zebra“ I have a brand new Facebook Group. Please message me if you’re interested in joining it. #unicornzebras #doublezebra #NeuroendocrineCancers #EDSAwareness