Down Syndrome

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Cell Phone

My daughter is 15 years old and has Down Syndrome. I purchased her an iPhone a few months ago but soon realized I was unable to place pictures of her contacts in the contact listing area. She has to select a name in the contact listing area, which then goes to the area/page with the individual's pictures and phone numbers to see if that is the person she wanted to call. If not, she has to repeat this process until the she fines the person she wanted to call. I checked with Apple, and they informed me that individual pictures cannot be added to the contact listing area- the listing that appears when you first go to your contact list. Therefore, I am writing to see what cell phone other parents have gotten for their Down syndrome children with hopes of finding a phone that would work better for my daughter. Thanks Pat

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I'm new here!

Hi, my name is ClaireHS. I'm here because I'm curious about how to best advocate for and be an ally to the Down Syndrome community.
#MightyTogether

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I'm new here!

Hi, my name is Vsettell. I'm here because I have a new granddaughter with Down syndrome. I am a nurse so I have some back ground, but I want to learn all I can to help her and her parents.

#MightyTogether

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I'm new here!

Hi, my name is bjparrish54. I'm here because my newest granddaughter has Down Syndrome. I want to learn more about this condition.

#MightyTogether

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I'm new here!

Hi, my name is Donna. I'm here because I have a daughter with Down Syndrome and I want to read everything I can about it, other’s experiences, etc.

#MightyTogether

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October is Down Syndrome awareness month

Don't let disabilities stop you. I made this for Down syndrome awareness month!#DownSyndrome

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We are in need of a new co-leader for MHC to encourage, empower, & support our members. I make a APPEAL to current members - PLEASE read below!

We are currently looking for a new Co-Leader for the Multiple Health Challenges group. We are growning fast and just passed 2,200 members. This is really exciting to me, however to be honest, I have been very frustrated that there is less activity recently and as our membership grows steadily the number of comments & replies has actually diminished. Our old co-leader Chris is no longer with the group and we need to have others step up and make up for her commitment to regularly respond to posts and comments. This means a collective effort from everyone in the group! I have had numerous layers of serious physical & mental health challenges recently and not been as active as I would like in order to step back and focus on self-care. This is a time having another co-leader to pick up the slack is essential!

My last post about hobbies was actually first posted 16 months ago (when we had at least 1,000 less members) and it got over 200 ❤️ & 👍and 100 comments then! It got only ONE this time. And Laura made a great post about disability after that and it got only two responses as well. When new members open up and post to introduce themselves and then get very little response that is even worse. I fear that new members will see this and not be active moving forward. This is OUR group everybody and it functions best when members support other members. We all have our varied health histories and with them the knowledge and wisdom we’ve garnered along the way! PLEASE let’s share these with each other. Without this empathy and understanding this group is falling short of what I first envisioned when I started the group and what it’s capable of.

For a co-leader I am looking for someone to welcome new members, comment or respond to posts and other comments & replies, and make new posts to the group. It is important for the group to have distinctly different voices to support people because people might relate more to either of us. What is a really good situation is if we both respond to the same posts, welcome new members from different perspectives and provide voices for people that are accessible and relatable. There is a commitment needed that you monitor activities on the group regularly and can respond pretty quickly.

Offering your own posts provides more content for the group. I can assist and support by offering to look at your new posts for feedback and editing before you post if you would like, will comment on your posts to get the responses going to best support your efforts, and I can help finding memes or images.

I look at potential leaders' history of posts and/or comments that have helped and supported others in the past. Willingness to be honest and open about your own health challenges is crucial to best support people.

You will get access to the Community Leaders group and your name will have a “Group Leader” tab next to it up top on your comments and responses so I think people pay attention especially to your activity and wisdom shared from your personal experience. Would you consider joining me on this journey? Let’s have a DM chat to discuss this! Thanks for considering taking on this role!

In service,
Moshe
@moshemhc

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