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Motion and emotion

Watching two recent TV programs, I saw a universal law in action that connected the outside world with the internal world of emotion. The first involved human actions in straightening watercourses and the disastrous results further down the line ( ‘The Lakes With Simon Reeve,’ episode three BBC2). It speeded up the flow of water and because the banks of the streams were also built up, it meant that flood plains couldn't be utilised. Hitting built up areas it drowned them with an irresistible wall of water.

The second show, Dogs Behaving Very Badly (Channel Five, with trainer Graeme Hall), disclosed that the way to overcome aggression in dogs was to approach other dogs at an angle as straight on was seen as aggressive.

Both these displayed that whether it was water or aggression, destruction was like a hot knife through butter (concentrated force / anger / determination). The opposite was slow, meandering rivers or approaches to others: Still waters run deep - shallow ones erode, not build up (concentrated versus dissipated energy). Even in the body these processes are seen in constipation and diarrhoea or wasting and depositional diseases.

This connects with something else that I have noticed, namely that anything aimed at an angle, kicks up less mess than if dropped straight down. For instance ash put into a bucket obliquely, creates less dust spilling into the atmosphere than when shovelled straight into the bottom of the container.

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Treating myself well #Selfcare #ketamine

I finally did it. After tons of antidepressants that don't work, after a million treatment programs, after dedicating my life to myself, I stood up to my psychiatrist and told her I was going to try ketamine treatments. I'm done chasing symptoms and playing catch up.

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Night, Night All

We are the night shift.

We are the program

that ran this world before you came.

You are the inexperienced,

Who will write your own programs,

create your own destiny.

We will wait until you ask the right questions,

make the same mistakes we did.

We will explain, while you complain.

We will nurse you through your

blunders, your errors, your nighttime terrors.

We are calm and find your hysterics

our only amusement

(Oh how it reminds us of our history,

our own folly and stupidity

Before the relentless march of truth

over our egos, our dreams.

You will rail against us and call this world,

this life a prison and us as your warders,

not realising that we are just mirrors

held up against your own fears.

We are shepherds, all else is your imagination,

Trying to dump your phobias on our doorstep.

When realisation dawns, you will see the truth

and cry over your past mistakes

but we will be long gone by then.

The door to understanding will have closed

and we will have slipped out into the night,

taking our regrets with us,

for those we have hurt in our attacks

based upon own failures of understanding...

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New to MS free virtual program

Quiz: What’s free, informative, supportive, collaborative, and the second Thursday of each month? That’s right, the New to MS: Navigating Your Journey virtual programs. Register to attend, learn, and interact with a healthcare professional and others new to living with MS. Add a comment if you've been diagnosed in the last year or in the process of diagnosis.

www.nationalmssociety.org/Symptoms-Diagnosis/Newly-Diagnosed/New-to-MS

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Substance Use Disorders #SubstanceUseDisorders #Addiction #Depression #Anxiety #AlcoholDependence

I started drinking when I was a kid. My parents would give me sips of their beer when I would tell them I was thirsty and then laugh at how cute I was when I drank it. I loved the attention. I got drunk the first time at 11, after my sister died. I started drinking full time at age 14. I drank almost every day from the age of 19 until I was 40, except when I was pregnant: twice (and boy, did I not like that).

I “tried” to quit drinking a few times it never lasted. Finally, I joined AA. There, I was love bombed and abused much like the dysfunctional family I grew up in. They taught me I had a disease that was incurable and I was morally bankrupt. Any normal human emotion was a selfish symptom of my alcoholic/addict brain. Since, I was morally bankrupt I couldn’t be trusted to manage my own health. I must rely on a “higher power”.

I was encouraged to stop taking my prescribed medication and to stop seeing therapists and was being steered towards a certain religion. Further disempowering me, and making me dependent on the program, was the belief that I would have to remain dependent on this
“higher power” and be a life time member or I would die.

So to put it simply I had a scientific “disease” that science could not cure, I was too morally deficient to think for myself and AA knew what was best for me. I stayed for 6 months, before I had a falling out with a member when my dad died. The lack of empathy for my situation was appalling.

We had one member who was the leader rather than someone who shared that role with everyone the way the meetings are traditionally conducted. She verbally attacked me, stalked me, harassed me, started a smear campaign and threatened physical harm. Even my sponsor was harmful, she joined right in and so did her husband. I almost got a restraining order, instead I didn’t leave my house for almost a year. Even after, I rarely go out alone.

That experience caused me to finally quit, not because the “program” worked, but in spite of it. I never wanted to be involved with people like that again, nor did I ever want that life again.

So, those outside of the 12 step programs don’t know, and believe they’re great programs. Let’s be honest, that’s what you’ve been taught to believe, and until recently there has been no other choice. For those in the programs, you are desperately seeking love, acceptance, approval, and relief of your addictions (self medicating, that’s what it truly is). You have been taken advantage of, I hope you realize that, and get some real help someday. And for those who left, I’m proud of you, for finding that inner strength that was repressed in you; thinking for yourself, so you will never fall victim again to exploitation and empowering yourself to truly heal.

I’m 6 years alcohol free, and nearly 2 years tobacco free. No higher power did that. Thoughts and prayers didn’t do that. I did that. I can have all the alcohol and tobacco I want, I simply don’t want it. I have healthier choices and better ways to love my self.

I know a lot of people reading this, will experience cognitive dissonance.

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What’s been your experience with copay programs?

Many people don’t know that manufacturers have copay programs. Some can’t afford the out of pocket expenses despite having commercial insurance. Some don’t have commercial insurance. I thought your comments could be helpful to someone who might need it. #ChronicIllness #ChronicPain

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I'm new here!

Hi, my name is Emily Hornsby. I am the mindfulness curriculum coordinator for the University of Alabama School of HEalth Professions in Birmingham, Alabama and the programs it offers such as the National Center for HEalth, PHysical Activity and Disability (NCHPAD) and MENTOR (mindfulness, exercise, and nutrition to optimize resilience). I teach mindfulness and mindfulness meditation to those with a mobility disabilty such as MS, TBI, Parkinson's, cerebral palsy, stroke, etc. I have fibromyalgia and sjogren's syndrome. I am interested in learning how mindfulness and meditation have helped those individuals with an illness or injury.

#MightyTogether #Fibromyalgia

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Resource Share Tuesday: Diabetes Educators

I've been working with my diabetes educator for over two years. She's been very instrumental in my disordered eating recovery. She's helped me with creating balanced meal ideas, worked with me in finding ways in managing my stress and has helped me understand my condition. If it wasn't for my diabetes educator, I'm honestly not sure if I would still be here. I came to her at a point where my overall health was declining. Her guidance saved my life.

Diabetes educators can be an invaluable resource for diabetics. Educate, support, and give personalized advice to diabetics. Diabetes educators can help you manage your diabetes better, reduce your chances of complications, and improve your overall health.

You can locate a diabetes educator through several avenues, including:

Medical Professional: Consult your primary care physician for a referral. Many hospitals have diabetes clinics staffed by diabetes educators.

Diabetes Association: Reach out to your local diabetes association or the American Diabetes Association (ADA). You can usually find a diabetes educator directory there. (https://professional.diabetes.org/erp_list_zip?utm_source=Offline&utm_medium=Print&utm_content=findaprogram&utm_campaign=PRO&s_src=vanity&s_subsrc=findaprogram)

Online Resources: Many websites offer directories of diabetes educators. The Certified Board of Diabetes Care Educators (CBDES) has a comprehensive directory that allows you to search by location and last name. (https://www.cbdce.org/locate)

Insurance Coverage: Check your health insurance coverage for diabetes education programs or diabetes educators covered under your plan. Your insurance provider may have a list of in-network providers.

Referrals: Ask friends, family, and members of your diabetes support group for recommendations. They may know of experienced diabetes educators they have personally worked with.

Are you currently working with a diabetes educator?

Do you have any recommendations?

Share in the comments!

#Diabetes #DiabetesType1 #DiabetesType2 #lada #mody #ChronicIllness #MightyTogether

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Mental Health at work: Is it really ok, to not be ok?

It’s a phrase I am sure we have all heard, ‘it’s ok to not be ok’. And as someone who advocates for mental health and who has a bipolar diagnosis, I am the first to admit there are times I have not been ok. But how comfortable are we sharing that in the workplace? And who here has not been ok, but not felt able to voice that at work?

I have been through some real low points in my life on my journey to balanced mental health, I have been in the darkest moments and still wiped the tears, put on concealer and walked into the office like I am ok because I know that taking time off will be seen as weakness and that my manager would judge me for it. So instead I go in pretending that I didn’t cry the whole night, that every breath I took didn’t hurt and that I wasn’t clinging to life by a fingertip. And in the process I have been pushing myself closer to exhaustion and closer to the edge which inevitably once I slip off it is a long climb back up. That may seem extreme but the truth is that I have been honest in the past, I have said ‘actually I am feeling incredibly depressed and anxious and I just need to have a few days to sleep, to walk, to stop the cycle’ and I have been made to feel like a liability and I, despite having low absence, have felt like it has hung over me ever since. In the past it certainly hasn’t been ok to say I am not ok without significant impact on my career. I am lucky to now have grown as a person and in my acceptance of my mental health and its limits, but also to have an employer that makes me feel empowered to be who I am and that has been down to some amazing managers too.

The truth is we ALL have mental health, we can all be honest and say we have good days and we have days where we just aren’t doing so well. For some those bad days might be debilitating, for others they may be able to fake it through and for a lucky few it might just be a bad day and tomorrow will be good again. But although a lot of how someone recovers from those bad days is down to themselves seeking help and support or knowing self care, the reaction and support of employers plays a vital role in their recovery or ability to return to work.

When someone is brave enough to disclose they are not doing ok, in our personal lives we all want to be that person that can support, we all want to be that person who is there for someone in their lowest moments and give them hope to get through the day. I doubt many of us would roll our eyes and think, what a pain! But how many of us can say the same in the workplace?

So we probably all agree that if a friend or loved one was struggling we would want to help. But here is the issue, what would you think if someone said that they were struggling with their mental health to you as a manager? Would you see the strength of someone who is aware of their mental health and able to be honest and open? Or would you see weakness? Something you don’t know how to handle? Maybe even a lame excuse from someone not cut out for the job? Or would you maybe think about the issues their absence causes you? The cost of absence, the inconvenience of rearranging meetings, finding cover or covering workload? The problem is it is not just a case of agreeing or accepting time off, it’s giving that person the reassurance, hope and belief that not only do you care about them as an employee but you want them to know there is no judgement and you support them.

I have experienced both types of managers and no suprise which one I had more respect for and flourished under.

Chasing someone for a return date, telling them how inconvenient it is, giving them the cold shoulder, refusing to invest in their development or being angry or even discussing or threatening performance management is not going to get that employee back to work quicker. Instead you are adding to their anxieties, their feeling of hopelessness and to their despair and they are more likely to have extended absence. Not only that, but you are treading a fine line that I personally see as morally and ethically questionable and certainly unlikely to generate a healthy, happy workforce. Mental illness should not be treated differently to physical illness, and it also should be considered whether or not their mental health condition is a protected characteristic and as such protected by law.

Businesses need to start thinking of mental wellbeing as part of their workplace offer. Training mental health first aiders, having access to assistance programs, training for line managers and having a culture of open conversations about mental health all will help. Where my manger has offered support, talked openly about mental health and given me the respect to manage my condition myself and seek support where needed I have had fewer absences, my work is of a higher quality, I am more engaged and I am happier in my workplace. We all benefit from that! Productivity is higher, engagement is higher, career development is more sustained and progressive and objectives are met.

So maybe we should ve asking ‘is it ok not to be ok in my workplace?’ and if the honest answer is no maybe its time to address that. Maybe the conversation shouldnt stop at ‘its ok not to be ok’ perhaps it should be followed by ‘what do you need? how can I help?’.

As mangers we are part of the answer to that question and as human beings we have a responsibility to our fellow humans to make a world that is kinder.

#MentalHealth #Work #Workplace #Anxiety #Bipolar #Bipolar2 #BipolarDepression #Depression #MoodDisorders #mentalwellbeing

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Let Breathing be your Anchor

I held my breath through life, convinced that breathing would suffocate me. As I sit here, penning these words to all of you, I relive the torment of my mental illness – the excruciating, earth-shattering pain. A pain so relentless, seizing my voice and constricted my breath. I could not summon the words, “PLEASE HELP ME,” yet my eyes pleaded with those closest to me, urging them to delve deeper, the notice the unraveling within.

I was falling. The lifeline I clung to for so long frayed, panic setting in as depression threatened to consume me entirely. It felt like facing razor-sharp edges while searching for the hands that once anchored me. I WAS LOSING! It remained a relentless abyss, time slipping away. Despite it all, I fought on, seeking an escape even if it meant bidding farewell to those dearests to my heart.

Amidst the darkness, a distant voice echoed softly, “you are okay, just breathe.” A voice unfamiliar yet soothing. Yet, within that solace, a profound sadness engulfed me, my heart weighed down by an unbearable ache. I struggled to endure. It was my depression, my anxiety that pushed me to the brink of madness, but I whispered, “no more.”

The storm clouds loomed, and I clung to life, hope, and solace. Seeking peace in the depths of a blade and the emptiness of pill bottles meant to bring normalcy. But salvation wasn’t solely in medications or hidden blades; it resided in the smiles of fellow strugglers clinging to life. It was in the souls that clasped my hand when I teetered on the edge. It was in unconditional love, genuine hugs, and guardians warding off my demons. Voices of fellow survivors, continuing despite their own battles.

In that moment, I roared, “NO MORE.” No more pain, no more agony. No more abyss, waiting for my last breath. I screamed “BREATHE,” the same word once heard from that familiar voice, only to realize it was my own. My depression began to loosen its grip, though it lingered, awaiting my return. To claim I no longer fear the plummet would be false. Yet, this time, I hold fast to those hands that lifted me before.

When fear looms, I whisper “breathe” once more.

I won’t claim that I no longer struggle because I do. The path to recovery is arduous but feasible. The crucial lesson from therapy and residential programs: “it is okay to not be okay.” If that means simply breathing through your days, that is enough. Seeking help is permissible; you need not traverse this path alone, for there are others willing to walk beside you, holding your hand.

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