MERRF

I have a metabolic metabolism disorder classified as a mitochondrial DNA disease. This disease is rare, but of course, the exact mutation I have is the rarest of the rare - MERRF. I was diagnosed after two weeks in a hospital and saw an entire fleet of doctors because no one had any idea what was wrong with me. After I was finally given a name of disease, family research provided me answers to questions and I found out that it was running strong on my maternal side.
Yesterday, my aunt died. But she was not the first to die young from complications. Her son (my cousin) died when he was early 30. My son died when he was 5. My grandmother died when she was early 50s.
It’s a hard thing to watch my family live through this everyday and die so young. I don’t want to see anymore people I love suffer and leave. I hate to think this way, but sometimes I look around and wonder “who’s next?”