momsdontgetdaysoff

I wish I could be relieved that its finally Friday. Unfortunately this momma doesnt get days off. Life on the autism spectrum is NOT for the weak! Took on the battle of brushing my sweet baby girls hair today. She is incredibly sensory sensitive and HATES for her head to even be touched. But it had gotten out of control! So I ran her a nice bath, turned on her show as a distraction, washed and heavily saturated with conditioner. Her hair is very thick and curly and she had these little baby dread locks developing...this momma was not prepared for the meltdown that kicked off the moment the brush touched her hair! Screaming, flailing, Bath water flying everywhere! Crying until she made herself sick in the bath. Then I had to get the slippery screaming child OUT of the bath... Long story short the meltdown went on for 3 hours... I used up every ounce of my reserve, I'm totally just exhausted of the battle. Autism is a tricky and mysterious thing. It is so hard to determine which behaviors are within her control. All I know is that at almost 9 years old and a whopping 90 pounds of a hysterical child is becoming more overwhelming by the day. I love my sweet girl more than anything on this planet, I'm Just feeling isolated and overpowered. So tonight I will sit with my #furrysoulmate and be grateful that (atleast for the time being) my sweet girl is tucked into bed quietly falling asleep with all of her favorite stuffies and blankies. Frankly I am grateful For managing to make it through another week on my own amidst the #AutismMeltdowns During these stressful and uncertain times due to #COVID19 #quarantinethoughts #lifeonthespectrum #specialneedsmommy
#LupusWarrior