PatientJourney

I’m Chris from Germany, waiting for clinical treatment at Rambam in Israel, and I’m looking forward to connecting with others about how to cope with symptoms that keep increasing — #Dysautonomia and many other symptoms. I have hope that they will be able to help me there.

Best regards, Chris
#PatientJourney #chronicwarrior #HopeInIsrael

The feeling you could get after a rare disease diagnosis. When relief and grief collide. We recently heard this word used with reference to a rare disease diagnosis. How did you feel when you first received your diagnosis? Was it relief, grief...anything else?

#RareDisease #PatientVoice #RarePatient #RarePatients #PatientPerspective #PatientJourney #GeneticResearch #RareGeneticDisorders