Functional Neurological Disorder (FND)
I have really been struggling with something called functional neurological disorder (FND) for almost a year now. I get non-epileptic seizures, facial spasms, selective mutism, and occasionally trouble walking and moving my legs. It makes me feel really hopeless 😩 because my doctor said there is nothing she can do about it - she just tells me to manange my stress. This disorder is also know as conversion disorder, which is a very archaeic term from the time of Freud. Back then it was mostly women afflicted by it, and they called it hysteria. Even when I was in the hospital 🏥, they wrote in my chart that I was “faking a seizure”. There is nothing fake about it - it is a very very real and scary experience. Just because there is no “known” physical cause shouldn’t make it any less valid! I also am frustrated by the fact that this disorder is called “functional”. It is anything but. It can be very distressing and incredibly disabling for the individual experiencing it. I am writing ✍️ this post to bring awareness to this issue, and the problem with the medical system where if doctors can’t find a cause of the symptoms, they say it’s all in the person’s head or accuse them of faking. These leads people who are struggling feeling upset and invalidated and leading to a distrust of doctors which could make them less likely to reach out for support in the future. This is highly damaging. Just needed to rant and ask has anyone experienced anything similar with the medical system or symptoms of FND? How do you cope? #FunctionalNeurologicalDisorder #non -epileptic seizures, #Selective mutism #mobility issues #It ’s not all in your head