Functional Neurological Disorder/Conversion Disorder

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🚸Annual Occurrence of FND in Children🚸

Living with Functional Neurological Disorder (FND) is difficult enough for adults to understand & live with, I can’t imagine how much more difficult it must be for children who live with this debilitating condition. Sadly, recent research into children with FND shows that their is an “annual occurrence of 18.3 per 100,000 children”.

[Reference: Yong, Kenneith et al. “Functional neurological disorder in children and young people: Incidence, clinical features, and prognosis.” Developmental medicine and child neurology vol. 65,9 (2023): 1238-1246. doi:10.1111/dmcn.15538]

@fndhope @sassyfndlife #FunctionalNeurologicalDisorder #ChronicIllness #ChronicPain

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FND IS REAL!🧡💙

Many people living with FND are likely to have been subjected to such comments as “It’s all in your head” and been treated as if they are exaggerating their symptoms, or sometimes even as if they are pretending or ‘making up’ their symptoms. These misconceptions can be very damaging for people who live with this debilitating condition.

In a 2021 research paper titled ‘A Practical Review of Functional Neurological Disorder (FND) for the General Physician’ written by Neurologists, Neuroscientists and Researchers from Edinburgh, Scotland, and published by the Royal College of Physicians, states that “Functional neuroimaging and neurophysiology have helped to show that people with these [functional] disorders do have something wrong with the functioning of their brain which looks different to feigning.” Simply put, this study shows that FND IS REAL and that there is evidence to support this.

[Reference: Bennett, K. et al. (2021) ‘A practical review of functional neurological disorder (FND) for the general physician’, Clinical Medicine, 21(1), pp. 28–36. doi:10.7861/clinmed.2020-0987.]

Link: www.rcpjournals.org/content/clinmedicine/21/1/28.full.pdf

@fndhope @sassyfndlife #FunctionalNeurologicalDisorder

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😔A Devastating Impact of Health Based Stigma😔

Stigma can have a devastating impact on a person’s life, especially when that stigma is related to health conditions & disabilities that a person is living with.
Can you imagine needing medical attention but being too apprehensive to seek it? This is the sad reality for many people who face health based stigma on a regular basis. In 2020 FND Hope & affiliates conducted a survey which looked into the impact the stigma associated with Functional Neurological Disorder (FND) can have on people living with this debilitating condition. The survey revealed that, because of the stigma towards FND, only 13% of people living with this condition felt comfortable seeking medical care if needed in the future. The remaining 87% were either reluctant to seek medical care, or were unsure how they felt about seeking medical care, in the future because of the stigma attached to FND. Nobody should have to face the impact of stigma or be made to feel uncomfortable in any way about any aspect of themselves. And everybody should feel uncomfortable about seeking medical care if they need it.
@fndhope @sassyfndlife #FunctionalNeurologicalDisorder #ChronicIllness #ChronicPain #MentalHealth #MightyTogether

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Around in circles #FunctionalNeurologicalDisorder #PTSD #DissociationDisorders #DissociativeIdentityDisorder

I am angry because mental healthcare people keep telling me they can't help me because "they can't provide the care I deserve." The idea seems fine on the surface... They WANT me to get especially good care. They just can't provide it themselves. In a sense that's perfectly fair... especially from their perspective.

The trouble is that the cumulative result, from my perspective, is that I actually get no care, or I only have access to whoever is inclined to think unusually much of themselves... even though my experiance is that these people are otherwise not unlike the ones who thought they couldn't help me.

I want to be told when I have exhausted my treatment options. I suspect I mostly already have. People don't want me to give up... Or they just don't want to take responsibility for the lack of options.

In spite of that, my reality is that if I am going to try to live how I am, over any kind of long term, I definitely need to cut spending ASAP. That means I need to stop spending as soon as that path is nolonger hopeful. I suspect I have been beyond that point for some time already, although all sorts of well meaning people regularly assure me I haven't seen nothing yet ...

Most of these people don't even provide phone numbers... At best they have the name of someone who may or may not be an actual provider, or they rattle off a few bits of potentially googleable jargon.

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🧡😔Nobody Should Ever Feel Disrespected By Their Doctors!😔🧡

When you have a health issue, regardless of what it is, the very least that you expect from your medical professional(s) is RESPECT. Unfortunately, for many people living with Functional Neurological Disorder (FND) this most basic politeness is often not given by their doctors & other medical professionals. Nobody should ever feel disrespected by anyone, least of all by medical professionals that they have went to visit because they have concerns about their health. Sadly, according to FND Hope’s, 2020, ‘Stigma Study’, a devastating 85% of people living with FND felt disrespected when visiting a medical professional. This is why raising awareness of FND, particularly amongst medical professionals, is so important.
@fndhope @sassyfndlife #FunctionalNeurologicalDisorder #ChronicIllness #MentalHealth

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🧡Some of the Symptoms of FND🧡

Functional Neurological Disorder (FND) is a debilitating condition that causes a wide variety of symptoms. The symptoms of FND range from chronic pain, fatigue & speech difficulties to visual impairment, functional seizures & paralysis. Although there are lots of similarities in the symptoms that a person experiences, the variety of the symptoms & the severity of those symptoms differ greatly from one person to another. They can also change from one day to the next which makes this condition even harder to live with & brings ever changing challenges to be overcome.

@fndhope @sassyfndlife #FunctionalNeurologicalDisorder #ChronicIllness #ChronicPain

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🧡📱The FND Smartphone Analogy📱🧡

Like many chronic health conditions, Functional Neurological Disorder (FND) is a difficult condition to explain to people. I like to use the ‘Smartphone Analogy’ because it is usually easier for people to relate to as most people have a smartphone these days.
The Smartphone Analogy:
Imagine that a person is like a smartphone – the hardware of the phone is like the person’s physical body structure; the software/apps on the phone is like the body’s functioning. A person without FND is like a smartphone that is all structurally correct with all the apps functioning properly. A person with FND is like a smartphone that is all structurally correct with software issues and apps that are not functioning properly.
@fndhope @sassyfndlife #FunctionalNeurologicalDisorder #ChronicIllness #ChronicPain #MentalHealth

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🧡It May Be Rare But You’re Not Alone🧡

Functional Neurological Disorder (FND) is classed as a rare disorder & it can feel very isolating for people living with this debilitating condition. I used to feel like I was the only person on the planet who was living with FND & thought that nobody would ever understand what what I was going through.
Then I discovered that there were a lot more people living with FND & facing similar challenges as I was. Up to almost 1,000,000 people are living with FND across the globe.
So, if you are living with FND, please know that you are not as alone as you may feel! 💪🏻🧡💙
@fndhope @sassyfndlife #FunctionalNeurologicalDisorder #ChronicPain #MightyTogether

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