Sjorgens

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A way to start the day

Today is kinda of a make or break day. I have another Md appointment where they will give me news that will change my life one way or another. I’ve tried talking about it with other folks but I get that ‘don’t worry about’ and ‘I’m sure you’re fine’ which is worse than someone talking over you.
I attempted to face the day with some energy and high vibes. My partner was having his own shite fit and stared daggers at me. I just wanted to fade away in that moment. I walked away and started working on the plumbing with no tools. I could barely say goodbye for all the hurt and anger I felt. There’s just so much out of my control and it’s unbearable at times. This too will fade into the day. I just needed to vent to someone and I thank you for reading and hope your day is on the way up.
#Anxiety #Sjorgens #Depression #Fertility

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Welp! I have no one to blame but myself #Lupus

6 months ago I woke and struggled to walk. Fast forward to the day before Christmas Eve and I’m being admitted into the hospital because I can’t walk without a walker. I spent Christmas and NYE having spinal taps and IVIG infusions. I’m still here waiting for a rehab center that has space for me to start my PT. What was my diagnosis? a really bad unknown infection that got together with my #Lupus and #Sjorgens and had a party with the nerves in my legs, feet and toes. My nerves couldn’t hang. They’re hopeful I’ll recover but remind me that I might have residual symptoms. I blame myself. I knew something was wrong but I didn’t have #Insurance so I didn’t get checked out. I should’ve listened to my body and now my body is worse for wear, doing the best it can to recover. Please don’t let insurance hold you back. Please don’t let the fear of the unknown hold you back. There are clinics and organizations available to us, we have to research and call and email until we get an answer. If there’s one thing I have learned from my ordeal is to never stay silent again. Speak up, ask, question, comment!