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Follow up to last post #Insurance #income #Retirement

Fast follow up to Saturday's "too long yet not full story".
Saturday was about https://my.worries that my lung cancer progressed and that I had symptoms of mets to the brain or a stroke (slurred speech and worries about balance).

The main anxiety this weekend was the need to apply for my retirement after stressful years at my workplace. I have to mke it through to at least April so that I can continue with my current coverage for my spouse and I after retirement. This is important for my cancer treatment obviously, assuming it is still successful. Also for my husband (he's retired.)

This assuming that my HR does not release me before April (remaining sick leave days and the fact that I am starting to slur my )speech
OR that I dont trust our state government benefits administration (CALPERS for those of you inCalifornia) nor my union to back me up.

I am assuming all will go through for my sanit...and expecting planning for the worst from experience.

And planning for my husband is important. I have been taking care of legal paperwork and contracts since we've been married since I found he relies on trust, optimism and his hopes to be what will happen in contracts and legal documents.

If it were just me, and I had my current doubts about my survival, I would quit and stopped my expensive treatment and daily meds and let the cancer take its course.

Im old, nothing is working out in life, and I rarely leave my house or see friends since 2021. The world is turning into an ugly place. I have books to read and maybe the remaining ability to go for a occasional ride in a car before i die. If i have insurance with my current HPO, I can get hospice care for the end.

I'm tired this weekend was not the rest I needed. Work tomorrow. Sorry for the pos, but I needed to say this.

5 reactions 1 comment
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I'm new here!

Hi all -- my name is Felix and I'm here because I recently had a friend diagnosed with breast cancer and was helping her navigate insurance choices. I've had the opportunity to learn a bunch about insurance in my professional life (I work at a primary and behavioral health clinic called Curio) so thought I would see if anyone else needed support. Helping her through the experience was certainly eye opening.

#MightyTogether #Insurance #chronic #Anxiety #Cancer #BreastCancer

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Paying for an MRI/MRA

Hello Mighty Community! Does anyone have any advice on how to pay for an MRI/MRA? My roommate needs them. She’s on her parents’ insurance still but no one in her family has been sick this year so there’s been no movement on their deductible. It will cost her 6 months of our rent to get these done, which she can’t afford #ChronicIlless #MRI #Finances #Insurance #Health #Brain #HealthInsurance

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Advice/Personal Experience Filing for Disability

Hello to everyone on The Mighty!

I have been advised to start the process of applying for disability. I have PTSD, and the most significant factor impacting my ability to work is insomnia. My parents put me on sleeping medication as a child, and when I hit my mid-30s, my body didn't respond to them anymore. I went through 9 months last year, where I slept roughly 45 minutes every three days. Suffice it to say, I was not functional during that time and could not work. After detoxing from sleep meds, my body started responding to Xanax, and it has helped, but my prescribing doctor retired at the beginning of this year. Though I am in the process, I have not been able to find another psychiatrist yet, and frankly don't see benzodiazepines or sleeping medication as a long-term solution anymore. I want to work through my trauma and sleep on my own if possible. I have been tapering my dose of Xanax slowly, and so far, I've still been able to sleep, but my last refill will run out soon. I attempted to sleep without medication a few weeks ago, and it didn't work. It also brought a domino effect of panic attacks, flashbacks, and dissociation. If I cannot sleep again, I won't be able to work, and I need income and medical insurance. I have been told that applying for disability can be lengthy and that I should start now while I am functional. Have any of you gone through the process of applying for disability? If so, would you be willing to share your experience and any advice you may have? I appreciate any help you can provide. #Insomnia #PTSD #Disability #Insurance #selfcare

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What is your Insurance Denial Story? Share it as a new post in the group

Share a new post in the group detailing the denial experience you had with health insurance and its effect on you or your loved ones. Make sure to name the insurer as well because it may help spot trends too. Use the hashtag #InsuranceDenialStories . Invite others to share their stories here too. Let's build a supportive database to really document and show the true human cost of Insurance denials and possibly even spot trends to help mitigate the horrors that are being perpetrated against those most in need.
#ChronicIllness #Depression #MentalHealth #HealthInsurance #Insurance #Abuse #ChronicPain #Grief #Disability #CPTSD #PTSD

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Tough choices

My wife is waiting to hear back about what day her new job starts. She went for an interview last week and the manager said they were planning to start either April 4 or the following week. But she did get the job. So that's the good thing!

The hard thing is we got a call yesterday from the place where her daughter (high functioning) does her autism therapy and they told us her insurance changed and they don't take it. So either we get her back on the plan she used to be on or services end Friday. The only way to change that is to actually call them, which gives my wife extreme anxiety. She's gonna try because if they can change it back, keeping her at the same place would be easiest routine-wise. But the other side is if we keep her on this new plan, it covers another place in town that does the same type of therapy but they also offer respite care and other services all inclusive that we have to go to outside agencies to get since this other place doesn't have those. So, all told, this might be better for all of us in the longer term. But the current place is getting her ready to return to traditional school. And if she goes to the new place, the easiest thing to do would be keep her in online school cuz, while from a therapy standpoint she is ready to go back to school, from a practical standpoint of socialization and what her individual needs are, she wouldn't do well. She's still struggling to do practically anything independently. There just never seems to be a moment for us to enjoy anything or catch a break... #Autism #OppositionalDefiantDisorder #Insurance #choices

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Starting a New Group for Insurance Denial Stories

I am starting a new group where we can share insurance denials and their effects on us and our loved ones. Too often the real impact of these denials goes unheard and unseen. Let's bring some light to this major issue plaguing many with a variety of health conditions! Share your story and let's build a group where we can share them together. #Insurance #Grief #PainMedication #AnkylosingSpondylitis #Asthma #Fibromyalgia #ChronicIllness #Depression #Anxiety #PTSD #CPTSD #MentalHealth

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Difficulties After #ECT #MentalHealth #amps #Grief #copingskills #Survivor

There’s a giant hole in mental healthcare. We all know that, there’s many. There are holes when you go for treatment but get no follow up care. When you need your meds but can’t get them for whatever reason, pharmacy/doctor miscommunication, #Insurance is always an issue.

I’m stuck.

I’m stuck in a hole but it’s not like the typical ones.

You don’t really know what’s going to happen when #ElectroconvulsiveTherapy is the option you’re given in the hospital. All you do know is that you aren’t able to keep yourself alive anymore without intervention. So if #ECT is the option, you have nothing else, you’ve tried everything else already. You go with it, you do what they say.

The hole I’m in is in regards to the aftercare for #ECT . I haven’t gotten any care specific to ECT or have been even able to talk about the ECT with professionals.

Every professional I talk to hasn’t dealt with people who have gone through ECT. They can’t answer any of my questions and they all give me the same look. The look of shock (ironic) that I actually was treated with ECT. The professionals also don’t have any referrals to other professionals who have dealt with ECT.

So when you notice changes, you can’t really talk about them. You say them out loud but it’s like talking into a void, no answers come back.

I can’t write the same as I used to. Writing became a coping skill only a year before I received my treatment.

It was easy. It all flowed right out of my mind, through my fingers, onto this app. It came together in my head really well before. I was beginning to love writing. I grew up thinking I was too stupid to write and have anyone care.

Then one of my stories got a good amount of peoples attentions. I was able to communicate with other people with similar stories. It felt amazing.

Now however, it is all different. It doesn’t flow like it did. I can’t think like I used to. The stories aren’t churning.

There are blanks now. I imagine just white in my brain. Before I could go through the stories and have images that helped.

It’s gone.

I’m relearning and I’m alone in it. I’m relearning and grasping at straws.

One thing I know for certain, is you don’t send an electrical current through someone’s brain causing seizures, and release them with no aftercare.

There are so many unanswered questions.

6 comments