Wednesday is so close. I'm so nervous. What if I forget something? What if she says I'm still not a candidate for the procedure? What if I AM a candidate for the procedure? What the what.
So many things running through my mind. I have to call my surgeon's office for their fax number so my neurologist office can send my MRI results to my strabismus surgeon.
Not gonna lie, I'm very nervous.
#strabismussurgery
1 reaction 
8 years ago my PCP suspected IIH. Said I had all the symptoms. So I had a spinal tap. It came back negative. Then we ruled out IIH and never had any answers as to the frequency and severity of my migraines.
On Friday last week my strabismus surgeon called me. I had left a message about eye pain during my migraine. I figured a nurse would call me...no, the surgeon called me back herself. She expressed big concerns about my exotropia causing my migraines and the possibility I might actually need the surgery. She said I had an appointment scheduled for July but this was very serious. So she found the earliest I can be seen is April 8th. So we scheduled the appointment.
This Monday I saw my headache specialist. I told her my strabismus surgeon wants to see me. She said she's glad except... Well it's just too coincidental you have all the symptoms of IIH still and well I'm just so concerned about it so I need you to have another ST. I'm waiting for central scheduling to call me to schedule stuff. I don't know how an ST will work with my hardware in my lumbar from the surgery. I guess I'm gonna find out.
My PCP is unreachable through email and on the portal. I can't call to talk to anyone. I need to talk to my previous PCP but he won't talk to me since I'm not paying for direct care. Which I might add is bullshit cuz on multiple occasions he told me he thinks of me as his friend and I was his favorite patient cuz I'm eccentric and interesting and interested in being proactive with my health.
Pauley has no idea how scared I am. I tried explaining to her but it kinda went whoosh over her head. I've been trying to reach out to people for connection but it's not working.
I'm also trying to keep myself distracted so I don't end up in a manic episode. My adjustment disorder is mostly under control. I think the increase of my imipramine is helping. We decreased my Zoloft last month. My psychiatrist wants me off Zoloft. He suspects it's causing my overheating and sweating. I know invega trinza causes sweating. It's not just a little bit either. It was in the 60s and sweat was pouring from my neck and forehead.
So I've got a lot going on. And I feel so alone.
#IdiopathicIntracranialHypertension
#exotropia #strabismussurgery #Migraine
17 reactions •
10 comments
Latest
