IIH for the past 20yrs
I don't talk about my illnesses alot bc it's taken the life I use to have. I lived a great life filled with adventure and ppl who loved me. Where are they now? Great question. My best friend of 25yrs is the only one who stayed. I'll do anything for her and her kids. IIH caused me to have a deep depression and I truly believe I had to go thru it to get a slap to wake me up. Sometimes you have to hit rock bottom to rise up again. After I came out of that I thanked God for bringing me thru. Then set my mind I was going to live better and started living a 180° difference from the way I had been. Yes I'm sick but what can moping around the house do to fix it? How can staying in the bed all day help me? No I don't want to get up and sometimes it tremendously hurts bc I have Fibromyalgia too. I'd rather stay in bed but I force myself to at least get up and wash my face, comb my hair and brush my teeth. Usually by then I feel like eating a little something. To look at me you'd never think I have a prob eating anything but I do. My MIL says I eat like a bird and sometimes I forget to eat at all. I forget everything and that's the most frustrating. Words. Things I just did. The atmospheric pressure gives me migraines. Ask yourself how often do you have a migraine close to a storm? Can you "predict" storms better than a weatherman? I can! 😂 I don't even watch the news and I know with 100% accuracy when a storm is coming. I've never been wrong once. What kind of storm is another thing bc I only know something is about to happen. See if you're the same way.
Off the subject are you taking Diamox? They give that to seizure patients! Ask why you are taking it? I'm not on Diamox after my Doc tried to kill me. Literally. He didn't do a simple blood test and if he had he would have known that Diamox was removing Potassium from my body. I was already taking Topamax since it was on the market for my spine. All they needed to do was increase the dosage and put me on potassium fluoride! My reg doc figured it out. My heart got down to 45 beats per min. Yeah dead. My feet were black with blood pooling in them. Don't let that happen to you! Question EVERYTHING a doc gives you and ask why until you understand it in English. Be well my friends and we will get through this together! *gentle hug*