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Today was a very rough day

My head has been hurting quite a lot since 9am when I woke up. I took 2 tramadol and 2 CBD gummies and an ubrelvy and within 2 hours the pain went from 9 to 6 and I was functional... For a little while.
Maybe ~3 hours.
Now it came back and it's in my right ear. There's also lots of discomfort in my eyes but it's a slow burn. My wife just gave me 2 tramadol and 2 CBD gummies and an ubrelvy just like earlier today.
I don't have much faith this is gonna help me feel better but I gotta try something. I'm running out of options. My headache specialist got me on ajovy but I'm still getting migraines almost daily. The more meds I try and fail, the more obvious the cause is my exotropia.
I'm so tired of constant pain in so many different parts of my body. I'm tired of finally getting relief from one thing and then the meds triggered some other bullshit.
Next week I have therapy on Monday, an appointment with my Endo on Wednesday, and follow-up with my pain specialist on Thursday. My pain specialist is such a good doctor. I'm gonna ask her when we can do another round of hip injections or possibly SI joint injections. This pain is too much to handle. I can't make Pauley understand how much I hurt but I know she's trying her best. I love that darling stupidhead more than words alone can say but I imagine interpretive dancing might help.
My teeth hurt on my left side.

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Tip Tuesday- The Truth Behind Venting

Oftentimes, we vent because we think it'll make us feel better. But have you ever stopped to notice how you actually feel after the vent session is over?
Now, this does not mean you shouldn't vent or share problems with a trusted person who can help you problem solve or listen. I just wanted to share a helpful tip I learned in therapy. Since I stopped "venting" as much, my emotional reactions are better and I'm not as upset as often. I hope it helps you today. 🙂
#Addiction #AddictionRecovery #AutonomicDysfunction #Agoraphobia #Anxiety #AnorexiaNervosa #BorderlinePersonalityDisorder #MentalHealth #BipolarDepression #BipolarDepression #BackPain #Blindness #CeliacDisease #ChronicFatigueSyndrome #Epilepsy #EatingDisorders #EhlersDanlosSyndrome #Endometriosis #FamilyAndFriends #Fibromyalgia #Gastroparesis #Grief #Headache #JointHypermobilitySyndrome #HearingLoss #HemiplegicMigraine #Insomnia #ADHD #BipolarDepression #BipolarDisorder #PTSD #Trauma

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Tomorrow

I've got my appointment with the doctor I've never met at 11something. We're getting picked up at 937am. The appointment is at my neurologist office, the same office as my headache specialist. I really like my doctors from this office.

My eyes really hurt right now. They burn and there's pressure from behind them. My strabismus surgeon appointment is on May 20th. I'm very anxious about it but I know it's gonna be a productive appointment.

I think my body got confused and thought illnesses are Pokemon and I'm supposed to collect them all.

#eyedisease #exotropia

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This week and weekend

Today I had my invega trinza injection at 11am. It didn't go well. Then at 3pm I had telehealth therapy. That went fine.
Then my next appointment is Thursday with a doctor I've never seen before. My headache specialist referred me. She didn't tell me anything about her.
Then on Friday I'm having a spinal nerve block with my favorite doctor. It's very painful but I am good at tolerating pain. My doctor is so nice. The nurses really like me and Pauley.
Saturday we're going to an art exhibit. We went last year and I was in so much pain after we were there for an hour. I'm hoping to be able to handle walking more cuz this time I have my rollater.
Then on Sunday...oh gosh I'm most excited. We're going to Canterbury village for the Silly Wonka chocolate tasting tour. It's basically a day of walking around the little shops and trying little morsels of chocolatey goodness. It's gonna be awesome!

(edited)
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I'm new here!

Hi, my name is Loui_Lai. I'm here because all day I feel anxious and I've had pain and fatigue for over 15 years with tension headache and mental exhaustion. I feel on edge where I live and I constantly seek something to make my body & soul feel happy and content and free but it never does. The older I get the harder I am finding it and I absorb so much that I get overwhelmed and either sad, moody or angry or over-excited, I can't ever feel balanced.

#MightyTogether #Anxiety #Depression #BorderlinePersonalityDisorder #ADHD

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I'm so tired of being disabled

I hurt. I'm tired of hurting. My skull is pounding. My eyes feel like they're being pushed out. My spine hurts from thoracic to lumbar. My right hip is shooting pain down my legs.
There are so many things I want to do. I want to go to GoB to get a first edition of Saga. But I also want to get some munchkin playing cards. It's one of my favorite games.
I need to take Pauley to the thrift shop for pants and shirts. I'm told I have good taste in clothes for women. As long as it's either Goth or witchy pagan.
2 years ago I got a very expensive necklace for Pauley and another one for my friend who literally saved my life. The other friend I got a necklace for up and moved to California and didn't say bye and that really hurt my feelings.
It's far too warm 🥵 in my apartment. We opened the window but it isn't helping. I'm sitting here in a puddle of sweat.
Early morning I had an asthma attack. I had to use my rescue inhaler. I could hear my pulse in my ears but I could feel it on my tummy. I'm also having really strange muscle spasms on my tummy and on my left eyelid.
I had therapy today at 3pm. We talked about some of the big things going on with my health and he was very gentle yet concerned. He knows how my adjustment disorder tends to be when this stuff happens. I told him my headache specialist suspects idiopathic intracranial hypertension IIH and he said it's familiar cuz 8 years ago my PCP suspected IIH. So we talked about how I have to go get a spinal tap. I'm waiting for a call from the headache specialist office.
That's a small update.
#IdiopathicIntracranialHypertension

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