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What is POTS?

Postural Orthostatic Tachycardia Syndrome (POTS) is a sustained increase in heart rate of at least 30 BPM (40 BPM for 12 to 19-year-olds) within 10 minutes of standing.⁠

⁠Symptoms may include:⁠

Lightheadedness⁠

Tachycardia⁠

Presyncope⁠

Shortness of breath⁠

Palpitations⁠

Chest pain⁠

Low blood pressure⁠

Syncope

GI issues⁠

Headache

Brain fog⁠

Fatigue⁠

Blurred vision⁠

Dry eyes and mouth⁠

Muscle pain and weakness⁠

Cold hands and feet⁠

Skin flushing⁠

Frequent urination⁠

+ more⁠

#POTS #AutonomicDysfunction #Dysautonomia

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I'm new here!

Hi, my name is LisaBoo. I'm here because I am struggling with juggling the symptoms I present... Even trying to compose this post is making my brain hurt. Not a headache, but my thoughts feel prickly. I just came across this site and thought, It couldn't hurt to sign up. Maybe sharing and commenting with others of like minds will be a healthy way to learn to live with my issues instead of focusing on the pain.

#MightyTogether #Anxiety #Depression #Fibromyalgia #PTSD

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Migraine meds

#Migraine #Headache so it turns out my "doctor" (nurse practitioner) prescribed me a children's dose of my migraine medication and the one the ER put me on was making things worse.
Now I have to go off of all my migraine meds for a week as well as over the counter meds for pain (and I have chronic pain). I'm just frustrated with how bad my primary "doctor" is. A child's dose? I'm 45. At least my neurologist seems to know what she's doing.

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⛈️ Rain, rain go away

The weather changed last weekend. I got a little colder and we got some rain. And boy was I in pain. My ankles, my knees, especially my hips, and random joints throughout my body ache sporadically. I was constantly shuffling and moving around in my seat. I had to wear sunglasses inside someplace on Sunday. It was too bright and I was getting a headache and I was getting nauseous. I was so tired.
I usually get headaches, but not really migraines. But I think that might’ve been what I’ve been getting this past week or two. I get a crazy headache, I’ll get nauseous, and sometimes sensitive to light. Especially, when I’m exhausted. Last week I was gagging while lying in bed trying to go to sleep because I was too tired, and that gave me my headache and nausea.
I’ve been doing slightly better this past month or two, give or take some days. But this change in weather really messed me up.😣
#Fibromyalgia

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Feeling broken? Only seeing your flaws? Sometimes those things we feel are flaws are actually what makes us unique, special and extraordinary!

I can get caught in that awful loop of beating myself up, only seeing my flaws, only recognizing things I haven’t done instead of giving myself credit for things I have done, getting stuck in self judgment, only seeming to hear my inner critic’s voice, I can lose all my self confidence, let my self esteem dip and things can look pretty bleak.

Over time more and more I have been able to catch this in the moment, pause, breathe, re-set, and then be gentle with myself and allow myself to shift my energy. I can then take first steps towards better self care…and reverse that repetitive loop, replace it with self respect and start to believe in myself! One situation at a time, I’m getting better … and every time I succeed it can get a little easier the next time. I can see that I have grown along my path and although it can be very hard for me to accept, there is unique beauty to the journey I have been on. I am not broken - I am strong - I have been accepting my flaws and see that as I have picked myself up over and over I have filled myself with gold!

~~~~~~~~~~~~~~~~~~~~~~~~~~

I find doing a gratitude list can help. A while back it was recommended I process a gratitude list every morning. I like to think of my blessings: roof over my head and food on the table; a car that runs and being able to afford insurance & gas for it; MY HEALTH…here I go through all my 5 senses thankful they all work, touch and feel my legs that didn’t at one point and give thanks that parts of me are healing but by bit ! I give thanks for my whole support network: great doctors & health providers, my friends, and my family!!! I find after doing this I start off the day feeling much better about myself!

What is on your gratitude list?

#MentalHealth #Depression #Anxiety #SocialAnxiety #Disability #ChronicPain #ChronicIllness #Selflove #Selfcare #BipolarDisorder #BipolarDepression #COVID19 #Parkinsonism #Concussion #BrainInjury #Migraine #Headache #BackPain #neckpain #PhysicalTherapy #HIVAIDS #PTSD #Stigma #PeripheralNeuropathy #Addiction #AddictionRecovery #IfYouFeelHopeless #Hope #CheckInWithMe #InsideTheMighty #MightyTogether #DistractMe

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I’m just tired of having a #Headache / #Migraine for 5 years

I had a #Stroke 5 years ago and when I woke up from my coma I had a #Migraine and I had it ever since. I’m just #tired of it.

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Bed-lysta

Last week I slept more than I have in years. Part of me enjoyed the sleep, because I have diagnosed insomnia and the other part of me was frustrated. The problem was that despite taking naps multiple times “last week” I still was sleeping 9-10 every night. Thankfully I work in the evenings, but this also cut time for me doing school work and other fun activities. The only thing I can think of was that this is either my reaction to Benlysta which in the past only lasted a day OR the fact that I had leakage with last weeks injection. It also made me think, was I always this tired prior to Benlysta and now Bed-lysta is allowing me to sleep? My insomnia is related to my kidneys/lupus, but I honestly don’t know.

Nevertheless, today is my rest day, because I took Benlysta last night. This morning I woke up way early and I didn’t even nap yesterday. I’ll probably take a nap today though. I slept maybe 6 hours? So far, knock on wood, this is the first time after an injection I am not feeling nauseated, overly sleepy, and don’t have a headache. There’s of course many hours left in the day so time will tell.
Side note: My blood pressure is no longer MY normal, but textbook normal; I also lost 1 pound.
Happy Friday all!
#Lupus #LupusNephritis

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Exhausted #ChronicFatigue #Fibromyalgia #longcovid

I feel like I've got the symptoms of pain under control lately, but the symptom of exhaustion today has me scared. Since Friday I have felt a flare up coming on, but today the exhaution is bad! I'm an elementary teacher and I'm normally getting myself and my team already for the week. But I'm so tired, I have a headache trying to stay awake and focus. My CBT therapist thinks I should apply for Disability, but I have friend who works for the state and says I would never qualify for it. If it is such a weekly, daily struggle for me to do my job, that I can barely care for myself, and never care for my family or house, and my quality of life is so lousy, when is enough enough. How bad does my mental and physical health have to suffer for an agency, or doctors to decide if someone is disabled enough? Do I have to totally have to quit my job? Be fired because I can't do it to the standards that the district dictates? I feel like I'm either in so much pain (that was previous), exhausted so I'm testy, so brain-fogged that I can't teach a lesson to the caliber I used to or have a decent convo with a parent. My therapist's mom was also a teacher with medical issues and she qualified. She thinks I sound like I'm in the same stages as her mother.
I'm not sure I want to do try to apply for full disability, but instead temporary disability, like 12 weeks, so I can get to feeling better. But I just had an appointment with my GP and she said the journey of feeling better or normal with FM is a long one. How long do I or can I endure? This weekend has been a bit scary because I've had no energy for anything, and now of the eve of a new week I'm concerned with my level of exhaustion.

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I enjoy watching sports, which can be a distraction from my health challenges. Are there sports, shows you binge watch, or movies that help you too?

Being passionate about sports is a trait my Dad passed on and instilled in me from an early age, and watching and talking about them together was a very bonding experience we had that built over the years. When I was young I was very blessed and had the opportunity to attend a lot of games with him live: football & basketball, some baseball & hockey games, and we even went to Indianapolis for the Indy 500 races twice. His father had taken him to the big race a few times too and to many other games when he was a child, which I think had the same impact on him!

I was never a good athlete, but under his tutelage I became very interested in drama and intrigue with sports and began to understand, appreciate and enjoy all the nuances of the games: teams - their players & coaches, stats, and strengths & weaknesses; types of plays; strategies; the history of the sports; … and I adapted Dad’s favorite teams & players and we followed them very passionately, intently and took the games very seriously. To this day I can get depressed after a game my team loses, and as a kid I’d pout and be in a really bad mood, often for days.

We watched games and followed our teams, not just the games, but almost every day, as we even fought for who got the Sports page first! His excitement, curiosity and dedication were contagious.

As I got older and I moved away to other places I made the “pilgrimage” up to two hours every Sunday to watch football with Dad & on Memorial Weekend went to watch the Indy 500 with him almost every year. We didn’t even miss a minute of games, with Mom being part host, part cook & part waitress … bringing us big homemade deli sandwiches, her legendary guacamole, and yummy desserts she baked. Then during commercials sometimes we would both sprint to different bathrooms for a break, rushing so as not to miss a second of the games!

However, I recently realized I have actually tried to avoid watching big games there since he passed away. I just admitted to myself that over 3 years after he died it still can be emotional watching games in the room where we watched events together. It can be a sad & empty feeling🥲 The first games I watched without him there soon after he died were some of the few things that triggered me to cry when I wasn't processing things well yet. When I sat there in my familiar chair and our team scored I would turn to high five him and saw the empty chair he always sat on next to me and suddenly deeply felt his absence… It was one of the first ways I truly realized he wouldn’t be there to share experiences with me (physically) anymore. It hit me hard. The first time I watched a game without him I completely broke down in tears which was the strongest emotion I had experienced since he died to that point.

I realized that sharing sports with him was so much more than the games, it was something we shared together in almost a ritual format for decades, and looking back I remember how much I always looked forward to being with him for each coming game. So I still am deeply invested and tuned into sporting events and that focus can help me to take a break from pain, depression, anxiety, fear & worry. It’s all I think about for that 2 ½-3 hours, sometimes longer.

🏀🏈⚾️⚽️🏒⚽️⚾️🏈🏀

Do any of you take comfort, find refuge, a healthy escape and/or a distraction in watching sports? Or are there other things you enjoy watching like binging episodes of your favorite show? Or watching a movie trilogy over and over? Or watching thrillers that keep you on the edge of your seat, or action or drama movies that take your complete focus like tunnel vision? Or do you enjoy watching nature, animal or history channels? Was sharing them with family a part of your childhood?

What engrosses & entertains you the most? How do these affect your energy and emotions when you watch them? Do you find it a much needed window away from thinking about your health challenges like I do?

#MentalHealth #Depression #Anxiety #SocialAnxiety #LossOfAParent #Grief #Disability #ChronicPain #ChronicIllness #Selfcare #BipolarDisorder #COVID19 #Migraine #Headache #HIVAIDS #PTSD #Stigma #BrainInjury #Concussion #BackPain #neckpain #Addiction #AddictionRecovery #IfYouFeelHopeless #Hope #CheckInWithMe #InsideTheMighty #MightyTogether #DistractMe


@texassonrisa
@sparklywartanks

(edited)
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Look around your space and list five things that help you daily.

It’s a list type of day, Mighties! 📋

Make a list of ✋ things in your space that help you on a daily basis.

Here is Mighty staffer @xokat list:

Phone📱

Laptop 💻

Post-it notes 🗒️

Water bottle 🚰

Headache ice hat 🧊

#52SmallThings #CheckInWithMe #MentalHealth #Anxiety #Depression #ChronicPain #ChronicIllness #RareDisease #Disability #selfcare #Caregiving #Spoonie

(edited)
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