Join the Conversation on
47 people
0 stories
5 posts
Explore Our Newsletters
What's New in
See full photo

Life Hacks

Please share anything you guys have come up with too, to save us from reinventing the wheel 😅 You never know how much your idea will help a fellow spoonie...

That being said, the red thing is something I get from my OT to help grab things or hold things. The cheaper alternative is rubber shelf-liner. It can keep dishes and cutting boards from moving around, and help grip bottles when trying to take lids off.

#Spoonie #Lifehacks #Accessibility #adaptive

17 reactions 7 comments
See full photo

Life Hacks

Hairbands or rubberbands are a dignity-saver for days when I can't hold onto silverware, or the silverware is too thin for me to hold. This is particularly useful when going out to eat to avoid making a tremendous mess trying to hold onto a utensil and keep food on it. #Spoonie #Lifehacks #Accessibility #adaptive

19 reactions 2 comments
See full photo

Life Hacks

I lack fine motor control so holding onto stylus, pencils & pens. My son cut ¾-inch PVC into ⅝-inch pieces. I take 2 pieces and loop a hairband, or a thick rubber-band, and loop the PVC pieces around the stylus. #Spoonie #Lifehacks  #Accessibility #adaptive

12 reactions 4 comments
See full photo

Life Hacks

Travel and life hacks to make life better: anything from purses, backpacks, and luggage to items that make the journey easier. My most challenging disability is that my hands and wrists don't work. One of my favorite hacks is to use 1-inch binder rings as zipper pulls. What else have you found that helps you?#Spoonie #Lifehacks #adaptive #accessibilty

See all comments

Share this post

19 reactions 3 comments
See full photo

Down Syndrome Clothing

There are lines of clothing that have been developed by and/or for individuals with Down syndrome.

We have struggled in a few areas with AJ when trying to find clothes as well. Pants are often too long, while shirts are too short. All of those cute two piece outfits that come together? Forget it - his top and bottom are definitely not the same size.

In part this is due to his shorter stature, which is common in people with Down syndrome. It’s also due to his low muscle tone. The lower muscle tone results in his belly sticking out further, as the muscles in the abdominal wall relax more than most people’s do.

NBZ apparel is a clothing brand that was developed by the grandmother of a child with Down syndrome. They feature pants that have shorter legs, lower fronts that read below the belly, and higher backs.

Add to this that fine motor skills can be difficult for people with Down syndrome. Things like doing buttons can be incredibly challenging.

There are a number of brands who have been adding adaptive designs to their clothing lines. Lands End and Tommy Hilfiger have adaptive lines that use magnets beneath buttons, so clothing has the appearance of being buttoned but is much easier to get on and off.


#DownSyndrome #trisomy21 #downsyndromeawareness #SpecialNeeds #adaptive #AdaptiveClothing