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    Community Voices

    Mac’s Guide to AMC

    Today is June 30, which for people like myself is a very special semi-holiday known as AMC Awareness Day! But you knew that, right? Of course you knew that today people across the world are posting pictures of themselves in blue to show support for my disability, right?
    Okay, I’m being sarcastic. There are indeed many people wearing blue today, some for AMC, but I know there’s a lot more who have no idea what I’m talking about. And that’s perfectly okay! It’s impossible to know about every disability and how to best show your support. But as someone with AMC, I can’t help but try to let as many more people as possible know what it is. So prepare yourself, reader, to become a more educated person!
    AMC stands for Arthrogryposis Multiplex Congenita, which essentially means “born with curved joints” in Greek. So that part is pretty self explanatory. But because AMC isn’t really diagnosis in itself, it’s more like a group of symptoms that can be caused by something else, there are a lot of different types of Arthrogryposis. The type I have, Amyoplasia, is most common with about one in 10,000 live births. For any type of AMC, it’s about one in 3,000 live births.
    Since Amyoplasia is a condition I’ve lived with all my life, I’m going to focus on that for this article. I’d really hate to give out any misinformation about another type, and sometimes no amount of internet research can keep that from happening. So with the basic idea of Arthrogryposis in your head, here’s a few facts about Amyoplasia that I feel are important:
    1. Amyoplasia isn’t genetic. It’s caused by a lack of movement in the womb, which in itself can have a lot of different causes.
    2. Curved joints aren’t all. Underdeveloped muscles, club feet, limited range of motion, soft skin, fused or stiff joints, and thin bones are some of the other symptoms.
    3. I have AMC in all four limbs, but that’s not the case for everyone. Sometimes only one or two limbs have all of their joints affected, while the others are normal or have less severe contractures. It all depends.
    4. Amyoplasia isn’t really something that can be cured, but it can be treated. Splints, physical and occupational therapy, assistive technology and sometimes surgery can make a world of difference in what people with Amyoplasia can do.
    5. Everyone is different. Because it can have so many causes, and affects different joints and limbs to different degrees, no two cases of Amyoplasia will look exactly the same. This is why it’s important to remember that none of us are experts just because we have this condition, and so we can’t speak for the whole Arthrogryposis (or even Amyoplasia) community. Myself included.
    So that’s it for today! I hope my guide wasn’t super boring, and thanks so much for reading! Thanks also to anyone wearing blue for us today, or who took the ArthroPIEposis challenge this month! I’ll post my picture later today. #ArthrogryposisMultiplexCongenita #Arthrogryposis #Disability #Selflove #CheerMeOn #DisabilityAdvocacy #MyCondition #AMC

    'To the Bone' Director Starts New TV Show 'Dietland' About Self-Image

    Marti Noxon, the director of Netflix’s “To the Bone” is directing, writing and producing a new show called “Dietland.” The show spotlights the body image issues of a woman who believes she must lose weight to be respected in her career. The new “dark” comedy focuses on Plum Kettle, played by Joy Nash, who works as a ghostwriter at a popular fashion magazine. She writes the advice column for the magazine’s editor, Kitty Montgomery. In the show’s trailer, Kettle is ridiculed by her editor, played by Julianna Margulies, and feels like an outcast because of her weight. The comedy is about a “self-awakening” and also focuses on the news of men accused of sexual assault who end up dead, according to AMC’s website. Noxon’s past work also includes depictions of eating disorders and body image issues. “To the Bone,” her first film which came out in 2017, is loosely based on her experience with eating disorders. The movie was met with acclaim and criticism within the eating disorder community. One member of The Mighty’s mental health community, Natasha McDonough, wrote that “To the Bone” was hard to watch because of its realistic depiction of eating disorders. “The movie handles the topic better than it was excepted to,” McDonough wrote. “It showed the impact of the disorder rather than just superficial aspects of the disorder. It portrays the disorder so well, that I never want my family to see it because it is anxiety -inducing for me to imagine them seeing even just a piece of what goes on in my head.” Others criticized the film for a lack of diversity and a stereotypical portrayal of anorexia. Lily Collins, who is open about her experience living with an eating disorder, also lost weight for the role, which many found problematic. With a murder mystery and conspiracy thrown in, “Dietland” focuses on “female anger and violence in raw and sometimes startling ways,” according to a review in The New York Times. Nash’s body will not be used as a punch line but rather in ways that make the audience see her fully and sometimes provocatively. “Dietland” argues that if women really want love and safety, it’s the world they’ll need to change, not their bodies,” Alexis Soloski wrote for The New York Times. “Dietland” is based on the novel by Sarai Walker of the same name. The show’s two-hour premiere will air at 9 p.m. ET June 4 on AMC.