I’m back ! #MightyTogether
Hey Mighy Fam ! Long time no type ( litterally!). A mixture of my #CVID #UCTD . And apparently undiagnosable lung disease has ROYALLY Knocked me on my butt .
I was hospitalized about 2 weeks ago due to a lung infection and lung flare and it still feels like my body is MAJORLY recovering ❤️🩹 .
I’m also trying to figure out ALOT of things with my medical team
Right now . The belief is that the scaring / cyst in my lungs are caused by an infectious or inflammatory process . But of course no doctors are agreeing .
And it’s just a big pile of #Ugh !
#RareDisease life am I right ?! Ive honestly been struggling with a bit of #Depression . Not in a chronic sense . But in a “ man my situation REALLY sucks sense .” So I’m
Just doing all I can to keep my head above water
Today was one of my most productive days in a while !
I washed the dog , played my Uke and sang for the first time in weeks ( even though breathing has been so hard. My oxygen needs have been a bit more . And well I’m
Crappy at wearing my #Oxygen .. so I’m my own worst enemy in that department 😅)
And I just submitted a new article to the mighty about #CVID #PrimaryImmunodeficiency So 🤞🏻🤞🏻 it will be published and you all
Will read it soon!
So today definitely a #babystep
And I have an appointment with my councilor tomorrow to continue to work to get in a better headspace
But I have a goal to be more active on here ! I have missed you all !! ❤️❤️❤️. #StrongerTogether