Bladder Cancer

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I'm new here!

I am living with stage IV metastatic bladder cancer. I am back in remission but still in treatment and we're not sure when we can stop. This is my second time in remission. I decided to write a book of poetry about my journey. The book is called: Still Here: Fragments of Life in Cancer and Bloom. Here is a description and a link: Still Here is a poetic journey through cancer, love, and resilience. Written by Akiva Turner—anthropologist, lawyer, public health professional, and Chair and Professor of Health Science at Nova Southeastern University—this collection bears witness to the griefs, grit, and unexpected grace that surface in the face of illness. Turner was diagnosed with muscle-invasive bladder cancer in 2020, as the world was reeling from the COVID-19 pandemic. Misdiagnosed for months, then thrust into surgery and grueling treatment, he learned that his cancer had already spread to the lymph nodes. After years of remission, the disease returned as Stage IV metastatic bladder cancer. Today, he writes while living in fragile balance: in treatment, but also in remission—“no evidence of disease.” These poems trace that odyssey, weaving moments of pain with flashes of humor, tenderness, and defiance. At their heart is a love story: Turner’s life with Avi, his partner of more than thirty years, as they face illness together. Still Here is both deeply personal and universally human—a testament to endurance, vulnerability, and the power of hope. a.co/d/1aFi10W

#MightyTogether #Cancer

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Suicidal Ideations

I hate depression. Been so low since Saturday. Been missing work (thank God for FMLA).
I'm in a sexless marriage, where divorce is not an option.
2nd marriage for both of us.
It's a sexless marriage through no fault... my husband was diagnosed and beat stage 2 bladder cancer a few years ago. Has a permanent urostomy bag and 2 parastomal hernias.
The only thing he needs me for is to change his urostomy bag two times a week.
I never got over my first husband who cheated on me.
My self esteem basically doesn't exist.
My husband and I talked about splitting up yesterday evening.
I live in a very cluttered home. I'm just so burnt out from carrying all this stuff around 24/7.
I know this post is all over the place. I have a counseling appointment tomorrow afternoon. Any encouragement would be helpful.

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Another beautiful weekend coming up! Go into it knowing to never be afraid to walk away, to start over. Life is a rather difficult journey where it is likely to make a few mistakes along the way. Be observant and decisive. You know this. Have fun. #BladderCancer #Motivation #Positivity

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Cystoscopy #BladderCancer #nmibc

Another scope on Monday. I've had cancer coming up on 2 years and it's still a bummer. Guess I'm used to it all, but there is still a sense of disappointment that I remain in this game. I'm honestly quite sick of it. It gave me all this positive energy, taught me how to live life again. Keeps me eating right and going to the gym. Ive traveled and spread the message, built this social media space, made a ton of new friends. Lately I'm just exhausted. It's been a long year. I've lived and breathed this cancer culture hard-core for about 8 months now. I'll never be finished. I'm happy to make a difference.

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I’m new here!

Hi, my name is bogoaz5.

I’m in the early stages of fighting T1 high grade non-muscle invasive bladder cancer. Just putting the feelers out for like minded individuals

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My friends from Natera, and Brutus from The Ohio State University paid us a visit!

From the BCAN Columbus Walk 2025. #BladderCancer #Cancers

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Hey!

I'm Danny, that's my wife Stephanie. I'm 49 and live in Dayton, Ohio. I was diagnosed with Intermediate risk non muscle invasive bladder cancer in 2023 and it changed my life. "Cancer is a great motivator" became my slogan, and I proceeded to totally change my life. My wife an I have lost over 200 pounds together, and are totally different people mentally and physically than we have ever been. We reignited our 28 year marriage and are living life approaching age 50. I changed my career, I am currently a professional cancer advocate/influencer and social media content creator on the subject. I collaborate closely with organizations such as BCAN, The Bladder Cancer Advocacy Network, regarding patient and caregiver relations, education, and the spreading of relevant and useful information about cancer. I regularly organize community and maintain social networking groups across the web. I took the potential karmic energy of cancer and chose to make it positive! Please feel free to message me anytime for anything! #BladderCancer #Cancers

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Columbus BCAN walk to end bladder cancer 2025.

I'm a volunteer for BCAN and filmed this year. Had an amazing time spreading awareness!