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The Bladder Cancer Advocacy Network - BCAN
The first place the bladder cancer community should go. www.bcan.org
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My friends from Natera, and Brutus from The Ohio State University paid us a visit!
From the BCAN Columbus Walk 2025. #BladderCancer #Cancers
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Hey!
I'm Danny, that's my wife Stephanie. I'm 49 and live in Dayton, Ohio. I was diagnosed with Intermediate risk non muscle invasive bladder cancer in 2023 and it changed my life. "Cancer is a great motivator" became my slogan, and I proceeded to totally change my life. My wife an I have lost over 200 pounds together, and are totally different people mentally and physically than we have ever been. We reignited our 28 year marriage and are living life approaching age 50. I changed my career, I am currently a professional cancer advocate/influencer and social media content creator on the subject. I collaborate closely with organizations such as BCAN, The Bladder Cancer Advocacy Network, regarding patient and caregiver relations, education, and the spreading of relevant and useful information about cancer. I regularly organize community and maintain social networking groups across the web. I took the potential karmic energy of cancer and chose to make it positive! Please feel free to message me anytime for anything! #BladderCancer #Cancers
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Columbus BCAN walk to end bladder cancer 2025.
I'm a volunteer for BCAN and filmed this year. Had an amazing time spreading awareness!
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Coming out of days of depression #MentalHealth #Depression
Ok Mighty Warriors
It's been awhile since I've posted and I'm looking for some encouragement.
Last week I stayed home from work on W, Th, and Fri because I just couldn't handle life.
The last two months have been pretty stressful.
My husband survived stage 2 bladder cancer about 3 years ago (he's cancer free now) but part of his survival plan was to remove his bladder, prostate and lymph nodes. And about a year ago he developed a parastomal hernia (hernia of the intestines near his stoma).
Anyway, he spent 4 days in the hospital (2 days in the ER) to correct a bowel obstruction. That was March 5-9, 2025.
I had a panic attack at work in March. Which led to me going to my psychiatrist and applying for FMLA coverage. Which I was approved for.
Since being approved for FMLA I seem to have missed more work than I've wanted to.
I feel like my body has been stressed for so long and now that my job isn't in jeopardy (first time I've been approved for FMLA for my mental health struggles) my body is forcing me to relax.
But the problem is I need to go back to work next week.
I can't just drop all the responsibilities that I have, even though sometimes I want to.
So, there's my health struggles (Generalized Anxiety Disorder/ Depression, oh, and Type 2 Diabetes which is not well controlled), my husband's health struggles, and we're down to one vehicle. My car is in the shop bc the transmission needs fixing; and we all know that's not going to be a low cost repair.
So, next week my husband works the 5:00 am till 1:00 pm shift. I know exactly why I started staying home this past Wednesday. It was the first day of the 5:00 am till 1:00 pm shift.
Prior to being on this very early shift, he was on a 10:00 am till 6:00 pm shift and he was home while I was getting ready to go to work.
Whenever he doesn't have to go into work early, he helps me get ready to go out the door. But when he's not here, the task of getting ready for work by myself seems huge to me.
But, next week he works the early shift all week.
Ideas that I've had
Get things ready the night before
Get up when my husband gets up
Get ready for work at the same time my husband does
Go to a Cafe and get some breakfast for myself until it's time to go to work. I'm thinking like IHOP or something, as I don't want to spend a ton of money.
Well, if you've made it all the way to here, thank you!
Any other ideas, so I can have a successful week next week?
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Jitters and mild depression.
Hi! I have a trip coming up, and the day after I get back I start my 2nd year of maintenance BCG immunotherapy. I have intermediate grade non muscle bladder cancer since 2023. I'm feeling better each time, but a few weeks before therapy I get stopped in my tracks. I get depressed and feel like I'm out of the human group again, like I have cancer all over again. Thing is each scope I get, the odds are high i will get high risk bladder cancer, and lose my bladder and prostate, walk around with a bag the rest of my life maybe. Thanks for being here everyone. U give me strength to get thru the low points. Still moving forward!
#bladdercancer #nmibc
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I’m new here!
Hi, my name is Danny. In September 2023 I was diagnosed with intermediate grade NMIBC. TURBT surgery, Ta grade papillary tumor. I'm currently starting my 2nd year of BCG immunotherapy, and I am currently NED.
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Not a fan of this time of year. Tons of reminders of how much I feel out of place around everyone. Long story-short, haven't talked with my mother in almost 3+ years, not even when my only dog/companion passed away (crickets). Fast forward to this Thanksgiving where she sends a text that she has bladder cancer, wen to the doctors an had surgery (I guess everything is ok now), then nothing until yesterday (day after xmas) I get another text that my Uncle (her brother) passed away, but that was it. SO i replied 'thanks for letting me know, sorry for your loss'.
So even though i was notified, it was cold. no emotion, no merry xmas or holiday, haven't heard from you in a while check-in, have some bad news, or anything.
I know it was her brother and they didn't have the best of relationships either and she is grieving but, am I wrong to think/feel like it was more obligatory than caring that she told me? Nothing from my own sister either regarding the holiday or our Uncle's passing.
Just makes me feel even more like an outsider in my own 'family'. Not to mention there are now a total of 7 anniversaries of deaths and a few other not-so-pleasant memory/milestones and the shortened days.
Really not a fan of this time of year
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Mother was diagnosed
#Depression #Anxiety #BladderCancer
Just found out my mother was diagnosed with Bladder Cancer. We havent communicated in over 3 years (another story another time).
But she dropped this on me suddenly and I am not sure how to respond. I am still very upset and hurt from her ghosting me for the past 3 years.
I wasn't going to respond at all. After a week had passed and I was in my therapy session, talked with the therapist and decided to respond ""what's up", "can't talk" and "prognosis".
she had surgery Friday with chemo but doesn't know anything else.
On one hand, i am stunned like anyone would, but I have this other issue with her that hasn't been resolved regarding her lack of communication. In a nutshell, I've been the blacksheep of the family and she was not there when I needed her the most, and she knew about it and still nothing from her for 3 years. and this has been the only communication since.
How am i supposed to react or say to someone that doesn't return the support?
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Need some love for my family
I could really use prayers, good vibes, etc for my family. I have an uncle and cousin with prostate cancer, an aunt recovering from bladder cancer while her husband is in the beginning stages of dimensia, another aunt with heart problems and her oldest daughter has breast and multiple locations of bone cancer and possibly liver and gall bladder too. This cousin has 2 kids, one just graduated HS and the other is, i think. A senior. Not to mention several people in the family with autoimmune diseases as well. Every bit of love given would be greatly appreciated. #Cancers
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