CHARGE Syndrome

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CHARGE Syndrome
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    alyssadavischargesyndrome

    hello my name Alyssa 33 year old from Vero beach Florida born with #ChargeSyndrome and back in 1987 when i born i couldn’t breathing my doctor couldn’t figuring out why i turn blue realizing my nose i could not breathing out of my nose could not drink milk at all i was mouth with tube in my mouth down my throat tell year later 1988 i start drinking milk in baby bottle got better and tell in 1992 i was 6 year old has my kidney 1 surgery and 1993 at 7 has my nose surgery few time and 1994 at 9 has my ear surgery and tell 1998 has 15 surgery when i was little kids no more surgery ever since I’m very healthy and i have speech impediment was very hard hardly anyone understanding me even taking time to understanding me better now got better as i got older and some #HearingLoss in one my ear and i wearing glasses one of my eye are far sight and near sight and I’m very active always like entertaining do something all the time and I’m only one in Florida has #ChargeSyndrome and i always want to have friend from Florida with #ChargeSyndrome ???? and I’m very nice fun caring kindness thoughtful very friendly outgoing that just me down earth truthful and m very strong never give up nothing can not hold me back I’m proud be different no matter what ????

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    story about me :)

    hello my name Alyssa 33 year old from Vero beach Florida born with #ChargeSyndrome and back in 1987 when i born i couldn’t breathing my doctor couldn’t figuring out why i turn blue realizing my nose i could not breathing out of my nose could not drink milk at all i was mouth with tube in my mouth down my throat tell year later 1988 i start drinking milk in baby bottle got better and tell in 1992 i was 6 year old has my kidney 1 surgery and 1993 at 7 has my nose surgery few time and 1994 at 9 has my ear surgery and tell 1998 has 15 surgery when i was little kids no more surgery ever since I’m very healthy and i have speech impediment was very hard hardly anyone understanding me even taking time to understanding me better now got better as i got older and some #HearingLoss in one my ear and i wearing glasses one of my eye are far sight and near sight and I’m very active always like entertaining do something all the time and I’m only one in Florida has #ChargeSyndrome and i always want to have friend from Florida with #ChargeSyndrome ???? and I’m very nice fun caring kindness thoughtful very friendly outgoing that just me down earth truthful and m very strong never give up nothing can not hold me back I’m proud be different no matter what ????

    Community Voices
    Community Voices

    sharing my story charge syndrome

    hello my name Alyssa 33 year old from Vero beach Florida born with charge syndrome and back in 1987 when i born i couldn’t breathing my doctor couldn’t figuring out why i turn blue realizing my nose i could not breathing out of my nose could not drink milk at all i was mouth with tube in my mouth down my throat tell year later 1988 i start drinking milk in baby bottle got better and tell in 1992 i was 6 year old has my kidney 1 surgery and 1993 at 7 has my nose surgery few time and 1994 at 9 has my ear surgery and tell 1998 has 15 surgery when i was little kids no more surgery ever since I’m very healthy and i have speech impediment was very hard hardly anyone understanding me even taking time to understanding me better now got better as i got older and some hearing loss in one my ear and i wearing glasses one of my eye are far sight and near sight and I’m very active always like entertaining do something all the time and I’m only one in Florida has charge syndrome and i always want to have friend from Florida with charge syndrome ???? and I’m very nice fun caring kindness thoughtful very friendly outgoing that just me down earth truthful and m very strong never give up nothing can not hold me back I’m proud be different no matter what 🙂

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