curesanfilippo

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Choose Resilience

Saturday, I had a long, sleep deprived, tear filled argument with God about where I am at, right here in this moment.

Despite all of life’s imperfections, I have everything I could ever want. I have an unconditionally loving husband, a happy marriage and two beautiful girls. My heart has always longed for a stable, joy filled marriage, children to love in the midst of it all, security in myself and the ability to find compassion over judgement.

So, WHY does my dream have to shatter with a fatal diagnosis for the child I was lucky to be able to have?

I’m sure He was standing up there thinking, “She’s not going to stop yelling at me today, but I’m listening.”

This morning while the girls were still asleep my heart settled to all of those enraged feelings on Saturday and I’m so thankful that His love never fails, because without His love, I wouldn’t be remotely close to where I am today - even with the heart break we are currently facing.

This version of me wasn’t built over night. Who I am today, is standing on a mountain that formed from earthquakes in my life revolving around experiences, insecurities, pain, abuse, anxiety, depression, health issues and mistakes of all kinds. I had to go through so much to get to the level that I am on now.

Now, I am kind. I am okay with being imperfect. I am compassionate. I try my best not to judge another. I can admit to my wrongs. I am a lover but a fighter when need be. I can hold my ground with grace instead of pride. I value time over materials. I find happiness in the simple things. I forgive easily. I embrace the smallest moments that most take for granted. I am open about my anxiety and depression, but never use it as an excuse. I am blunt, honest, and realistic - and I am okay without the approval of others. I find money to be necessary but also the root of all evil. I strive to be a better version of me, every day. I am an imperfect yet powerful mama (patting myself on the back). I will give my all to move mountains for my husband and my girls. My relationship with Jesus is the best it has ever been due to His unfailing love for me and willingness to listen to my attitude far more than usual in recent weeks.

I have been through so much.
Why does He think I’m so strong?
Maybe because He built me for this. Instead of choosing to wallow in self pity, I continued to get back up. I am 100% a “bring the fire,” type of spirit and I’m only a quitter on things that no longer serve me in a healthy manner.

Maybe, just maybe, He chose me for this path because •I AM RESILIENT•

My dream didn’t shatter because of a fatal diagnosis. My vision, heart and mind were adjusted accordingly for a fight He has been preparing me for.

•About six months ago, I promised to find out what was going on with my girl, despite everyone saying it was “normal,” or “would be okay.” I did that.

Now, I promise that the world will know about my girl and others like her. 🔥
#RareDisease #care4rare #curesanfilippo #strength