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A productive day #MentalHealth #EhlersDanlosSyndrome #Abuse #Arthritis #Addiction #ChronicPain #PTSD

Let me start by saying I have two roommates that are messy and more on the lazy side. Me; I'm a neat freak! I do apologize through cleaning once a week. Last night I washed the dishes and swept the floor. Then laid down in my room. Couldn't sleep. So I hand washed a small load of my clothes by hand and hung them up. Swept my room and laid down. This morning I finished the kitchen, cleaning stove top, electric burners and the trays, stove knows and the door. All counters were cleaned and then I tackled in and outside of the refrigerator. Also cleaned the bathroom. Mind you I have many breaks in-between. This all took me 7 hours. Oh and I took the dog on a short walk. My back hurts but we'll worth the pain the have a clean home!!

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Good news #MentalHealth #addiction #EhlersDanlosSyndrome #Abuse #Arthritis #BackPain #ChronicPain #Bursitis #PTSD #Selfharm

So my companion called me earlier to let me know that he bought a buddy's 2007 Chevy Impala. Oh, what a car will mean again. Right now he lives about half hour forty-five minutes away. My life if actually moving forward and not one bad thing after another. Yeah for us

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30 Days of DID: Day SEVEN

*** QUESTION SEVEN: How long have you been in treatment for DID?

Since 2013. We took a break for a few years, then restarted in 2024.

The worst patches saw twice-weekly sessions, doubled or more in length, but our default now is once a week for the typical hour. If we’re struggling with a specific part or memory (and schedules allow) we’ll do an extra-long session. We also take a week off here and there.

A rough estimate of our office hours with Lighthouse has totaled about nine or ten years (even the break had semi-regular check-ins), which means the time spent in proper treatment has nearly lapped the time spent in improper treatment! Success!

*** QUESTION SEVEN-and-a-Half: How many parts do you know of in the system? How many know about each other?

Our named roster once rose into the hundreds, but best guess is, at our most fragmented, we numbered into the low thousands. We stopped keeping track once realizing most alters were groups of parts, or were standing guard in front of groups of parts.

At first, the front-facing, life-living parts were aware only of other surface-level parts, and were kept oblivious to the abuse history and/or inner workings. Deeply-layered or higher-ranking parts knew more, but each section only carried a piece of the bigger picture. A complete overview wasn’t possible until very recently.

I’d say only about 30% of our system directly interacted with the outside world, and things changed so much in recovery that tracking numbers became an unnecessary and distracting task.

At this point, our multiplicity (and togetherness) is understood innately. We don’t need to be Named to be known, and once an alter is known to one, they are known to all. The recognition, acceptance, and welcoming to the fold is almost instantaneous.

#DissociativeIdentityDisorder #DissociationDisorders #dissociativedisorders

*** 30 Days of DID survey credits go to tumblr user shihkas, and wordpress blogger catalyticconvergence. Links can be found in the original post ("Dogged by DID") on our website. ***

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Love from a 5 yr old #MentalHealth #ehlersdanlossyndrome #Abuse #Arthritis #BackPain #ChronicPain

My son had afternoon kindergarten and I worked 3rd shift. One mid morning he wakes me up from my nap on the couch to tell me he made me a snack. He handed me a small plate that had butter bread (thick butter), a sliced up banana (1/2 banana), and something else. He told me he made it for me because he loves me. M

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Any helpful insights welcome #MentalHealth #EhlersDanlosSyndrome #Abuse #Arthritis #BackPain #ChronicPain #Bursitis #PTSD #Selfharm

Starting some time in the next month my partner and I will be getting a car. I have my license and driven often, not regular for over 10+ years. Come winter we're planning on traveling from Indiana to Virginia and then Texas. In essence my body is not used to regularly sitting in a car. Most my shopping done my others. What advice can you offer to help longer trips; other than stopping frequently to move around. Thank you all for any advice

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Some of my favorites #MentalHealth #ehlersdanlossyndrome #Abuse #Arthritis #BackPain #chronicpain #Bursitis #PTSD #Selfcare

Accept what is,
Let go of what was,
And have faith in what will be.

The best things in life aren't things.

Memories take us back,
Dreams take us forward.

Life is 10% what happens to us and 90% how we react to it.

When I hear somebody sing, "Life is hard," I am tempted to ask, "Compared to what?"

Hope ya liked these. Stay strong!!!

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Strength #MentalHealth #EhlersDanlosSyndrome #Abuse #Arthritis #backpain #ChronicPain #bursitis #PTSD #selfcare #Abuse #Addiction

My motto: "It is what is it, So breathe, calm down and deal"
I say it this way because no matter what life throws my way, no matter what I do it's still going to happen. Whether loss, pain, health ... don't matter. I can't yell, get mad, pout, to make whatever change to my liking. I try to think rational when I'm up against difficult situations. By thinking positive, counting my blessings and writing themselves down, and having an upbeat outlook, do I get through every hurt, let down or severe pain and not take out my emotions or pain filled brain out on anyone.

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Independently

I've been living on my own for a very long time and I've had CNAs over the time I've been living on my own did I enjoy the CNAs no cuz a lot of them just want the money they don't know what it means to be disabled or have Cercebral palsy and wheelchair bound. Some of them should have been reported to the state but I don't know how to do that. I need better transportation to get around and I don't like to without asking for help and being told no I can't help you today or do it today the pair of Transit system is not the best where I live but I love living on my own and having my own space that way I don't burden someone else down I need to find positive friends that understand without judgment and without abuse because I got abused a lot in my family that I was born into and by people they just took advantage and bye doctors. The family I was born into was my primary abusers etc and they don't understand what it feels like to be in my shoes or being a wheelchair or have physical limitations cuz they can get around on their own without having a lot of physical limitations so no I don't hang around them a lot because they can be very negative and I don't need that. #Disability #strong #Anxiety #frastrusion

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30 Days of DID: DAY SIX

*** QUESTION SIX: Are you, as a whole, in a relationship? How does romantic partnership work for you?

PeanutButter is married to all of us, and all of us to him. Saying certain alters aren’t married is silly. Impossible, even. He treats alters deferentially, and once had varying dynamics with them, but those distinctions aren’t as necessary anymore.

We were much more overt earlier in our relationship. Our healing has changed us to where addressing alters separately isn’t as imperative. The Motley is still acknowledged, but mostly we’re just living our lives together.

We’re not his first marriage, but we’re his first multiple. Our trauma history occasionally rears its head, and we have our ups and downs, but as relationships go, this is the safest, most comfortable (and longest!) one we’ve had.

*** QUESTION SIX-and-a-HALF: How do you feel about talking about the trauma which created your condition? Do you like to write about it privately or publicly? Why?

It sucks. I don’t like doing it. I don’t like being reminded of it, I don’t like how reminders are everywhere, and I don’t like seeing how much of my life had previously been dictated by it.

I don’t talk about it in everyday life. It slips into conversations with PeanutButter, but we try not to, even accidentally. We’ve worked hard to separate our current life from trauma time.

I’m not shy about saying childhood was difficult and early adulthood unconventional, but I don’t go into how. Most people will understand and back off when we say our family is not good people and are no longer a part of my life.

PeanutButter probably has a bigger picture than I realize due to the pieces he’s gleaned over the years, but we don’t tell him the harsher stuff. Some things are safer for everyone if we keep it close.

Those details are saved for Lighthouse’s office, and even then it’s taken years of trust-building. We don’t like writing it in our journals mostly because we don’t like reading it in our journals. I don’t need a written record of atrocities; I can speak it and release it.

We do our best to keep specifics unwritten on our blog, too. What we endured could probably be inferred, but it’s never our intention to dump horrors onto these pages. It’s more important to talk about its effects, how we moved past them, and the lessons we learned.

Trauma isn’t always about what happened to us, but how well we were equipped to tolerate it. DID isn’t about the abuse, but how we carried it. Maybe someday I’ll be able to talk about it more bluntly and plainly, but for now, this is enough.

#DissociativeIdentityDisorder #TraumaRecovery #Trauma #PTSD

*** 30 Days of DID survey credits go to tumblr user shihkas, and wordpress blogger catalyticconvergence. Links can be found in the original post ("An Adjusting of Vibrations") on our website ***

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30 Days of DID: Day Four

*** QUESTION FOUR: Do you have a specific type of therapy that is your favourite and that works best for you? What types of therapy haven’t worked in the past?

Back in the day, I remember wondering why I was so bad at therapy.

In and out of various programs but nothing helped. Had a lot of individual talk-sessions, but outpatient/partial hospitalizations were probably the worst. DBT. Probably CBT. Dragged once by an ex to a Co-Dependents Anonymous meeting (which is, in retrospect, hilarious, and all I can remember is how squeaky my chair was).

Once the conversations between client and therapist were tailored for a dissociative, fragmented survivor of extreme abuse, progress began to happen at lightning speed.

“We took a humanistic approach combining the relational school of psychoanalysis and the underlying principles of Internal Family Systems, rooted in and integrated with Sensorimotor and Structural Dissociation psychotherapies.”

Lighthouse helped me write that blurb to describe our therapeutic success, and it uses a lot of words I usually don’t; that’s what I wanted for the FAQ. But in my own words? Being heard, seen, and having a consistent witness to walk me through the recovery process has been most invaluable.

Somebody to teach me to use the tools I already had, and to hold the flashlight while I worked under the hood. To hold my hand as I ventured into the scary places. To show me how, through example, to become my own savior.

*** QUESTION FOUR-and-a-HALF: Are you or any of the others in a relationship in or out of the system? How does dating work for you if you do it?

When single, we were never into the dating scene. Relationships were too much trouble, and we’ve never actively sought them out. We always seemed to fall into them by accident.

All our prior relationships were before DID awareness or near the very beginning. As we got serious about recovery, we deliberately swore off anything romantic.

We needed to get our life together; we didn’t want a caretaker, we wanted an equal, adult partnership. It’s only fair for everybody involved, so for about ten years, if anyone showed interest, we shut it down.

At this time of this writing, we’ve been with PeanutButter going on eight years, and we’ve been married for most of them.

#DissociativeIdentityDisorder

***

30 Days of DID survey credits go to tumblr user 'shihkas', and wordpress blogger 'catalyticconvergence'. Links can be found in the original post ("An Adjusting of Vibrations") on our website

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