Degenerative Disc Disease

Some mornings the pain is so bad I just want it to end but I know the only way it will end is when I die. Rare disease with no cure or treatment a genetic mutation that slowly takes out all your muscles. You don't think every muscle in your body can be affected it's sometimes unbelievable but this gene MYH7 is responsible for instructing muscle structure for skeletal muscles and cardiac muscle. I feel so trapped in 58 so who cares I guess they are finally noticing congenital heart failure in the genetic sense in adults. If they do find a cure it will be too late especially since funding for research is being taken away .#OCD #BPD #RareDisease #ChronicPain #MuscularDystrophy ##MDD #DegenerativeDiscDisease #PeripheralNeuropathy #

Feeling defeated again. As usual my health has the final say always winning. I have to take another semester off from school. My dad has to help me get dressed, in the bathroom, and every time I get up. I’m also using a walker and 38yrs old. My back is way worse. I’m very still with limited range of motion due to severe sharp shooting stabbing pain. Doc called in a steroid for me. If not helping I’m suppose to go to the ER.

I couldn’t take this class in the summer and can’t take it this fall. I have this class and 1 more to finish my program in child development online. Then I will finally have my bachelors degree. In 2010 I had to drop out for having emergency back surgery due to Cauda Equina Syndrome. Then 10 months later in 2011 I had a 2nd back surgery due to severe congenital #SpinalStenosis . 2013 went back to school at the local community college for early childhood education. Graduated with associates degree 2016 going part time and another medical leave. 2022 decided to finish my bachelors degree online. Now that I’m this close with only 2 classes left I have to take more medical leaves. If I can’t do these practicums I will need to switch majors again. I was looking so forward to graduating May 2026.

Now I’m not sure when I’ll be done with my bachelors degree. It’s been a long road. Even if I can complete these 2 practicums I’m not sure what I’ll be able to do in this field. Not only is my spinal stenosis worse, I have #DegenerativeDiscDisease #Arthritis and now #Scoliosis all in my lumbar region. My cervical spine is bad also but not as bad.

I was diagnosed with BPD at 14. My symptoms were extremely severe for a long time, but I’ve been in remission for years. I am 37. I also have CPTSD, OCD, generalized anxiety disorder and panic attacks, Major depressive disorder, Dysthymic disorder, ADHD, Fibromyalgia, Degenerative disc disease, Arthritis, Spinal stenosis, And other chronic illnesses that involve immense pain and other challenges. I’ve done a lot of work to reach a place of stability and I’ve been doing pretty OK. I got sick last year and I haven’t gotten better. It might be long Covid. I used to live an extremely active life, and now I can’t the body that I was in and the person that I was is no more I am grieving the life. I thought I would have and I am grieving who I used to be. I feel lost and alone, but I have been managing. My husband‘s brother is in the Coast Guard stationed in Alaska. We live in south east United States Tuesday. My husband left to go to Alaska for eight days to visit his brother. He won’t be back till next Tuesday. It’s only been a couple of days And I am really struggling. My thoughts are dark and my BPD is making an appearance. A lot of what I am feeling is valid and there’s a lot of unresolved pain that he has caused through our relationship. I thought I had dealt with that is surfacing. I don’t feel like I can trust him anymore. I also caught him in a small lie. Which reaffirms that I cannot trust him. I thought we had a good relationship, but I think I was fooling myself. He is not a bad husband and he’s not a bad Person. But he’s also, not Ben the husband that I need. I realize I have been really really lonely pretty much our whole relationship there’s certain things I ask him to do and he says he will do and then he doesn’t do them. Or things that I tell him are important to me and he says he hears me and then there’s no follow-through.. He knows my story. He knows what I’ve been through and he knows what I struggle with. I told him he should go on this trip because I wanted to be a good supportive wife, but now I regret saying that he didn’t take the time to have conversations and check in with me to see how I was processing the coming up trip and to see what he could do to make sure I would be OK and have a safety plan in place. I really just want him to come home. I need him to come home but he won’t. If the situation was reversed, I would try and get an earlier flight back. And he’s choosing not to. On one side I get it because this trip is important to himand spending time with his brother is important to him but also what about me? What about our family, he keeps saying how he wishes we were there with him, and he keeps experiencing stuff and seeing stuff that he wishes he could share. and that this is hard for him too. But in all the videos and pictures he sent he looks like he’s having a great time and I’m here broken into 1 million pieces with no one to help hold me together. I feel alone betrayed abandoned and left out. Things that I have felt throughout our marriage as a byproduct of his choices he asked me to give him Grace, but I have nothing left to give. I don’t know where this leaves us I think he expects to come home and everything’s just gonna be fine and that’s not the case. I don’t know what to do. I feel so defeated and letdown by the one person that’s supposed to have my back and the one person that supposed to be there for me for better or worse. And he’s not.

I'm having to live with Degenerative Disc Disease lumber is there anyone else has this. I'm disabled with it and doing day to day tasks are impossible.

Hi, my name is drbutcher. I'm here because

#MightyTogether #DegenerativeDiscDisease #Depression #RheumatoidArthritis

Hi, my name is bixby7352. I'm here because

#MightyTogether #Anxiety #Depression #BipolarDisorder #BorderlinePersonalityDisorder #Migraine #AutismSpectrumDisorder #ADHD #PTSD #Grief #ComplexRegionalPainSyndrome #DiabetesType2 #TraumaticBrainInjury #ChronicPain #DegenerativeDiscDisease #Scoliosis #Insomnia

I confess it's been a couple months since I've checked in. But wow! Where is everyone? I updated my app and posts are still saying they were put up like a year ago! 🤷...Hellloooo???!

I had toxic megacolon that required emergency open surgery total colectomy w ileostomy. I found out that the j pouch surgeries to reconnect my colon need to be open invasive surgery cutting open a large scar from abdomen to pubic bone from the colectomy. The colectomy and ileostomy was the most painful experience, the surgery was over 12 hrs w complications during and after. I can’t imagine reopening this scar and all the scar tissue around it 3 more times. I’ve had 8 spinal reconstruction surgeries in 10yrs w titanium screws, plates & rods including replacing my tailbone - those surgeries hurt less than the colectomy. Has anyone had j pouch after colectomy? I’m worried about pouchitis and other infections bec I have a primary immunodeficiency disorder? I read ppl have 8-12 bowel movts after surgery? How long does recovery take? Is the pouch connected and working after first surgery? Is life every normal w a pouch?
#CrohnsDisease #DegenerativeDiscDisease #Colectomy #Ileostomy #jpouchsurgery
#Pouchectomy
#colorectalsurgery #Scoliosis #PrimaryImmunodeficiency #InterstitialCystitis #demyelinatonsyndrome #demyelineatingsyndrome