DoctorsSuck

I had my first appointment with a rheumatologist yesterday. I knew what to expect. Best case scenario: blood tests and imaging and a follow-up appointment. Worst case scenario: "there's nothing wrong with you, go home." I wasn't surprised that the doctor said there was nothing wrong with me, but I was surprised how much it hurt me. I waited for months and hoped that he would be the one to finally tell me that I'm not crazy and that there's a reason that I can't do normal 20-year-old things. He didn't' even offer testing. I am so defeated and so disappointed. I don't expect someone to fix me, but I'd like someone to take me seriously and believe me when I say that I KNOW something is wrong. It sucks. #DoctorsSuck #Defeated #wheretogonow

For months we have been chasing ways to help my 22 year old daughter. it began with a car accident in 2016. The allergies were just the beginning. no reasons. No answers. Autoimmune starting showing up in conversations. we moved across the country May 2018. We had high hopes that a new place would have more medical help. No such luck. She went from a young woman preparing for college, working and looking for her own place to someone who can barely make it through the day. Mold toxicity for sure. Probably Lyme disease. Testing is a joke. Doctors do not help. Antibiotics make her too sick to get out of bed. the only LLMD runs his practice abhoribly. I’ve read more in Lyme that he has.
She’s sleeping now because she can’t sleep at night.
I am horrified. I’m terrified. I’m 57 years old and have no idea how she is going to make it on her own.
#Depression and #Anxiety are running rampant in our house. How do you get guidance? How do I know what to do.
Health insurance pays for nothing.
So much more, but this is too long already. #Mold toxicity #ChronicLymeDisease #DoctorsSuck #Anxiety #Depression

Okay this might end up being a long story so hang in there. So I’ve been dealing with joint pain basically since 4th grade, I’m a sophomore in high school now. I’m in pain constantly and I’ve been diagnosed with #PosturalOrthostaticTachycardiaSyndrome but it’s not explaining the joint pain being that I’ve only had POTS symptoms for a few years. Anyways, I just got back from my pediatrician who I’m never going back to. Here is the conversation I had. P is pediatrician.

P- *walks in* So, you’re here for pain medicine
Me- what? No?
Mom- we are just looking for answers about the pain and updating you since we haven’t seen you for a while. She has somewhat recently been diagnosed with POTS.
P- okay, what hurts.
Me- um, kind of everything, but mostly my joints.
P- okay but what hurts right now?
Me- well it changes but right now my knee, ankles, hip, shoulder, and wrist hurt.
P- let me see
Me-???
P- let me see your wrist *forcefully shoves my sleeve up* I don’t see anything wrong.
Me- Um...
P then does the fastest check up I’ve ever seen, maybe spending three seconds at most on each thing, including my heart rate, throat, and ears. Then she asks me to get up on the table (I was still standing, she made me stand for the whole thing even though my mother had told her I had .) so I get up on the table, and she does nothing, she just stares at me and questions me more as if I’m lying to her because she doesn’t see anything wrong.
P- here, you can go get blood drawn, the place in the hospital won’t take your insurance, you can go to the grocery store to do it.

We end up using the place in the hospital because it does, in fact, take our insurance. Everyone at labcore was very nice. The pediatrician will be receiving a letter from my mother, and I won’t be going back to her.

I’m very upset that she came in instantly assuming I was lying and just looking for drugs. #ChronicIllness #DoctorsSuck