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Hi everyone! I hope you all are hanging in there. Recently I have been having an issue with my parents. They were supportive and understanding of me for fibromyalgia but lately they have been using it against me. I am not able to do a lot of the things I used to, and I tell them that I don’t use having fibromyalgia as an excuse. I would LOVE and WISH I could do some of the things I used to. They have started to make it about them, and my feelings are flat out hurt.
#FibromyalgiaDiagnosis #Fibromyalgia #frusturated #ididntaskforthis #Defeated #sad

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Unexpected Circumstances Faced Without Stress: #Bummed But Not #Defeated

Recently I share about a math course I am taking. Unexpectedly my funds for the tuition were cut. I dropped the course. Sadly, I found out I owe a balance for the tuition a few hours before my second class meet time. And because I am out of work due to a medical leave, I simply cannot pay or create more debt, especially when I am paying to increase additional stress in my life because I am learning complicated math skills, during this season of recovery.

Am I bummed? Yes, a little bit. I was geared-up, emotionally, to take the course. But this “geared-up” energy is an aspect of my nature that my cognitive therapist challenged me to rid myself of: I am a “go getter!” But that characteristic is fueled by pain and anxiety driven strength.

So, not taking the course is probably better for my recovery despite my desire to keep forging ahead with earning my degree. And one thing I am learning during this medical leave is taking the stress out of unexpected circumstances. I can admit I am bothered. Cry if necessary. And then continue living life.

My traumatized habitual thinking tried to shift my thoughts to a degrading place with these thoughts: what will others think; am I quitting; my life is a mess; I should have put the balance on credit. But my—in the process of—rewiring my neural plasticity’s way of thinking, reminded me how this dropped course is beneficial: no new debt to stress about; realizing my upcoming six-month neural assessment will be conducted the day before our first mid-term “quiz.” So, WOW! When I realized the latter, I see this financial issue as a blessing in disguise. Those two events occurring at the same time would have created a serious amount of stress on my brain. Phew!

Thanks for providing us the platform to share and work through our life events! Indeed, this is a place connecting #TheMighty !

#Anxiety #Sadness
#Selfcare #Selfcompassion

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Haven't felt disrespected in awhile

Its been awhile since I posted on here. I moved away from an abusive ex to a new start in Pennsylvania. Rocky start but life is way better now. I have a wonderful dr but as of today, they have really pissed me off. I have been having a fibromyalgia flare up for about 4 weeks now. I've never had one last this long and so I called them. They prescribed me prednisone for infammtion. Great cause that typically helps. Well this time it hasn't. I've already missed some work hours. I'm behind on bills because eof other things that had come up so im stressing out over that as well. This just through me over the top. I asked the receptionist if the nurse could order me something else for pain as I'm having to take one of my nightly muscle relaxers during the day to cope through work. They said they can't do anything until they see me and the earliest I can see someone would be Friday. She then had the nerve to tell me I can take over the counter pain medication. I'm sorry are you fucking kidding me?! If fibromyalgia could be helped eith ibuprofen my life wouldn't be so hard. But it doesn't do shit and the fact that they told me this made me so angry. I feel alone. I feel like no one cares. I'd like them to step in my shoes and have someone tell them you can take some ibuprofen for the severe pain you are in. I havent felt this way in a while and I feel completely defeated. I called a pain specialist in the area and they are able to squeeze me in tomorrow so at least there is some light at the end of the tunnel. However, I'm still worried they aren't going to do anything for me. I've seen pain specialists before and nothing has worked so far and i dont know what else i can do. Ive been using over the counter meds, my medical marijuana, hot showers, heating pads, pain cream. You name it ive done it and my pain still at a 7. #Fibromyalgia #ChronicPain #Defeated #stressed #Anxiety #keepgoing

26 reactions 16 comments

I feel defeated in life

I worked for this company for 8 years and was somewhat expected to be promoted, but I felt there was bias during the interview as not all of the panels were in during this other person's interview. I had tougher questions coz all of the panel were there and they were expecting I would be promoted. Some questions to this other person was about this meeting he attended, which I do not know of. This other person got promoted. I felt demoted.

Also, we've been trying to conceive for a year now and still I'm not pregnant.

My husband does not have a stable job. I mostly see him playing games when I go home from work. I do the house chores while he just relaxes.

I just want something happy in my life for a change.

#Anxiety #Depression #Defeated


Complicated person with complicated issues needs a complicated med solution

I seek help for my chronic mental health only to be stigmatized by my own psychiatrist... Makes me not want the help and feeds into my negative thought process... and society wonders why the suicide rate is so high smh #Anxiety #Depression #PTSD #Defeated

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I was diagnosed with Hypophosphatasia three years ago...I never thought it would be so hard to find doctor's who knew what the hell HPP was. Then I got diagnosed with Ehlers-Danlos... Where it's near to impossible to find doctor's who know what it is and if they do, they have no desire to treat you.
With EDS comes Post Orthostatic Tachycardia Syndrome aka POTS, which causes dizziness due to a spike or decrease in blood pressure.
After getting denied to my hospitals Rheumatology department to see a doctor for POTS today, I asked my daughter's POTS doctor at her appointment to steer me in a good direction for a doctor.
He automatically understood the challenge I was having and apologized for not being able to accept adult patients. The one doctor that I could see he said is about a two hour trip for me.
I called them anyway and was told he had an 18 month long waiting list! I'm not surprised as this seems to be the case when you have "rare" disorders, but I still felt defeated.
I, of course, put my name on the waiting list... What other options do I have?
And there is the problem people. We have no other options but to wait... And waiting for the majority of us can be dangerous. Most my days lately are spent getting dizzy, some days are bad enough that I almost faint. I wonder... How do I wait 18 months before I can have a specialist help me?
Not only do we have to deal with the waiting game, but no one acknowledges the trauma that rare and chronic patients have to endure. We are treated like pariahs in the medical community, treated as if we're a burden.
Why aren't there more specialists and informative doctor's for rare diseases? Why isn't there better care for us? Don't we matter too? How do we educate more doctor's?#EhlersDanlosSyndrome #hypermobileehlers-DanlosSyndrome(hEDS) #Hypophosphatasia #RareDisease #ChronicIllness #Doctors #Defeated #CPTSD


Feeling #helpless & #Defeated

My relationship with the father of my three daughters ended in February after 16 years. During those 16 years, there was a lot of toxicity. He is an alcoholic and was/is physically, emotionally & verbally abusive. Primarily towards me but the girls have witnessed it. We are over for good now & because of his substance abuse issues, I have restricted his contact with our children. Here recently, he (& his girlfriend) have threatened to take ‘drastic measures’ if I don’t give him full access to our children at his discretion. Monday, I filed a domestic violence civil protection order for my children and I. Today, I was granted the ex parte order & will have to go back to court in two weeks in which he will be present to fight against me. When I signed those papers today, I sobbed. I couldn’t stop crying. This is not how my life was supposed to turn out. Never in a million years did I think I would have to take these drastic steps. I have failed to make my family work despite my trying tirelessly for over a decade to keep things together.

I feel so defeated and I don’t have any fight left in me.
#SuicidalThoughts #DomesticViolence #Depression


I expected it, but it's still so disappointing.

I had my first appointment with a rheumatologist yesterday. I knew what to expect. Best case scenario: blood tests and imaging and a follow-up appointment. Worst case scenario: "there's nothing wrong with you, go home." I wasn't surprised that the doctor said there was nothing wrong with me, but I was surprised how much it hurt me. I waited for months and hoped that he would be the one to finally tell me that I'm not crazy and that there's a reason that I can't do normal 20-year-old things. He didn't' even offer testing. I am so defeated and so disappointed. I don't expect someone to fix me, but I'd like someone to take me seriously and believe me when I say that I KNOW something is wrong. It sucks. #DoctorsSuck #Defeated #wheretogonow



So here’s a little background:
My 6 year old daughter has been screened for and has SPD. I know this is not a diagnosis, but she has been tested, meets criteria, and 18 months of weekly therapy was recommended around the beginning of March 2020. We were waiting on insurance approval and landed in the middle of this pandemic. She did not begin therapy as planned. I’m a nurse and had to take leave due to fallout of COVID. My husband travels for work and is home only 6-7 days a month, he’s the primary bread winner so I gave my career up to stay at home. WHEW! BY FAR THE HARDEST “JOB” IVE EVER TAKEN ON!!!Our summer had a few trying days but ultimately we were able to push through with minimal breakdowns, I’m guessing because she was at home with her family everyday.
Fast forward to now-We opted for a 2/3 school week. 2 days in class and 3 distance learning. The other option is 5 days distance learning. I felt my children needed social interaction with peers as they had just spent the last 6 months under quarantine. So starts the distance learning...WHAT A MESS!!!
I’ve am so overwhelmed, irritated, and feel like pulling my hair out over this! I start to become anxious Monday morning when the next assignments are posted. There is no teacher instruction for the distance learning portion. If I have a question for the teacher I can email her and she has 24 hours to respond. We are given a packet with several pages of worksheets, a couple of videos to go over, and in addition students are required to log 15 mins of reading and math practice through the schools website daily. My daughter fights me front start to finish. I am in tears and at times feel like I’m going to have a panic attack. Sophia is extremely smart, but the meltdowns prevent her from excelling.
Even if I could get her to cooperate, I am not a teacher, I do not know how to teach her. I can read the directions for worksheets, of course, but to know how to help her retain the info , NO.
If I were to ask an educator to start an IV or put an NG tube in chances are there would be a learning curve on their end as well.
Did I mention she is in Kindergarten? Probably one of the most important learning times for a child. They are building the basic foundation for the rest of her elementary school years. But most importantly are learning to read.
She is falling behind on site words, her teacher pointed this out to her in front of her peers, she came to my bedside multiple times in the middle of the night obsessing over the word “the,” so worried she will forget it tomorrow and will be embarrassed again tomorrow. I see a meltdown in my very near future, like when her alarm goes off at 7.
We are on a schedule for school days& distance learning days with a couple of slight differences. We are awaiting approval from insurance company to get her therapy started.

#Anxiety #SensoryOverload