chronic lyme disease

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chronic lyme disease
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    For all my Lymies out there

    I’m currently working on my book “Predictably Unpredictable”- a book all about my lyme journey and then some.

    I’m searching for anyone who would want to share their story/testimony/transcript- whatever you’d like to call it, so I can include others stories in my book. [I am not using names in this book- as I respect doctors and patients privacy, so you will be given a name for my book]

    If you’re interested, I would LOVE to hear from you. Tell me your story, so I can tell the world. #stopthesilence #ChronicLymeDisease #Babesiosis #LymeWarrior #Bartonella #InvisibleIllness


    Jan 6, 2023

    Today I’m feeling quite awful. My brain feels in the clouds, anxiety level ridiculous, left side weakness. My extremities don’t want to do what I tell them to do. There’s a misfire between my brain and my body. I’m just under 2 months of being ill for 5 years. 5 years. Our youngest daughter just turned 5. She doesn’t even know who I am. The real me. The not sick me. The fun me. The active me.

    I’m feeling so down, hopeless, sad, guilty. A burden.

    I’ve been able to stay somewhat positive- as much as one can with this disease- but 5 years? That’s a big chunk of time. Our oldest son has 5 years of the real me. Our middle child had 3 and our youngest had zero.

    It’s wild to me how an illness can- for me- in a matter for just 3 days take over your entire life. Your whole being. Your soul.

    I’m exhausted. I’m so sick of being sick. #ChronicLymeDisease #Babesiosis #Bartonella #LymeDisease #InvisibleIllness #LymeWarrior

    9 reactions 5 comments

    I’m new here!

    Hi, my name is selainaforever. I'm here because I’m struggling to keep going. My disease has taken everything from me and I’m struggling to cope with it.

    #MightyTogether #Fibromyalgia #Anxiety #Depression #Grief #ChronicLymeDisease

    10 reactions 6 comments

    I’m new here!

    Hey, I’m Lindsay. I'm here to talk all things lyme.
    #MightyTogether #ChronicLymeDisease

    2 reactions 2 comments

    I’m new here!

    Hi, my name is mountainlife7eh. I'm here because
    and I’m wondering what you do to find joys in a pain flare.
    #MightyTogether #ChronicLymeDisease

    7 reactions 3 comments

    I’m new here!

    Hi, my name is Gemma. I've been diagnosed with. I am living with a family of healthy people which I thank God for daily. However, they have a hard time being supportive of my struggles and I have a hard time asking for help.

    #MightyTogether #Anxiety #Depression #Migraine #Fibromyalgia #ChronicLymeDisease # Small Joint Arthritis # Osteoarthritis #DegenerativeDiscDisease #sjogren's Syndrome

    20 reactions 14 comments

    Horrible Fare Up

    What helps other people with chronic lyme flares?
    I have been in constant chronic pain for almost three years but this week has been the highest level I have ever felt. I'm really discouraged and struggling because no pain medicine or treatment gives me relief. So if anyone has anything that they use that gives relief I would love to hear it.
    Thank you 😊
    #chronicheadache #ChronicIllness #ChronicLymeDisease

    2 reactions 3 comments

    I’m new here!

    Hi, my name is chronicallyill. I'm here because I’m seeking out support through my variety of chronic illnesses. I’m stepping outside of my comfort zone so I won’t feel alone. new user :)

    #MightyTogether #Anxiety #Depression #BipolarDisorder #Migraine #Fibromyalgia #ADHD #OCD #Grief #ChronicLymeDisease #Lupus

    1 comment
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    But I'm Not Hungry!

    Living with #ChronicPain has completely changed my life, I used to love eating and I would enjoy two or three helpings of food at dinner. But now... I can barely force myself to eat because of extreme nausea and loss of appetite🤧 Does anyone have any tips for increasing appetite?💚
    #EhlersDanlosSyndrome #PosturalOrthostaticTachycardiaSyndrome #chronichead#ChronicLymeDisease