chronic lyme disease

I’m currently working on my book “Predictably Unpredictable”- a book all about my lyme journey and then some.

I’m searching for anyone who would want to share their story/testimony/transcript- whatever you’d like to call it, so I can include others stories in my book. [I am not using names in this book- as I respect doctors and patients privacy, so you will be given a name for my book]

If you’re interested, I would LOVE to hear from you. Tell me your story, so I can tell the world. #stopthesilence #ChronicLymeDisease #Babesiosis #LymeWarrior #Bartonella #InvisibleIllness

Today I’m feeling quite awful. My brain feels in the clouds, anxiety level ridiculous, left side weakness. My extremities don’t want to do what I tell them to do. There’s a misfire between my brain and my body. I’m just under 2 months of being ill for 5 years. 5 years. Our youngest daughter just turned 5. She doesn’t even know who I am. The real me. The not sick me. The fun me. The active me.

I’m feeling so down, hopeless, sad, guilty. A burden.

I’ve been able to stay somewhat positive- as much as one can with this disease- but 5 years? That’s a big chunk of time. Our oldest son has 5 years of the real me. Our middle child had 3 and our youngest had zero.

It’s wild to me how an illness can- for me- in a matter for just 3 days take over your entire life. Your whole being. Your soul.

I’m exhausted. I’m so sick of being sick. #ChronicLymeDisease #Babesiosis #Bartonella #LymeDisease #InvisibleIllness #LymeWarrior

Hi, my name is selainaforever. I'm here because I’m struggling to keep going. My disease has taken everything from me and I’m struggling to cope with it.

#MightyTogether #Fibromyalgia #Anxiety #Depression #Grief #ChronicLymeDisease

Hey, I’m Lindsay. I'm here to talk all things lyme.
#MightyTogether #ChronicLymeDisease

Hi, my name is SMP54.

#MightyTogether #ChronicLymeDisease

Hi, my name is mountainlife7eh. I'm here because
and I’m wondering what you do to find joys in a pain flare.
#MightyTogether #ChronicLymeDisease

Hi, my name is Gemma. I've been diagnosed with. I am living with a family of healthy people which I thank God for daily. However, they have a hard time being supportive of my struggles and I have a hard time asking for help.

#MightyTogether #Anxiety #Depression #Migraine #Fibromyalgia #ChronicLymeDisease # Small Joint Arthritis # Osteoarthritis #DegenerativeDiscDisease #sjogren's Syndrome

What helps other people with chronic lyme flares?
I have been in constant chronic pain for almost three years but this week has been the highest level I have ever felt. I'm really discouraged and struggling because no pain medicine or treatment gives me relief. So if anyone has anything that they use that gives relief I would love to hear it.
Thank you 😊
#chronicheadache #ChronicIllness #ChronicLymeDisease

Hi, my name is chronicallyill. I'm here because I’m seeking out support through my variety of chronic illnesses. I’m stepping outside of my comfort zone so I won’t feel alone. new user :)

#MightyTogether #Anxiety #Depression #BipolarDisorder #Migraine #Fibromyalgia #ADHD #OCD #Grief #ChronicLymeDisease #Lupus