dyautonomia

I wake up most mornings if I haven't already awakened in the middle of the night with painsomnia. I wake up feeling sick. I wake up feeling like I have the Flu. The muscle aches, the chills or sweats, and the sore eyes and the headache. But I don't have the flu. I just feel like it. I do have #Fibromyalgia and #EDS #sjogrens and #dyautonomia but I feel like I have the flu pretty much all of the time. I have nausea, gut aches and pains. And my joints, all of them, feel like acid burning and stalagmites, and I can't get warm enough or I can't get cool enough. And I wake up with rashes I didn't go to bed with. And rashes or blisters I had when I was going to sleep have disappeared. I'd think I was losing my mind if I hadn't taken pictures of these things.

My joints go out more than I do and they go out at night quite often. I awaken and take an inventory of where my ankle is, and wonder if my knee will be where I left it. And it is anyones guess if my hips will be in place or will have slid just enough out of joint to render me in even more pain that my baseline and render my bedrest until I can coax them to get back into alignment by gentle rolling or by pushing them where they need to go. And I hope I don't do damage to cartilage or tendons; it really isn't possible to do any more damage to my ligaments, because they are already like silly string already.

And I drink water by the Litre. And I'm nauseated and hungry all at the same time. And foods don't always taste good and everything I eat causes abdominal pain; my gut all over hurts. I can drink water without pain. Propel hurts. Simple boiled rice hurts. Mashed potatoes hurt. Applesauce hurts. Bananas hurt. Crackers hurt. Grilled peanut butter sandwiches, my comfort food, hurts. And the nausea remains and washes over me with sweats and chills and I'm drenched in sweats from the tip of my toes to the top of my head and everywhere in between. And fruit hurts. And salads hurt. Yes, everything I eat hurts except for water. And so i try to eat things that hurt me less. So, i don't eat fried foods. I don't eat fast food. I can no longer drink coffee and take some solace in a cup of tea.

MyPainPointOfView

So an unexpected thing happened today. I messaged my doctor over the weekend because I truly believe most of my issues are Dysautonomia related.  I mentioned it to her regarding my tachycardia and excessive sweating plus my passing out.  She agreed with me that it definitely could be related.  I was honestly blown away.  I'm actually excited about going to my next appointment.  Just knowing that she's open to the idea of a possible diagnosis gives me hope.  
#dyautonomia #POTS #hopeforadiagnosis