Sjögren's

Create a new post for topic
Join the Conversation on
Sjögren's
10.5K people
0 stories
726 posts
About Sjögren's Show topic details
Explore Our Newsletters
What's New in Sjögren's
All
Stories
Posts
Videos
Latest
Trending
Post

Validation

For years I have lived with a “fibromyalgia” diagnosis and numerous strange symptoms that come and go. Recently things have escalated and changed and bloodwork revealed the probability of autoimmune disease; my PCP is guessing lupus or sjogrens. For all these years I have felt and seen the disbelief of people close to me and them thinking I’m just being “dramatic” or anxious. My ex husband went so far as to tell me to not tell anyone I have fibromyalgia because it’s embarrassing. When I recently received the lab results that I am not in fact “being dramatic “, I felt like throwing up my middle finger to everyone who turned their back and brushed me off. My mother even told me that she thought I was just having anxiety issues. My psychiatry nurse pointed out it is like I am validated now, even though having an autoimmune illness is definitely not something anyone wants. I feel like after all these years I am not just being a whiny butt. Now will come the hard part of waiting to see a specialist, it’s months to get in and that part sucks. I don’t have a lot of people in my circle and this does feel isolating so I’m here to try and be proactive, try and keep anxiety about the unknown and off the wall symptoms down and connect with others who are in the same boat. #autoimmune #ADHD #Undiagnosed #whatswrongwithme
#SjogrensSyndrome #SystemicLupusErythematosus #RaynaudsPhenomenon

Most common user reactions 2 reactions 1 comment
Post

Validation

For years I have lived with a “fibromyalgia” diagnosis and numerous strange symptoms that come and go. Recently things have escalated and changed and bloodwork revealed the probability of autoimmune disease; my PCP is guessing lupus or sjogrens. For all these years I have felt and seen the disbelief of people close to me and them thinking I’m just being “dramatic” or anxious. My ex husband went so far as to tell me to not tell anyone I have fibromyalgia because it’s embarrassing. When I recently received the lab results that I am not in fact “being dramatic “, I felt like throwing up my middle finger to everyone who turned their back and brushed me off. My mother even told me that she thought I was just having anxiety issues. My psychiatry nurse pointed out it is like I am validated now, even though having an autoimmune illness is definitely not something anyone wants. I feel like after all these years I am not just being a whiny butt. Now will come the hard part of waiting to see a specialist, it’s months to get in and that part sucks. I don’t have a lot of people in my circle and this does feel isolating so I’m here to try and be proactive, try and keep anxiety about the unknown and off the wall symptoms down and connect with others who are in the same boat. #autoimmune #ADHD #Undiagnosed #whatswrongwithme
#SjogrensSyndrome #SystemicLupusErythematosus #RaynaudsPhenomenon

Most common user reactions 2 reactions 1 comment
Post
See full photo

Monday Motivation ✨- No Days Off!

Have you ever thought about this? Believing in yourself is a full time job (but it's a good one to have 😉!)

How can you take steps towards working on this in your own life? Share in the comments and encourage each other 🙂 #MentalHealth #BorderlinePersonalityDisorder #BipolarDisorder #Anxiety #Depression #ChronicFatigueSyndrome #Lupus #SjogrensSyndrome #PTSD #AutismSpectrumDisorder #Schizophrenia #SchizoaffectiveDisorder

Most common user reactions 29 reactions 6 comments
Post
See full photo

Monday Motivation ✨- No Days Off!

Have you ever thought about this? Believing in yourself is a full time job (but it's a good one to have 😉!)

How can you take steps towards working on this in your own life? Share in the comments and encourage each other 🙂 #MentalHealth #BorderlinePersonalityDisorder #BipolarDisorder #Anxiety #Depression #ChronicFatigueSyndrome #Lupus #SjogrensSyndrome #PTSD #AutismSpectrumDisorder #Schizophrenia #SchizoaffectiveDisorder

Most common user reactions 29 reactions 6 comments
Post
See full photo

Weekend Inspo ✨

When I first learned about this, I was sad. I'm a serious human. Even when I was a child, I was SO serious. But guess what? Even if we arent good at "playing" we can learn to!

Watch a comedy show that will make you laugh; play a game with your kids or friends; try it for just five minutes this weekend and see what happens.

How can you incorporate more play and laughter into your weekend? Share ideas in the comments below for others to be inspired, too!
#PTSD #MentalHealth #BorderlinePersonalityDisorder #BipolarDepression #Agoraphobia #Anxiety #Schizophrenia #Addiction #Lupus #ChronicFatigueSyndrome #CeliacDisease #SjogrensSyndrome

Most common user reactions 23 reactions 9 comments
Post
See full photo

Weekend Inspo ✨

When I first learned about this, I was sad. I'm a serious human. Even when I was a child, I was SO serious. But guess what? Even if we arent good at "playing" we can learn to!

Watch a comedy show that will make you laugh; play a game with your kids or friends; try it for just five minutes this weekend and see what happens.

How can you incorporate more play and laughter into your weekend? Share ideas in the comments below for others to be inspired, too!
#PTSD #MentalHealth #BorderlinePersonalityDisorder #BipolarDepression #Agoraphobia #Anxiety #Schizophrenia #Addiction #Lupus #ChronicFatigueSyndrome #CeliacDisease #SjogrensSyndrome

Most common user reactions 23 reactions 9 comments
Post
See full photo

Tip Tuesday

This is a HUGE reminder that I often need & wanted to share it with you all. If it's a hard morning, evening, day, week or even month- keep fighting back. You're so worth it.
#PTSD #BorderlinePersonalityDisorder #MentalHealth #BipolarDisorder #BipolarDepression #ChronicFatigueSyndrome #Lupus #SjogrensSyndrome #Addiction #Schizophrenia #SchizoaffectiveDisorder

Most common user reactionsMost common user reactions 37 reactions 11 comments
Post
See full photo

Tip Tuesday

This is a HUGE reminder that I often need & wanted to share it with you all. If it's a hard morning, evening, day, week or even month- keep fighting back. You're so worth it.
#PTSD #BorderlinePersonalityDisorder #MentalHealth #BipolarDisorder #BipolarDepression #ChronicFatigueSyndrome #Lupus #SjogrensSyndrome #Addiction #Schizophrenia #SchizoaffectiveDisorder

Most common user reactionsMost common user reactions 37 reactions 11 comments