Dysautonomia

Hi, my name is RainbowBabz. In 2025, I was diagnosed with a chiari malformation after a near-syncope event in the shower. Since then, I have struggled with a whole body of symptoms, and have dealt with specialists and my employers not believing that the symptoms existed, let alone that they were at all related to my diagnosis. Now, only six months later, I am unemployed, homeless, and barely able to get out of bed some days. I plan to share some of my experiences as possible, and I look forward to speaking with others who have similar experiences!

#MightyTogether #Anxiety #Depression #AutismSpectrumDisorder #ADHD #Migraine #Dysautonomia #chiarimalformation #homeless #pots #fainting

I’m so fed up with my body at times I just want to be pain free. My legs feel like there being crushed.
Fuck you Dysautonomia

I’d really love if anyone was awake to chat and distract me

Hi, my name is TammyTLC. I'm here because

#MightyTogether #Fibromyalgia #RheumatoidArthritis #Dysautonomia #Fibromyalgia

Hi, my name is Petal.
A while ago I got pregnant and then after a bit of a rough pregnancy, I ended up with dysautonomia. ended up losing my job amd my marriage because my health was just so unstable. not that the marriage part was my fault.He just didn't want a sick wife. but now I stay at home all day, hoping something will work out. i'm hoping I can just find someone to talk to. I lost my ability to drive and a lot of people don't really come to visit.

Hi, my name is IntrepidDuck2600.

#MightyTogether #BipolarDisorder #AutismSpectrumDisorder #ADHD #Gastroparesis #Dysautonomia #ehlersdanlos

Its been a long time since Ive posted but Im thinking about starting a glp-1 medication if Il approved by doctors. I have been struggling with my weight and binge eating for the last few years. I now weight over 15 stone and Im only 5’5 so I am very overweight. My m.e/cfs, fibromyalgia and dysautonomia make my binge eating worse because when Im feeling so unwell binging seems to be my bodys first response.

Being so overweight is making me very depressed. I’m in therapy, Ive tried hypnotherapy, CBT, Slimming World, Weight Watchers and counting calories. Nothings worked or I will lose 5-7 pounds and then I will spiral again and gain it back. Im not starting to feel the effects of being overweight so I know I desperately need to do something about it. I constantly think about food and I mainly want to try glp-1 to see if it quiets down that horrible voice in the back of my head that shouts about food 24/7.

For me Ive been pretty anti glp-1 because I keep hearing all these horror stories even though I know the medication had worked for millions of people and every medication has side effects. Im just scared but Ive also reached a point where I cant go on like this.

So, any advice (good or bad) please share with me. If you’ve tried it or if you haven’t but something else worked for you, please let me know. Thank you in advance

#MECFS #Fibromyalgia #bed #BingeEating #BINGE #glp1 #WeightLoss