Dysautonomia

Create a new post for topic
Join the Conversation on
Dysautonomia
18.4K people
0 stories
1.6K posts
About Dysautonomia Show topic details
Explore Our Newsletters
What's New in Dysautonomia
All
Stories
Posts
Videos
Latest
Trending
Post

So defeated

Here it goes y’all. I have been feeling so defeated and down lately. My husband switched our insurance with his work from their hmo to a crazy hmn (I have never heard of this type) and no one is covered. I lost the ability to see my complex care internal medicine doctor who took care of *everything* for me.

So in an attempt to find resources to help all of my laundry list of illnesses, I started with a rheumatologist who supposedly helps my mixed connective tissue disease according to Dr. Google.

Spoiler, he did not and basically told me I need to find a functional medicine doctor who prescribes traditional medicines and takes my insurance, a neurologist, a endocrinologist and a new primary care doctor “to start”, his words not mine. Also I have to continue with the new heart doctor who also is referring me to a dysautonomia specialist because it is above his comfort level of treatment he said. He can try but he’d feel better sending me down town. I can no longer drive fyi.

All of this with my new crazy insurance who does not cover even a box of tissues for these stress tears that they’re causing. My husband promised he’d help try and coordinate all of these new crazy doctors I need but this was nearly two weeks ago and nothing has happened. I’ve been trying to dig and dig for a functional medicine doctor who treats whole body and not “gut health” only type things or box o’ vitamins. It’s just so gimmicky. #Depression #Fibromyalgia #Dysautonomia #AutoimmuneThyroidDisease #MentalHealth #LymeDisease #Anxiety #MixedConnectiveTissueDiseaseMCTD

Most common user reactionsMost common user reactions 13 reactions 6 comments
Post

I'm new here!

Hi, my name is Beautifulcrazy93. I'm here because
I have about 30 plus diagnosed medical condition Most are not here some are very rare so they say i just need to find people to fell less alone and maybe give some hope maybe find a doctor who’s up for a challenge #MightyTogether #Fibromyalgia #Migraine #PTSD #Anxiety #OCD #EhlersDanlosSyndrome #NeuropathyHereditary #Dysautonomia #Dysphasia #Dysthymia #Depression #Epilepsy #Agoraphobia #PosturalOrthostaticTachycardiaSyndrome #HeartDisease #IrritableBowelSyndromeIBS #IronDeficiencyAnemia

Most common user reactionsMost common user reactions 6 reactions
Post

I'm new here!

Hi, my name is DBrunson622 you can call me Day. I'm here because I would like to commune with people who understand what it's like to have your life upended by Chronic Illness.

#MightyTogether #Anxiety #Depression #Migraine #Fibromyalgia #PTSD #ADHD #Dysautonomia #MyalgicEncephalomyelitis #HearingLoss

(edited)
Most common user reactionsMost common user reactions 4 reactions