Dysautonomia

In February 2022, I received my third COVID vaccine shot, the Moderna booster, within 7 days I began having neurological issues that increased over time and it never went away. I went to multiple specialist to go through test and figure out what was going on. I was diagnosed pretty quickly with Postural Orthostatic Tachycardia Syndrome, I also have Chronic Fatigue syndrome, Persistent postural perceptual dizziness, vestibular dysfunction causing severe migraines, and a multitude of other weird symptoms. I go to physical therapy and I’m in a long term clinical trial for people with long COVID at the infectious disease clinic at Stanford. I went from running 3 miles a day to not even being able to stand or walk to the bathroom without having tachycardia, breathlessness, hypotension, full body numbness, extreme fatigue, not being able to verbally speak at times, choking on my own saliva and a plethora of other very strange symptoms. There seems to be a lot of skepticism in the medical field and our immediate communities due to the divide from politics, about vaccines causing injury. I just feel like it’s gotten to convoluted and derailed because of this and we can’t even focus on trying to find out why some of us have reacted to the vaccine. And people like me, which there is actually a lot of us, are being vilified and mocked for political gain.

Vaccines are supposedly safe, but yet there is a compensation act in place just in case and like anything else, there is always a risk. So to me, that means they are not completely safe if there is a potential risk. If that’s the case then why is it so hard to believe that some peoples bodies can’t handle a vaccine as well as others? Don’t you think that the healthcare system should not be providing a “one size fits all” treatment?

I’ve been researching since I got sick because I was ostracized, gaslit and abandoned by our medical system and government. Left to pretty much figure out myself what I was experiencing. I was on waitlist for almost a year to see most specialist and when I had to go into the emergency for desperate moments, the hospital would run standard tests on me and send me home with either a tachycardia diagnosis, asthma, migraines or anxiety. It wasn’t until I saw a cardiologist and my current neurologists (yes, plural) that I was given the diagnosis I have now.

At first, there was conflicting information regarding what caused my Dysautonomia. I had nothing else happen to me besides the vaccine. So I asked doctors, specialists, family, friends and people in my support groups about what I was experiencing, could it of been the vaccine. The doctors at first said it’s a possibility but highly unlikely. Now, they have confirmed it was from my booster shot and the likelihood was greater than initially expected. Meanwhile, I was called an “anti vaxer”, even though I have all my vaccines. And the only way to learn about my illness was to read and join support groups on social media. In which, I was censored and anything regarding vaccine and injury in the same sentence was removed. In my opinion, this is what caused people to be skeptical of vaccines. Especially the ones negatively impacted by the vaccine.

It has been very difficult to find full clinical trial studies on Covid Vaccines that have not been summarized. The summarized findings are performed and because they are summarized, it’s missing information that I would love to see, like how long were the patients monitored for and so on, or even a follow up years later.

Before all of this, I was not political at all, and I never questioned the science behind vaccines, I still don’t. But I do question the scientist and their motives since there seems to be a lot of incentives coming from big Pharma.

Going through all of this and being treated the way I was treated has really put a bad taste in my mouth. I no longer trust what I’m being told by the medical system or the government. And I still continue to be ostracized by my community, strangers, the medical system and the government. I’m tired of it. Not only am I 42 years old and disabled but I’m also dealing with being gaslit by everybody around me which is absolutely infuriating. You will never know how someone feels unless you walk a mile in their shoes.

Right now a lot is coming to light about people who have been affected directly by the vaccine but politics of course are taking precedence with naive people all over the board which is reopening the wound. I’m feeling completely defeated, sad, anxious and angry. Raw emotions are on high, I just needed a place I could write it all out.

Holy Mountain by Melanie R.

I looked to the hills
where great mountains stand.
For all of my help
is from God’s righteous hand.
They reach to the heavens as they do declare,
the signs of His wonder-
His glory, and care.

The height of His Majest….

My Rock,
cornerstone.
Atop there with Him,
I feel comfort-

I’m home.

The Rock that was thrown down,
rejected,
then rolled…ooh..ooh…

Now holds me together,
shows mysteries unknown.

Mt. Tabor’s prominence;
Mt. Carmel stood tall-
proving…
there’s One God that reigns over all!!

In His holy mountain,
with Him by my side,
in hearing His word,
growing faith,
I abide.

The gush of the water
that came from the stone,
Rained living water;
restoring me whole!

Thank You Jesus!

Isaiah 48:22
And they did not thirst
when He led them through the deserts.
He caused the water
to flow from the rock for them;
He also split the rock,
and the waters gushed out.

Stay Strong Mighty Warriors,
and God be with you all! 🙏💪🏻🏔️

#MightyPoets #InsideTheMighty #MitochondrialDisease #AutoimmuneImmunodeficiency #ComplexRegionalPainSyndrome #ChronicIllness #Dysautonomia #IrritableBowelSyndromeIBS #MultipleAutoimmuneSyndrome

Hi! I am diagnosed with ME/CFS and my connective tissue kinda sucks (I could probably get diagnosed with HSD if not heds, but I haven’t pursued that atp)

I was lying flat on the floor the other day (as one does) and noticed my entire ribcage is crooked, as in the left side sticks out noticeably more. So then I started researching and it said it could be an indicator of scoliosis. So I did some wacky maneuvering to try to get my spine on camera to look at, and it looks a bit curved to the left in the upper part of my back in the picture. But maybe that’s the lighting?

I plan on probably making a doctors appointment regardless, but would love to hear what other people think who know more about this than I would lol

#MyalgicEncephalomyelitis
#Scoliosis ?
#ChronicFatigue
#Dysautonomia
#HypermobilitySyndrome