Dysautonomia

We all live with different quirks, whether it be physical or mental health problems, there's a lot to navigate! So my question is - what is a funky health quirk you have?

I'll go first. Sometimes when I feel like I'm going to pass out, I look at myself in the mirror because I want to see what I look like when I black out. Not that I'd even be able to watch it happen....because that's not really how passing out works. But still. I'm intrigued.

Another one - when I have to take salt tablets for my POTS, I LOVE sucking on them. So much. They are delicious. I feel like a cow, licking a salt block but I don't even care. Bon Appetit.

So how about you? Any funky quirks or confessions?

#Spoonie #ChronicIllness #posturalorthostatictachycardia #POTS #MentalHealth #Anxiety #Depression #PTSD #PanicDisorder #Dysautonomia #Therapy #MyCondition #LivingWithPOTS #selfcare #Recovery

Today I am featured as blogger on Chronic Migraine Awareness website. Please go support them as we try to raise awareness about these poorly understood and researched conditions.
chronicmigraineawareness.com/2023/03/07/mitas-story

#chronicmigraine #ChronicMigraineSyndrome #ChronicVestibularMigraine #Migraine #MigraineBrainFog #MigraineWithAura #VestibularMigraine #migraineawareness #ChronicPain #Pain #ChronicIlless #Raiseawareness #ChronicMigraines #ChronicHeadaches #OccipitalNeuralgia #Dysautonomia #Fibromyalgia #ChronicFatigue #Spoonie #SpoonieProblems #spoonielife #Support #resilience #creativecopes

What POTS symptoms do you experience? Share your experience in the comments. ⁠

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Prevalence of POTS symptoms⁠:

Lightheadedness (99%)⁠

Tachycardia (97%)⁠

Presyncope (94%)⁠

Headache (94%)⁠

Difficulty concentrating (94%)⁠

Nausea (90%)⁠

Shortness of breath (88%)⁠

Palpitations (87%)⁠

Memory problems (87%)⁠

Muscle pains (84%)⁠

Foot coldness (84%)⁠

Stomach pains (83%)⁠

Muscle weakness (83%)⁠

Hand coldness (82%)⁠

Chest pain (79%)⁠

Bloating (79%)⁠

Tremulousness (78%)⁠

Hand tingling (76%)⁠

Blurred vision (75%)⁠

Low blood pressure (71%)⁠

Constipation (71%)⁠

Diarrhea (69%)⁠

Skin flushing (69%)⁠

Frequent urination (68%)⁠

Foot tingling (67%)⁠

Dry mouth (66%)⁠

Hand numbness (65%)⁠

Dry eyes (60%)⁠

Foot numbness (58%)⁠

Syncope (36%)⁠

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Source: onlinelibrary.wiley.com/doi/10.1111/joim.12895

#Dysautonomia #POTS

My friend and I host a Podcast called Creative Copes. It’s a labor of love- for ourselves, our own journeys and the compassion for others. We hope it becomes an aid for people in similar situation as us. We also have this idealistic approach of trying to end stigma and raise awareness about these conditions life has thrown at us by openly talking about them.
We set out to share our personal stories and how we creatively cope; with humor and with sprinkles of scientific studies that we have looked up.

We want YOU to feel less alone.
Honestly, we all want to feel less alone on this windy road that’s is chronic illness.

You can find us on Instagram @ creative.copes and on any listening platform just search up the name. Listen in, subscribe and message us. We would love some conversations with like-minded people.
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#Podcast #ChronicIllness #ChronicPain #Pain #Fibromyalgia #MyalgicEncephalomyelitis #Agoraphobia #Anxiety #SocialAnxiety #CopingTips #Endometriosis #MentalHealth #spinalinjury #OccipitalNeuralgia #Dysautonomia #ChronicVestibularMigraine #Migraine #Community #Disability #youarenotalone #Spoonie #SpoonieProblems #spoonielife #CheerMeOn

We are two friends both with chronic and mental illness, who decided we wanted to bring to the forefront, and open up real conversations about, how we are coping with our diagnosises. We use humor, personal experiences and scientific studies with what can potentially help; has helped; and what we are willing to try to stay sane in the midst of what we’ve been saddled with by life.
We’re also doing this to try to end stigma, raise awareness as well as discourage toxic positivity and ableism to take more root in society.

We would love your support and also your input on what coping skills you all use- join the conversation! Follow us on instagram @ creative.copes and on your favorite listening platform and comment away! The more we talk, the more mainstream it will become.
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#keeptalking #jointheconversation #jointhefight #RealTalk #EndTheStigma #Raiseawareness #MentalHealth #physicalhealth #Ableism #Toxicpositivity #copingstrategies #CopingTips #beyourownadvocate #ChronicIllness #ChronicPain #ChronicMigraines #ChronicVestibularMigraine #Fibromyalgia #GeneralizedAnxietyDisorder #SocialAnxiety #Agoraphobia #Dysautonomia #CrohnsDisease #Endometriosis #RaynaudsPhenomenon #MyalgicEncephalomyelitis #ChronicFatigue #OccipitalNeuralgia #wecandothis #LetsDoThis