ERVISIT

I have CP, that's a reality I'm pretty okay with. However I ended up in the ER twice (Thursday and Friday). I suddenly started retaining urine and was in a lot of pain (as in I'd rather repeat my leg/foot surgery before revisiting that hell). The only answer was a slight UTI. I've had a UTI before and it was nothing like that. The doctor ordered an MRI to rule out spinal cord injuries. Everything was thankfully normal, but still no clear answers. The working theory is that there was something likely CP related that caused neurogenic bladder and then the UTI followed.
I'm now stuck with a Foley until I can get into the urologist and then hopefully figure out the cause.
I know I have a lot to thankful for--not having a spinal injury or a tumor--but that doesn't fix it. I'm miserable and upset and would like to punch something. I'm also scared that this signals some sort of permanent change coming.

Today I had to go to the ER, went to dentist Monday they gave me Amoxicillin because I have an infection in my face ever since my throat has been sore and swollen so do tells me to go. I get there I’m all excited even tho pain is through the roof a new friend with lupus recommend I go there everyone’s great even the ER, doc comes in we’re talking I’m telling him what’s wrong and he goes well why are you here? I tell him my doctor told me to come in and he says they wouldn’t see you I’m like no they said ER guy with the big degree🙄, he’s like well let’s get some bloodwork so they did that and after a pretty short wait time he’s like my labs were fine, so I question him like I know my body somethings not right annoyed I’m sure he’s like let’s get urine that comes back unusually quickly too he says I have a urine infection doesn’t say specifically I’m thinking forget it I’ll read the paper work, ITS NOT THERE so I’m gonna call and have my doctor request everything tomorrow morning #Lupus #ER #ERVISIT #Annoyed #tired #CVID #CommonVariableImmuneDeficiency