Essential Thrombocythemia

Create a new post for topic
Join the Conversation on
Essential Thrombocythemia
159 people
0 stories
5 posts
About Essential Thrombocythemia Show topic details
Explore Our Newsletters
What's New in Essential Thrombocythemia
All
Stories
Posts
Videos
Latest
Trending
Post
See full photo

Insomnia

I suffered from insomnia for the last two nights and this little kitty was lying right next to me, making biscuits on my arm, trying to calm me down. Such a little angel! His name is Mattie. #Fibromyalgia #Arthritis #EssentialThrombocythemia

Most common user reactions 43 reactions 13 comments
Post

Exhausted of ups and downs

My platelets go up and down along with red platelets. Now I am normal again till the next blood work in 6 months for the 10,000 time. It’s been 3 years of up and downs. Family dr sent me to an oncologist and does every time. Oncologist always says the same thing it’s not that high yet. What exactly can I do if anything. No meds for it yet.

#EssentialThrombocythemia

Most common user reactions 1 reaction 1 comment
Post

ESSENTIAL THROMBOCYTHEMIA

Have just been diagnosed with ET after several months of fatigue, brain fog, weight loss, enlarged spleen...you name it, I have it. Anyone else have extraordinary symptoms with ET?
#MyeloproliferativeNeoplasms

Most common user reactions 1 reaction 8 comments
Post

Anyone dealing with ESSENTIAL THROMBOCYTHEMIA?

Was just diagnosed with this after several months of progressively worsening symptoms. Finally found an oncologist who did some genetic blood work and bone marrow biopsy and confirmed.  My symptoms are more exaggerated though, compared to normal ET.  Numbness, fatigue, brain fog, insomnia (unless I take Xanax).  And it seems to be getting progressively worse.