Myeloproliferative Neoplasms

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Myeloproliferative Neoplasms
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    Matt B
     • 
    @mb62
    January 9, 2020

    Little victories


    Took a shower and made it to work. Hoping I can make it the whole day. #MyeloproliferativeNeoplasms

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    Matt B
     • 
    @mb62
    January 7, 2020

    ESSENTIAL THROMBOCYTHEMIA

    Have just been diagnosed with ET after several months of fatigue, brain fog, weight loss, enlarged spleen...you name it, I have it. Anyone else have extraordinary symptoms with ET?
    #MyeloproliferativeNeoplasms

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    Story
    Julie D
     • 
    Rare Disease

    My Experience Navigating an 'Invisible' Disease

    For as long as I can remember, I have been an adventure seeker – whether I was riding mountain bikes cross-country or skiing each winter, I was constantly on the hunt for a new and exciting experience. However, when I was in my 20s, I found myself getting easily winded from doing the same activities [...]
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    Maddie Flickinger
     • 
    @maddieflickinger
    April 28, 2019 Sent from app

    I’m a high school student with a rare chronic blood cancer and need advice on how to navigate both public high school and my health. Any thoughts?


    #RareDisease #MyeloproliferativeNeoplasms

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    Maddie Flickinger
     • 
    @maddieflickinger
    April 25, 2019 Sent from app

    I made it though a school day!

    It’s been getting harder and harder to make it to high school and be successful since my chronic illnesses keep getting worse but I made it today and even though I’m drained and feel really poorly afterwards I’m proud of myself for pushing through and getting things done!
    #CheerMeOn #ChronicIllness #MyeloproliferativeNeoplasms #RareDiseases

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