Myeloproliferative Neoplasms

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Immunity

Hi all!
I’m new here, I’m 28 and newly diagnosed with ET (about 2 months now, if that). Im JAK2 positive and so far my platelet count is relatively low (around 700) so I’m only taking aspirin, but I have had high white cell counts previously.
I don’t have a great support team at the hospital and my GP dosent work weekends, because NHS.

But I have an urgent question I am hoping the mighty community might be able to help me with. We have a 6 year old in the house who woke up spotty… it’s the pox, without a doubt. She’s all over me like a… well chicken pox rash usually, so I’m not a low risk household member.

I had chicken pox at her age, I remember my grandmother trying to scrub the spots off me!

But do I need to get myself the shingles vaccination? IG? Do I need to be contacting my haematologist or GP for antivirals just incase? How worried should I be about my immune system? Or am I totally overthinking this?

Pic of my sisters gato for tax!
#MyeloproliferativeNeoplasms
#immunity #chickenpox

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tamitoo

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Blood Cancer

Living My Life With a Rare Blood Cancer

NewAs a single mother and licensed mental health professional, I once spent time helping my patients through challenges, along with playing softball or volleyball with my family and friends. In 2011, these activities were brought to a standstill when I began experiencing severe migraines, leaving me bedridden for days and unable to lift my head [...]

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Saints67

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@saints67

MightyTogether 1y

I'm new here!

Hi, my name is Saints67. I'm here because I have a rare, chronic blood cancer. I was diagnosed in 2000. I'm here for support and distraction. I also have severe Scoliosis, which complicates my level of activity. Thanks for this opportunity!

#MightyTogether #MyeloproliferativeNeoplasms

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L star

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@laurastar

MastCellActivationDisorder 2y

Needing a Mast Cell Treatment Center… Any Ideas?

Does anyone know the best place to go to get treatment for mast cell disease? Anywhere. I’m in awful shape and really need help but can’t get proper treatment so far.

#MastCellActivationDisorder #MastCellDisease #MultipleChemicalSensitivity #Systemicmastocytosis #MyeloproliferativeNeoplasms #ChronicMyeloproliferativeNeoplasms

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Matt B

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@mb62

MyeloproliferativeNeoplasms 5y

Little victories

Took a shower and made it to work. Hoping I can make it the whole day. #MyeloproliferativeNeoplasms

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MyeloproliferativeNeoplasms 5y

ESSENTIAL THROMBOCYTHEMIA

Have just been diagnosed with ET after several months of fatigue, brain fog, weight loss, enlarged spleen...you name it, I have it. Anyone else have extraordinary symptoms with ET?
#MyeloproliferativeNeoplasms

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My Experience Navigating an 'Invisible' Disease

Julie D

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Rare Disease

My Experience Navigating an 'Invisible' Disease

For as long as I can remember, I have been an adventure seeker – whether I was riding mountain bikes cross-country or skiing each winter, I was constantly on the hunt for a new and exciting experience. However, when I was in my 20s, I found myself getting easily winded from doing the same activities [...]

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RareDisease 6y

I’m a high school student with a rare chronic blood cancer and need advice on how to navigate both public high school and my health. Any thoughts?

#RareDisease #MyeloproliferativeNeoplasms

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CheerMeOn 6y

I made it though a school day!

It’s been getting harder and harder to make it to high school and be successful since my chronic illnesses keep getting worse but I made it today and even though I’m drained and feel really poorly afterwards I’m proud of myself for pushing through and getting things done!
#CheerMeOn #ChronicIllness #MyeloproliferativeNeoplasms #RareDiseases

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