Myeloproliferative Neoplasms

Hi, my name is Saints67. I'm here because I have a rare, chronic blood cancer. I was diagnosed in 2000. I'm here for support and distraction. I also have severe Scoliosis, which complicates my level of activity. Thanks for this opportunity!

#MightyTogether #MyeloproliferativeNeoplasms

Does anyone know the best place to go to get treatment for mast cell disease? Anywhere. I’m in awful shape and really need help but can’t get proper treatment so far.

#MastCellActivationDisorder #MastCellDisease #MultipleChemicalSensitivity #Systemicmastocytosis #MyeloproliferativeNeoplasms #ChronicMyeloproliferativeNeoplasms

Took a shower and made it to work. Hoping I can make it the whole day. #MyeloproliferativeNeoplasms

Have just been diagnosed with ET after several months of fatigue, brain fog, weight loss, enlarged spleen...you name it, I have it. Anyone else have extraordinary symptoms with ET?
#MyeloproliferativeNeoplasms

#RareDisease #MyeloproliferativeNeoplasms

It’s been getting harder and harder to make it to high school and be successful since my chronic illnesses keep getting worse but I made it today and even though I’m drained and feel really poorly afterwards I’m proud of myself for pushing through and getting things done!
#CheerMeOn #ChronicIllness #MyeloproliferativeNeoplasms #RareDiseases