Myeloproliferative Neoplasms

Donna, a retired speech-language pathologist and public-speaking teacher who has been living with polycythemia vera (PV), a rare, chronic blood cancer known as a myeloproliferative neoplasm (MPN), joins Peg Squier, M.D., Ph.D., Group Vice President, U.S. Medical Affairs at Incyte, to discuss her journey with PV since diagnosis. Tune in as they share advice for patients who are looking for new options to help manage their MPN and the importance of being an advocate.

🎧 Listen In: open.spotify.com/episode/5iP0iTOiqoHwIl3YF58HwI

This episode of The Mighty Podcast is sponsored by Incyte.

#PolycythemiaVera #BloodCancer #Cancer #MyeloproliferativeNeoplasms #ChronicIllness #RareDisease #MPNs

Hi all!
I’m new here, I’m 28 and newly diagnosed with ET (about 2 months now, if that). Im JAK2 positive and so far my platelet count is relatively low (around 700) so I’m only taking aspirin, but I have had high white cell counts previously.
I don’t have a great support team at the hospital and my GP dosent work weekends, because NHS.

But I have an urgent question I am hoping the mighty community might be able to help me with. We have a 6 year old in the house who woke up spotty… it’s the pox, without a doubt. She’s all over me like a… well chicken pox rash usually, so I’m not a low risk household member.

I had chicken pox at her age, I remember my grandmother trying to scrub the spots off me!

But do I need to get myself the shingles vaccination? IG? Do I need to be contacting my haematologist or GP for antivirals just incase? How worried should I be about my immune system? Or am I totally overthinking this?

Pic of my sisters gato for tax!
#MyeloproliferativeNeoplasms
#immunity #chickenpox