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Deep breaths 💖

Take a moment and think of how you would treat your best friend on their worst day.

Now treat yourself like that 💕💕💕

You Are Worth Time and Care! You Are Worthy of help! You deserve contentment and joy! Happiness is for you!!

Please take care of yourself ❤️
You know your struggles and troubles best- you also know your favorite things in life 😉
Plan some good things you can look forward to each day, each week, and each month.

Looking forward to life and living is easier when you are excited for something good you know is in the future.

Gentle hugs ✨️ You are Mightier than you realize!

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Headache #Insomnia #Lupus #Lymphedema #MightyTogether #MentalHealth #MemoryLoss #Migraine #CheerMeOn #RareDisease #SuicidalThoughts #Scoliosis #ShinSplints #musclespasms #PosturalOrthostaticTachycardiaSyndrome #Psoriasis #PTSD #plantarfasciitis #PanicAttacks #PanicAttack #PsoriaticArthritis #Psychosis #RheumatoidArthritis

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We all have these times in our lives. Many are no doubt in this same place right now too.

I was there for almost 2 decades. Not including the 13 years I suffered in pain, alone before. I found peace in my religion as I purposely put one foot in front of the other, often not literally as my body quit on me in ways no doctor understood.

Finally a two months ago I got a rheumatologist who understood and was intelligent and not just guessing. And he wasn't going to give up like the rest of them. And then I finally got a pain doctor who wasn't terrified of medicine and at long last I got the REAL dose I needed. It has been such a long time coming!

So trust that life has things in store that others say will never happen. Trust! Have faith! Dare to dream and hope!
Become the exception, someone who doesn't settle and fight on for that happiness!

When I first found this forum I posted about how I was in so much pain I wanted to die. And in a response from a friend, one who I looked up to and still do, he said: what if tomorrow they come up with a treatment or cure for your condition?? Wouldn't you wish you held on until then?

Life is better when we hope. We live better when we hope!
Don't settle dear Mighty friends. Things will improve, you just have to give time, time.

In the scriptures there is a story of a man who suffers unable to walk for 38years. And then Christ heals him.
I can't help but think how very hard it would be so long ago to exist like that. Nowadays we have running water, toilets, walk-in showers and baths with hot water. We have refrigerators and food that we can buy pre-sliced. We have cars and various Taxi options. We have online shopping and dollar stores! And snack foods that stay good for a long while.

Even in bad health and struggles, we are very blessed. Think of your ancestors who no doubt had problems that you have but no name to put to it, perhaps like yourself. The world is more understanding even if they don't truly understand it all.

You, dear Mighty friend, have good things that pass your way. Open your eyes to them! Allow them to carry you on your way as time passes and even better things at last find you as you so very much deserve ✨️
Hold on! ❤️ each day brings you ever closer ❤️

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #bedbound #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #BoneSplints #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Headache #PosturalOrthostaticTachycardiaSyndrome #Insomnia #Lupus #Lymphedema #MightyTogether #MentalHealth #MemoryLoss #Migraine #CheerMeOn #PTSD #Psoriasis #PanicAttacks #PanicAttack #Psoriasis #PsoriaticArthritis #plantarfasciitis #RareDisease #RheumatoidArthritis #AnkylosingSpondylitis #SuicidalThoughts #Scoliosis #ShinSplints #Upallnight #musclespasms

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When I had to face going through constant excruciating pain, I was only 13, and then 15 when I had to go through waist-down reconstruction surgery.

Obviously it dramatically affected everything. And a year after I began experiencing early arthritis among a few other things. EDS I have always had and I faced horrible pain all the time though I thought it was normal. I always got compliments and awe for my strength though I didn't know any other way to be.

I came across this quote and it gave me new strength to pull from. While going through almost two years in a wheelchair I had lots of panic attacks with a terrible fear that I would never walk again.

No one knew how to help me. All the adults around had never faced anything slightly like my surgery or pain of trouble walking or even physical therapy after school.

I was the one that brought that singular understanding. And as the years followed I am the one people talk to when a decade or so later those adults or kids I knew and know now start to face challenges that involve health.

I have also been able to bring a strong understanding to kids who went on to become doctors who actually care!

And all this because I recognized that life brings unexpected challenges, but that doesn't mean we have to be hunched over struggling to handle it. We can stand up and choose to choose these challenges because we understand them and get help in handling these burdens bad health brings.
We don't have to fight alone.

Raise your voice! Fight for that better life and proper help and care!

Fight to better yourself as you bide your time, being ready for when good things come your way.

Have the Audacity to Hope!

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #bedbound #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #HypothyroidismUnderactiveThyroidDisease #Insomnia #Grief #Lupus #Lymphedema #MightyTogether #MentalHealth #MemoryLoss #PosturalOrthostaticTachycardiaSyndrome #Psoriasis #PTSD #Psoriasis #PsoriaticArthritis #PanicAttack #PanicAttacks #plantarfasciitis #RareDisease #SuicidalThoughts #RheumatoidArthritis #Scoliosis #ShinSplints

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The Best Natural Alternatives to Joint Replacement Surgery

Part 1 of 2 Joint replacement surgery is a common solution for severe joint pain. However, due to the risks and recovery time associated with surgery, many patients are interested in natural alternatives. This guide delves into various options that offer pain relief and improved joint health.

Understanding Joint Health and Causes of Deterioration

Joints, comprising cartilage, synovial fluid, ligaments, and tendons, facilitate movement and bear weight. Deterioration can result from osteoarthritis, rheumatoid arthritis, injuries, and wear and tear. There are many natural treatments that can prevent or delay the need for joint replacement. This article lists 19 helpful strategies.

Dietary Approaches and Nutritional Supplements for Joint Health

Joint inflammation is common across arthritis types. Adopt an anti-Inflammatory diet rich in fruits, vegetables, fatty fish (salmon, trout, etc.), and olive oil. These foods help reduce inflammation, with extra-virgin olive oil acting similarly to anti-inflammatory drugs like ibuprofen: Avoid inflammatory foods high in omega-6 fatty acids (corn, sunflower, soybean oils), sugary items, and red meat. These can worsen joint inflammation. Some individuals with RA benefit from eliminating gluten-containing grains.
Glucosamine and Chondroitin Essential for cartilage health, glucosamine helps build cartilage, while chondroitin provides elasticity. Studies show they may reduce pain and slow deterioration in osteoarthritis. However, they can interact with blood thinners and affect glucose levels.
Chronic joint pain often involves inflammation. Omega-3 fatty acids, turmeric and ginger have shown anti-inflammatory effects and can complement other treatments. Other helpful supplements include selenium, folic acid, vitamins C, D, B6, B12, E, calcium, magnesium, and zinc.
Weight management: Excess weight puts additional stress on joints. Losing even a small amount can significantly improve pain and function.

Topical creams and gels: These can include those that contain CBD, essential oils or homeopathic ingredients.
Hot and cold therapy: Applying heat packs for muscle tension and cold packs for acute pain can be helpful.

Get Adequate Rest

Prioritize adequate sleep. When entering sleep, the brain signals the release of large amounts of growth hormones. Hormones such as Human Growth Hormone (HGH) and testosterone are responsible for building new proteins to replace damaged ones in muscle, tendon, ligament, and bones. Hormone levels are highest during sleep and, as a result, the majority of repair occurs at night.

Manage stress because chronic stress slows healing and cellular repair and reduces natural levels of anti-inflammatory cortisol.

Helpful therapies include:
Cognitive Behavioral Therapy (CBT): Replaces fear-triggering thoughts with calming ones.

Meditation and Relaxation Techniques: Redirects attention from worries and promotes calmness.
Biofeedback: Measures and teaches patients to control physiological responses to stress.
Trauma Resolution Techniques: Resolves past traumas and reduces stress. Includes energy psychology, EMDR and somatic experiencing.

Physical Therapies and Exercises

Physical Therapy (PT):  PT

aims to strengthen muscles, increase flexibility, and alleviate pain. Customized exercises can improve mobility and reduce the need for surgery.
Targeted Exercises and Yoga: Exercise helps lubricate joints. Low-impact exercises like swimming and cycling minimize joint stress. Yoga improves flexibility, strength, and balance, and is beneficial for joint health.

Alternative Therapies

Massage Therapy: Massage can improve circulation, reduce stiffness, and promote relaxation, beneficial for joint pain relief.
Acupuncture: Acupuncture is used for chronic pain, including joint issues, with many patients reporting significant relief
Red/infrared light therapy: Reduces pain and inflammation and promotes tissue repair.
Pulsed Electromagnetic Field Therapy (PEMF): Uses electromagnetic fields to increase circulation, reduce inflammation and stimulate cellular repair and regeneration, resulting in pain relief and improved functionality.

Regenerative Medicine Techniques

Stem Cell Therapy Involves injecting stem cells directly into the affected joint. It can enhance the natural repair process by providing a fresh supply of stem cells to the damaged area, supporting tissue repair and regeneration. Stem cell therapy for joint conditions is still under extensive investigation. Efficacy, optimal treatment protocols, and long-term outcomes are areas of ongoing investigation. Be sure, if you are pursuing this option, that you are seeking care from highly regarded healthcare professionals.
Platelet-Rich Plasma (PRP) Therapy: PRP therapy involves injecting concentrated platelets to promote h

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Fighting against a lot

Psoriatic arthritis in my spine my hands and fingers my left wrist my left collar bone which is badly eroded my left hip two types of psoriasis guttate and plaque which appears on my chest my torso my legs raynauds phenomenon in my hands I do struggle to stay warm I have scoliosis on my spine which basically my spine does not run in is correct shape thus causing a left lumbar muscle imbalance which causes untold lower back pain I have Chiari malformation type1 and syrinxes one at C2 then one at C6/C7 which goes all the way down my thoracic spine to the top of my lumbar spine at C6/C7 I have a bilateral herniated disc which is pressing down on a nerve that runs through my (left hand side ) through my upper back through my left shoulder blade over my left shoulder down my arm all the way down to my fingertips because its bilateral even if use my right arm it can send the most breathtaking horrific stabbing burning nerve pain all the way from my neck to my fingers if the muscles in my neck tighten then releases nerve pain that is like a lightning bolt of nerve pain that shoots through the side of my left neck through the side of left skull behind my left ear through my left temple and behind my left eye I once had 17 of these in one day the first nearly through me off my feet I take meds for the pain but they sometimes work other times they don't nerve can not be totally brought under control I also get nerve just under my skin as the dermatomes get aggravated this is a horrible burning stinging pain where I can't bear to even touch my skin I have cubital tunnel syndrome on my left arm I had a fall from 11feet in May fracturing T12 and my Sacrum I recovered from this only to have someone slam into the back of our car not our fault they claimed liability next day the muscles in my whole back slammed tighter than safe which has increased all of my preexisting conditions and fractured vertebrae this has weakened my hip muscles from the top of my hip bone through my buttocks then September my breathing became laboured so only shallow breaths doing anything even slightly physical was enough to have me gasping for breath I left it which is not normally me as I am proactive about my health middle of November I decided to go and seek medical advice from my doctor who ran blood tests then more blood tests then more blood tests I kid you not my blood pressure was taken which was high in the 180 over 111 mark whilst awaiting my results I decided to have a shower which was tiring enough getting dried wore me out totally I came downstairs just in my underwear to sit on my settee to get my breath back just as I did there was a knock at the door which I answered it was our window cleaner wanting his money which was upstairs I stupidly tried to take them faster than I normally would so by the time I got upstairs I was really gasping for breath I grabbed his money and went back downstairs to my living room to find a £1.00 coin I went back to the front door my head started spinning my legs were giving way then crash I hid the cupboard door under our stairs the bang give me a startle I reached my front door handle and pulled my self up the window cleaner was beside himself I give him his money then went to my living room really really struggling to get my breath a tight band around the middle part of my chest I lay there just calming myself down my wife was out so I phoned 111 to ask for advice answered their questions next thing I am being asked to do is get my wife to come back home as I was going to be Bluelighted by ambulance to hospital paramedics arrived done their tests then 8 hours later after more blood tests and a chest Xray I was allowed to go home next day I got my results my gp ordered an ultrasound on my abdomen to take a look at my liver,gallbladder kidneys and pancreas they all checked out fine my doctor said your triycigcerides were 11.85 which is deemed very high my SLT levels were in the 200s which is extremely extremely high I also had hemolytic anemia which is when your bone marrow is not producing enough normal blood cells that contain oxygen and B vitamins my bone marrow was producing large abnormal blood cells which do not have much oxygen or B vitamins more blood tests were taken even one for lymes as I had been bitten by a tick during the summer this came up negative I was advised to come off one of my meds which may have built up to toxic levels in my liver I then had some repeat blood tests plus ten more the wife was with me this time and was astounded I was asked to monitor my blood pressure for 1 week whilst also starting on blood pressure meds when I had been in the hospital my blood pressure was 202 my blood pressure has been all over this week one of them reading 122/111 while my pulse was 98 I wanted to test a theory by going upstairs a couple of times the theory was is that I was not getting enough oxygen through my system its all up in the air at the moment until I hand in my blood test results I know this site is about depression and anxiety but having all of the above just makes it 10 times worse I also have a formal diagnosis of PTSD I am down to get CBT but guess what this is only part of my story if you want to know moPsoriatic arthritis in my spine my hands and fingers my left wrist my left collar bone which is badly eroded my left hip two types of psoriasis guttate and plaque which appears on my chest my torso my legs raynauds phenomenon in my hands I do struggle to stay warm I have scoliosis on my spine which basically my spine does not run in is correct shape thus causing a left lumbar muscle imbalance which causes untold lower back pain I have Chiari malformation type1 and syrinxes one at C2 then one at C6/C7 which goes all the way down my thoracic spine to the top of my lumbar spine at C6/C7 I have a bilateral herniated disc which is pressing down on a nerve that runs through my (left hand side ) through my upper back through my left shoulder blade over my left shoulder down my arm all the way down to my fingertips because its bilateral even if use my right arm it can send the most breathtaking horrific stabbing burning nerve pain all the way from my neck to my fingers if the muscles in my neck tighten then releases nerve pain that is like a lightning bolt of nerve pain that shoots through the side of my left neck through the side of left skull behind my left ear through my left temple and behind my left eye I once had 17 of these in one day the first nearly through me off my feet I take meds for the pain but they sometimes work other times they don't nerve can not be totally brought under control I also get nerve just under my skin as the dermatomes get aggravated this is a horrible burning stinging pain where I can't bear to even touch my skin I have cubital tunnel syndrome on my left arm I had a fall from 11feet in May fracturing T12 and my Sacrum I recovered from this only to have someone slam into the back of our car not our fault they claimed liability next day the muscles in my whole back slammed tighter than safe which has increased all of my preexisting conditions and fractured vertebrae this has weakened my hip muscles from the top of my hip bone through my buttocks then September my breathing became laboured so only shallow breaths doing anything even slightly physical was enough to have me gasping for breath I left it which is not normally me as I am proactive about my health middle of November I decided to go and seek medical advice from my doctor who ran blood tests then more blood tests then more blood tests I kid you not my blood pressure was taken which was high in the 180 over 111 mark whilst awaiting my results I decided to have a shower which was tiring enough getting dried wore me out totally I came downstairs just in my underwear to sit on my settee to get my breath back just as I did there was a knock at the door which I answered it was our window cleaner wanting his money which was upstair

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Feeling Useless 😔#Fibromyalgia #MentalHealth #ChronicPain #ChronicFatigueSyndrome

I’m feeling terribly useless today. It kind of began yesterday when someone made it comment to their friend about my wheelchair and how I can be ambulatory. Then my evil OCD voice started saying to me that I’m not trying hard enough, that I’m a loser and that I have given up on myself. I haven’t given up on myself…why on earth would I bother to get a chair if I’ve given up?
And then this morning we went to visit my Grandfather whose a 100 this year. And while I was in town I thought I’d stop and pay for the new backrest I bought for my chair (because the one I have is terrible) and for fun we stopped at Staples.
I wanted to check out things longer but I couldn’t because I had to walk around and I became dizzy and my pelvis was causing a lot of pain…and I just wanted to cry.
I wanted to cry because outwardly I look so well and inwardly I feel like a train wreck. In five months I’ve had to accept a lot of old realities that I’ve never fully admitted to myself…which is I’m in pain ALL the time and I’m cracking up. It’s messing with me emotionally and now that I have to live with the misunderstanding of what an ambulatory wheelchair user is…from others I feel afraid of people. Most people are nice but I live in a tourist trap and I’m scared of strangers during the summer. I’m afraid to go for coffee, to go to the store…even when now I can!
I bought a big sticker for my new seat saying “Ambulatory Wheelchair Users Exist” and to be honest I’m not sure if I will be that ambulatory in the future. That’s why I began this chapter of my life…to get ahead of the inevitable which will be eventually arthritis in my pelvis. I feel defeated, depressed and physically useless to myself and everyone else.
Of course I’ll keep fighting! But today just made me realise how bad things have gotten for me and I’m just discouraged.
Tomorrow is Sabbath and so I hope to have a good Sabbath and keep focusing on Jesus. His comfort was with me all day today.
Take care my Mighty Friends and stay Mighty! 😌

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Well the Hydroxychloraquin isn't doing much for the arthritis, but it sure made the plantar warts on my feet come back 😮‍💨 #RheumatoidArthritis #immunosuppressed

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