Arthritis

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I'm new here!

Hi, my name is PapyrusPoet. I'm 70 years old and retired. I left the big city six years ago and moved back to the town where I grew up. I was a director and actress for 30 years before my need for insurance led me to full-time work.I'm here because (1) I was raised by emotionally immature parents which left me with CPTSD, (2) I was just recently diagnosed with ADHD, and (3) a near-deadly motorcycle accident 45 years ago led to many problems/surgeries over the years and the resulting chronic pain has been accelerating as I age.

#MightyTogether #ADHD #ChronicPain #Trauma #Depression #Anxiety #Arthritis

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Setback Day?

I had a really bad setback today. I got really depressed, and didnt have a reason for feeling so hopeless. I felt inconvenient, and lonely, even though no one said or did anything. And no one needed to. Healing isnt linear, and I know I'm going to have flare ups(whether that be POTs, Arthritis, or just depression), no matter how much prevention I do. And it's hard to deal with, but it didnt ruin my day, or up-end my progress. Instead I went out, and did something fun. I still feel kinda bad, but I know it's just a little road block. I dunno.

#POTS #AutonomicDysfunction #MentalHealth #Depression #Arthritis #AnkylosingSpondylitis

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Been here for years, but lost you when I changed emails. So glad to be back because I’m crumbling like never before. Lifetime dealing with mental illness, BPD, PTSD, anxiety, chronic depression, agoraphobia, panic disorder, dissociative amnesia, and the list keeps accumulating. LOL. But now, my health issues with chronic pain have caught up to me in my suddenly becoming old! Don’t know where it came from. I went from 35 years old to 65 years old in 10 minutes!, Wow… my spine is crumbling from arthritis. Just had spinal fusion and now have spinal stenosis added to everything else in my spine. Have chronic pain syndrome. Trying a new type of THERAPY at Cleveland Clinic to manage my pain through my brain. My brain is not cooperating so well. I’m on an 18 month. Waiting list to get ketamine. Which would be awesome because my Medical Marijuana is absolutely astronomical and cost. Beyond disability, it’s costing my sister of fortune!!! Don’t know how they can take away your pain medicines without insurance covering the only alternative they give you. Such a sin. Anyway, to top it all off, MY Psychologist of 30 years (Retired) seven years ago. Haven’t found anyone since her. And five years ago, my sister Jean, my best friend in the whole world, passed away after I took care of her 24 seven for two years. My heart died the day she did and it will never return. I feel so isolated and lost and alone and lonely and I miss her more than life itself. All I can think is, she promised to take me with her and she didn’t!!! I don’t know how to exist without her. All this depression and grief is only making my bodily physical pain worse and worse. I’m spinning in a cycle but I cannot get out of. God I could use your friendship. Just listening to your stories will make me feel not so alone. Thank you for including me.

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I'm new here!

Hi, my name is Sharon222. I'm here because I have chronic fatigue and fibromyalgia, and my close friend has arthritis and osteoporosis, and will be in a wheelchair, we are both grieving and looking for ways to live like this.

#MightyTogether #Grief

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i haven't dated in over 15 years. About 6 of those years were due to school. But when I was ready to date, I couldn't find anyone. Every man that I have ever met on a dating site leaves when I disclose that I have arthritis- 100% of them. I never even get to the lymphedema part. The arthritis alone sends them running away. I had accepted that I would never date again in the past, but lately, I think about it. The last man I met online I fell very deeply for but he was a scammer and that was even before I got sick. Usually I'm positive about life, but lately it's been very hard to be.

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The legacy of hypermoble joints, looking back

I am 68. The best clinical advice I want to pass on is to do the joint surgeries while you’re still physically strong, do not follow the old advice to wait until you can’t tolerate the joint pain. I am so fortunate to have a great team from a physical trainer, my physical therapist, my various physicians, my psychiatrist etc. living near medical schools & teaching hospitals helps. my orthopedic surgeons are my best friends, and pain management physicians are on speed-dial. The last four years with a personal trainer has helped me to be stronger and more physically adept then I was at 30. Even though I didn’t break bones in my constant casual falls over the years, at this age I needed to stop falling. Now, those lovely, super flexible joints have significant osteoarthritis. the medial meniscus in both knees were removed when I was 20, with the predictable deterioration overtime. my left knee replacement last August has gone very well, and I’m actually looking forward to the right knee replacement next month. have you heard of reverse shoulder replacements? I have and I have two scheduled down the road. so about 18 months of joint replacement surgeries ahead of me. However, from other perspectives, life is better than ever. But I will keep on top of the steroid injections for the arthritis in my thumbs….

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