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    Have you tried acupuncture for back pain? #BackPain #Depression #Anxiety

    I have arthritis in my lower back that is pinching a nerve. It has been an over 2 year journey of finding a way to treat it. I’ve tried pt, injections, hot and cold packs, all kinds of meds and the insurance has turned me down to try ablation. I’m losing hope!! I think I’ll try acupuncture because I don’t know what else to try. Do you have experience with acupuncture?

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    I’m new to The Mighty and just wanted to share my story #

    I’m here because I’m seeking support from others who understand the struggles of living with chronic illness and pain. I’ve had migraines and headaches since my 20’s and I’m now 52. Then in my mid 40’s when I was finally working my dream job I got the flu and everything changed. I developed a host of strange symptoms that never went away and that in most cases doctors have never been able to explain or treat: taychicardia, heat sensitivity with profuse sweating, fever of unknown origin, chronic fatigue. As the years went on I developed more and more issues and the existing ones got worse. I have a headache pretty much every day of my life to some extent from nuisance up to full blown down in bed sick migraine. I have arthritis in my L4,L5 S1, I have now developed arthritis in both knees making walking painful which has lead to me putting on a lot of weight and the weight makes the knee and back pain worse so that’s a circle, I have stomach and intestinal issues that at one point we’re misdiagnosed as gastroparesis but have since been classified as functional Dyspepsia and IBS. I also suffer from Major Depressive Disorder, Anxiety Disorder and PTSD. Those are worsened by my health issues and that too is a viscous cycle. At one point I was taking over 25 different medications including opioids for the pain which in turn created even more issues. I’m now down to just seven prescriptions and several supplements but I’m having so much difficulty dealing with my chronic pain. OTC pain reliever doesn’t make a dent. I use STEM, have done chiropractic, massage, PT and acupuncture and while the regular massage did seem to help my husband lost his job at the end of January so not only do we not have insurance right now but there’s no way we can afford to self pay. I have a new neurologist who’s amazing, the best one I’ve ever had, and I do get Botox injections for my migraines, but I’ve tried pretty much every rescue medication on the market and nothing has worked. I did have good success with Elyxyb but then my insurance decided to take it off the formulary and now I’m without insurance altogether and that drug isn’t available as a generic and there is not way to afford it with no insurance. I’ve looked at doing a Medicare health plan but only a portion of my many doctors accept Medicare so I’d either have to go back to the drawing board and start over with a bunch of new doctors or pay the Medicare premium and fees plus self pay for all the doctors who don’t accept it. I found this group hoping having others who would better understand my struggles would be helpful for me. My husband says I complain too much. I try very hard not to but when you are sick or in pain every minute of every day it’s very hard not to. I was becoming afraid if I didn’t find another outlet my marriage might be in jeopardy. I look forward to getting to know others here and both getting and receiving support from others who understand. Thank you.

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    Chronic pain

    #ChronicPain

    Chronic pain is any long-lasting pain. Different from acute pain, chronic pain lingers beyond the normal recovery period for illness, injury, or surgery, or happens alongside a chronic health condition like arthritis or fibromyalgia.

    Chronic pain can persist for months or even years. People suffering with chronic pain may notice their pain “comes and goes”, or they may never feel relief from their discomfort. They may also have an increased sensitivity to pain and touch.

    Chronic pain can affect your lifestyle, work, family life—your whole world, really. Some people can’t eat, can’t sleep, and can have great difficulty with even simple movement. Chronic pain can make it really difficult to enjoy life with a pain cycle that never seems to end.

    It goes without saying that it can be just as hard on family members as it is on the person suffering. Family members often feel helpless when they see someone they love in constant agony. When you suffer, your whole family suffers.

    You can refer to this:

    resiliens.com/resilify/program/dealing-with-chronic-pain-with-cbt

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    I’m new here!

    Hi, my name is Beckatha70. I'm here because I need to find some support. I need an outlet other then my husband who I know is tired of hearing about my many health issues and it’s causing problems in my marriage. I’ve been on disability since 2015 and have a bunch of different diagnosis, some of which doctors just throw their hands up at and say “I don’t know”. my husband says if the doctor has an “ist “ at the end of their title I’ve seen them. I’m working to better myself and complain less, be less negative and angry and more positive in the way I approach my disabilities.

    #MightyTogether #Anxiety #Depression #Migraine #Arthritis

    14 reactions 5 comments
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    Do I really have Fibromyalgia? #Fibromyalgia

    I was diagnosed with Fibromyalgia by my PCP a little over a year ago. I already had been dealing with anxiety & situational depression for quite a while. My PCP thinks the Fibromyalgia was triggered by my partial knee replacement surgery. I also have arthritis in my lumbar spine & had been complaining about weakness in my legs.
    I was basically initially told by a pain specialist to exercise more in regard to the weakness & that I needed to lose some weight. I had been a relatively active person, walks with my dog, cross country skiing, snowshoeing & avid gardener. Now I felt too tired to enjoy anything & this guy was basically telling me I was lazy. Not impressed & never went back to that guy.
    Sorry, long story.
    After my knee surgery I developed excess scar tissue & had to have a second procedure. I seemed to have a lot of pain and swelling to the point that my physical therapist thought I wasn't working hard enough. Very frustrating.
    More things happened after surgery. NSAID induced colitis. I lost 40 pounds the hard way. Thankfully, that resolved. Then the arthritis in my neck flared up & it was discovered I had compression of 3 discs. This was swiftly followed by frozen shoulder which lasted over a year.
    Then partial knee replacement on the other side, more scar tissue, blah, blah, blah.
    The Fibromyalgia diagnosis came somewhere between knee surgeries.
    I think my PCP wanted a name for all my pain. There was no definitive test. I am reading now about the FM/a test. Should I ask for that or is symptomology alone enough.
    Thanks for you patience if you made it all the way to the end.
    Gentle hugs

    32 reactions 10 comments
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    Pain is hitting bad again today, a long winded rant, I apologize. TW: mention of suicide in relation to a toxic parent and mention of sexual abuse

    One other thing: there is swearing in this. If that's not for you, please move on.

    I wanna scream it hurts so bad right now. I wanna just fade away. Psychiatrist/counseling office says they support me but last week my counselor outright ignored a trigger so I told him I can no longer work with him. He also said he only does 12 sessions but gave me more. Excuse my language but how the fuck can anyone work through anything in 12 sessions? Especially when someone doesn't trust counselors? Dude outright said it's surprising I even opened up to him and then pulls this shit. Today I'm in extreme pain and mental health is declining and last week the my psychiatrists MA said they can't support me all the time, use the crisis line. Well news flash the crisis line has made me worse and has hurt me, I've called back once before a call back sobbing and the lady asks "Why did you call back early?" As I was sobbing. So yeah call a line that only gives a fuck if you're actively suicidal and willing to go to the hospital. Which I've explained to them.
    Oh and hospitals? If you want to hear extreme trauma, I'll inform you of my psych ward stay last year which my providers know about. My mom also knows and threatened to send me back to the same place. Well news flash mother you don't have power of attorney, all you can get is cops to do a wellness check who frankly won't do anything unless there's a danger, and I can get my psychiatrist to vouch I'm fine with your so called "threat" you think I did. Well guess what? That wasn't a threat at all or some stupid shit like that. I've asked people and they're confused. And I've never been a daughter to you? Well guess what you've never been a mom because I lost my mom when grandma died too because you've never been one.
    Oh and saying shit when I ask for support like "oh what do you want me to say go...." I'm not going to say the rest before I bet people can guess.
    Then you text to me say goodnight nightly like nothing is wrong. Like you did nothing. You even said you have no responsibility for anything. You even said you're confused as to how you're responsible. Remember the 6yrs of lawsuits you put me through when I begged crying not to do them against the man who molested and ****** me? Well that caused 6 additional years of trauma. And you said I had to do it for you and dad because you were hurt too. Well what about me? The one who lived through that shit? The one was relentlessly attacked by attorneys? The one who blames themselves still because you put blame on me by saying I gave you PTSD? When I wouldn't even wish this shit on him. Why am I the only one at fault here? WHY? Because you can't understand how a 15-16yo can be manipulated and groomed by a 50yo to hate their parents? Because you can't understand how it was traumatic? Well guess what I said no a couple times and learned fast it wouldn't go my way. I did say yes to a lot of things and blame myself to this day. 13yrs later.
    Then to add the cherry on top, my brother had a fucked childhood cause of me. He told me he witnessed all the arguments and had to see that. My mom told me some lady yelled at them in a store due to what happened with that man or something I said and he was there. He went to his school counselor crying why his sister was always mad at the family. And worse. Yeah I know I fucked his childhood thanks for the reminder.

    If anyone read all this, thanks and I apologize if it was triggering. I tried my best to warn people. I am struggling but trying my best and that's all I got right now. There is more to what my parents have said and done. I don't know how to handle it anymore or handle people defending them. This also doesn't cover the stuff I've been through with doctors the past few weeks or a lot of other stuff that has happened. It's been hell. My counselor seriously didn't think there'd be an emergency last Monday, and over a week later hell has just gotten a lot warmer, between the pain getting extremely worse, my parents and other things. I think I better just settle in and accept it by now. As a song from Bring Me The Horizon says: Even hell can get comfy once you've settled in.

    #CPTSD #ChronicIllness #ChronicPain #MajorDepressiveDisorder #Anxiety #Autism #Autistic #PanicDisorder #toxicparents #SexualAbuse #SuicidalThoughts #Fibromyalgia #CFS #MyalgicEncephalomyelitis #ChronicFatigue #EmotionalAbuse #Advice #help #Arthritis #MedicalTrauma #counselors #SexualTrauma #ChidlhoodTrauma

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    Do you get a “ fun hangover”?

    For those of us with multiple health conditions, there is a cost to everything we do, and often we get what I like to call the fun hangover. Do you get one and if so, what do you do to recuperate?
    youtu.be/zHcrHrCn2J8 (this is the link to my video on the topic)

    #Abunchofrarediseases
    #AddisonsDisease #PosturalOrthostaticTachycardiaSyndrome #EhlersDanlosSyndrome
    #PTSD #FunctionalNeurologicalDisorder #Migraine
    #Asthma
    #CeliacDisease #MitochondrialDisease #MastCellActivationDisorder #Trauma
    #raynauds #MentalHealth
    #Depression
    #Anxiety
    #ChronicPain
    #ChronicIllness #Disability #DistractMe #Arthritis

    48 reactions 13 comments