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What do you wish others understood more about living with Lyme disease?

Living with Lyme disease can be unpredictable, frustrating, and exhausting. Symptoms can range from chronic fatigue and pain to rashes, neurological and cognitive challenges, mental health struggles, arthritis, heart palpitations, and much more. Because many symptoms are invisible or fluctuate over time, the realities of living with Lyme disease are often misunderstood.

What do you wish others understood better about living with Lyme disease? What has been the most challenging part of your experience? What resources, treatments, or coping strategies have been the most helpful? Where do you feel you need more support right now?

#LymeDisease #ChronicIllness #MentalHealth #CheckInWithMe #ChronicPain #ChronicFatigue #Arthritis #Anxiety #Depression

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I'm new here!

Hi, my name is PurpleButterfly462. I'm here because I have several chronic illnesses the the worst is fibromyalgia. I also have arthritis, normal pressure hydrocephalus, spinal issues, and depression. I need a place with people who understand what I'm living with. I'm praying this is the place.

#MightyTogether

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Anyone have advice?

I signed up to start doing physical activities, and a new diet to help reduce my symptoms, and go travel. Sounds great on paper. Theres always a but, it feels like. My but would be: my medications arent consistent, my symptoms have been flaring up bad again, and I seriously lack motivation. I know this is good for me, steps in the right direction, but it feels so daunting. Any tips? I need help figuring out how to motivate myself. I need help telling myself that the world is not ending, and that I'm not alone. Asking for help is pretty difficult too, but these little steps I keep trying to take will hopefully work one day. So I'm asking for advice, if you've got it.

#AutonomicDysfunction #Arthritis #MentalHealth #Depression

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I'm new here!

Hi, my name is PapyrusPoet. I'm 70 years old and retired. I left the big city six years ago and moved back to the town where I grew up. I was a director and actress for 30 years before my need for insurance led me to full-time work.I'm here because (1) I was raised by emotionally immature parents which left me with CPTSD, (2) I was just recently diagnosed with ADHD, and (3) a near-deadly motorcycle accident 45 years ago led to many problems/surgeries over the years and the resulting chronic pain has been accelerating as I age.

#MightyTogether #ADHD #ChronicPain #Trauma #Depression #Anxiety #Arthritis

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Setback Day?

I had a really bad setback today. I got really depressed, and didnt have a reason for feeling so hopeless. I felt inconvenient, and lonely, even though no one said or did anything. And no one needed to. Healing isnt linear, and I know I'm going to have flare ups(whether that be POTs, Arthritis, or just depression), no matter how much prevention I do. And it's hard to deal with, but it didnt ruin my day, or up-end my progress. Instead I went out, and did something fun. I still feel kinda bad, but I know it's just a little road block. I dunno.

#POTS #AutonomicDysfunction #MentalHealth #Depression #Arthritis #AnkylosingSpondylitis

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Been here for years, but lost you when I changed emails. So glad to be back because I’m crumbling like never before. Lifetime dealing with mental illness, BPD, PTSD, anxiety, chronic depression, agoraphobia, panic disorder, dissociative amnesia, and the list keeps accumulating. LOL. But now, my health issues with chronic pain have caught up to me in my suddenly becoming old! Don’t know where it came from. I went from 35 years old to 65 years old in 10 minutes!, Wow… my spine is crumbling from arthritis. Just had spinal fusion and now have spinal stenosis added to everything else in my spine. Have chronic pain syndrome. Trying a new type of THERAPY at Cleveland Clinic to manage my pain through my brain. My brain is not cooperating so well. I’m on an 18 month. Waiting list to get ketamine. Which would be awesome because my Medical Marijuana is absolutely astronomical and cost. Beyond disability, it’s costing my sister of fortune!!! Don’t know how they can take away your pain medicines without insurance covering the only alternative they give you. Such a sin. Anyway, to top it all off, MY Psychologist of 30 years (Retired) seven years ago. Haven’t found anyone since her. And five years ago, my sister Jean, my best friend in the whole world, passed away after I took care of her 24 seven for two years. My heart died the day she did and it will never return. I feel so isolated and lost and alone and lonely and I miss her more than life itself. All I can think is, she promised to take me with her and she didn’t!!! I don’t know how to exist without her. All this depression and grief is only making my bodily physical pain worse and worse. I’m spinning in a cycle but I cannot get out of. God I could use your friendship. Just listening to your stories will make me feel not so alone. Thank you for including me.

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I'm new here!

Hi, my name is Sharon222. I'm here because I have chronic fatigue and fibromyalgia, and my close friend has arthritis and osteoporosis, and will be in a wheelchair, we are both grieving and looking for ways to live like this.

#MightyTogether #Grief

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