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    Best buddy supporting me even in her sleep 😴 💤 💓 💕 😌

    Heaven knows I need a LOT of help just trying to change my simple PJ dress. It is so hard to push for all the help you desperately need when there is no money to pay for it.

    I need a perfect world with a government that actually helps the severely disabled. Anyone else?

    Rosie is in agreement-even with her eyes closed 😅😉😁🐶

    #AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #Depression #Disability #DistractMe #ComplexRegionalPainSyndrome #bedbound #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Insomnia #Lupus #Lymphedema #MightyTogether #MightyPets #MentalHealth #MemoryLoss #Migraine #PosturalOrthostaticTachycardiaSyndrome #Psoriasis #PTSD #RareDisease #SuicidalThoughts

    40 reactions 5 comments

    My mom was told she doesn’t qualify for shoulder replacement because she is in a wheelchair. #Advice #GettingHelp #CharcotMarieToothDisease

    My mom just has X-rays taken of her shoulders because they have been causing extreme pain in her arms. The doctors basically said her shoulders are so bad from arthritis that she’d need to have replacement surgery. The recovery stage involves not leaning on her shoulders so they told her that she does not qualify to get surgery because she is chair bound. In other words she is going to have to live with the pain for the rest of her life. Has anyone experienced this before? I just find it crazy that in today’s world, they haven’t figured out a way to be inclusive when it comes to helping people like my mom. Anyone have any thoughts or any advice on where to go from here?


    ° " So I Might Definitely Have Arthritis In My Whole Body " ° #Curious #Thought 's

    ° " My Entire Body Is Alway's In Massive Pain Flare's Especially In My Lower Back My Hand's And Mostly My Feet... I Can Barely Get Out Of Bed To Go To Work... My Hand's Are Getting Very Painful Especially Around My Wrist's Area.. And When I Do Finally Relax I Can't Sit Down Much It's Uncomfortable For My Lower Back And Feet... I'm Alway's Swollen And Warm To The Touch Everywhere... And I Definitely Feel The Rough Wear And Tear All Over My Body... Gee I Feel Like I'm 80... But I'm Only 38.. F.M.L Right Now I'm Trying To Find Health Insurance That's Affordable... So Far No Luck... This Crap Is Annoying To Do Jumping Threw All Kind's Of Hoop's By The Time I Get Approved I Will Be Dead... " ° Sincerely, # Thought's ○●○SKAOI KVITRAVN○●○

    2 reactions

    ° " Deep Thought's And No Sleep At All Anymore.. " ° #Insomniac #chronic Pain #Arthritis

    ° " Sooo Idk Why People Alway's Assume That I'm Going To Alway's Come In On My Very Few Day's Off ??? UM NO!! They Keep Getting Mad At Me For Keeping My Phone Off Or Not Answering Text's... Well Hello It's My Day Off.. I Don't Understand The Mentality Of These People Like I'm Just Supposed To Just Drop Everything For Them... Just Because They Can't Handle Customer's At All... Or Bother To Keep Thing's Clean And In Order... I'm Trying To Have A Life Outside Of My Job.. And Working On My ♿.. But These People Don't Want To Understand And Just Assume That I Don't Want To Help... I Do Help All The Time... And I Don't Get Anything For It. Not Even A Thank You! But Want To Abuse My Kindness And Not See That I'm Disabled At All... This Job Is Depressing And Draining..." ° Sincerely, •●○ Skaoi Kvitravn ○●• #Thought 's

    8 reactions

    I'm new here!

    Hi, my name is dakotasuz. I'm worried about my right hip. I have had 3 hip surgeries and have a lump that has not been diagnosed yet why is the unknown so scary
    #MightyTogether #Migraine #Grief #Arthritis #PTSD #Scoliosis

    1 reaction 1 comment

    Yesterday evening around 6:00, I had an erythromelalgia flare in both feet. It went down after a couple hours. Then, around 10:00, a "double flare" hit in my hands hands and feet. Are you kidding me? That one lasted until well after 1:00 AM. That's exhausting and discouraging, especially because I always wake up with a flare in my feet and pain in my legs. Currently, my hands are starting to flare, and I know my feet (and ears) will flare again as the day goes on--likely more than once. I'm supposed to meet with some friends for an hour or so this evening, but the chances of that happening are low.

    Even so, I start each day with welcoming the day as it comes.

    I'm not alone in this. What is your experience of dealing with experiencing pain-upon-pain and knowing that it's going to happen again and again?

    #ChronicPain #ChronicIllness #RareDisease #erthyromelalgia #SmallFiberNeuropathy #Depression #Anxiety #MentalHealth #MightyTogether #DistractMe #Fibromyalgia #ComplexRegionalPainSyndrome #ChronicFatigue #MyalgicEncephalomyelitis #Insomnia #Arthritis #InvisibleIllness

    2 reactions 1 comment