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Hi, my name is Tweetymkg. I'm here because
I had a knee replacement 6 years ago and I have tried everything to get rid of the pain and now my other knee bothers me. I do not want to have surgery since the other one did not seem to work.#MightyTogether #Arthritis

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March is here.. Spring is right around the corner now! 👀🌹

Just a few helpful reminders as we move into the next chapter of the year.
Any other ideas you might add? 🤔
March into the new month, and take care of yourselves! 💫

14 reactions 1 comment

Update After Seeing My Doctor

I went to see my new rheumatologist today. She said my blood work was consistent, but the pain and swelling seemed like arthritis. She didn’t have any answers for me though. I know it’s never “too early” for joint pain/arthritis, but it’s not fair. I know life isn’t fair, but I wanted an answer for my hands. I hope everyone is doing well 💜
#Undiagnosed #CheckInWithMe #ChronicPain #AutoimmuneDisease #MightyTogether

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X-ray results

i had a couple X-rays done because my rheumatologist wanted to rule out arthritis.
I believe they found some fluid on my knees. I had ultrasounds down and they said everything was fine. i did get X-rays for my ankles too (they appear pretty swollen and fluid was found on one X-ray before) the results were “mild diffused soft tissue swelling”, is this a normal result?
Rheumatologist didn’t say much about it and redid an ultrasound and was shocked by how “normal/healthy” it looked. I do have to get an MRI and I have a feeling it won’t show anything, which means I won’t be seeing my rheumatologist anymore and I’m worried I won’t get an answer ever

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Sewing a bit #Fibro #Asthma arthritis #Migraine etc

I decided to make this quilt for myself. Over 30 years since I made one for myself

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😳What Said What?!😳

When you live with a chronic health condition or disability, especially if you’re a younger looking person, young adult, or an ambulatory wheelchair user, there’s a good chance that you will have been unfortunate enough to have experienced some negative & hurtful comments from people.
There’s the classic comments that people living with Invisible Disabilities will have heard, for example “You don’t look sick.” & “It’s all in your head.”
Then there’s the unfortunate comments that people living with Mental Health conditions such as Depression & Anxiety will have heard, for example “Cheer up.” & “Stop worrying about it.”
And if you’re an Ambulatory Wheelchair User? Wow! The looks alone can be upsetting! I’ve lost count of the number of times I’ve been met by judgemental looks from people when we park our car in a Disabled Parking Space (I am a valid Blue Badge/Disabled Parking Permit holder) because I “don’t look sick/disabled” when I’m sitting in a car. These looks soon change when these people see my wheelchair but by then I’ve already started feeling awkward, embarrassed & like I have done something wrong when all that’s really “wrong” is that I have a neurological disorder which causes debilitating symptoms. It may be a brief moment of prejudice but that is still a brief moment too long in my books. It’s so important that we continue to raise awareness of the various chronic conditions & disabilities because it’s only through making people more aware these issues that change can happen & hopefully people with disabilities & chronic illnesses won’t have to deal with such rude, inappropriate & often upsetting remarks. In the meantime, when we heard comments that are hurtful or prejudice looks, we need to do our best not to let these remarks cause us any further damage or embarrassment – which is something that I definitely still struggle with a lot.
Stay strong, stay Mighty & by the best ‘you’ that you can be!
#ChronicIllness #ChronicPain #MentalHealth #Anxiety #Arthritis #BackPain #ChronicFatigue #ChronicFatigueSyndrome #FunctionalNeurologicalDisorder #ChronicDailyHeadache #ChronicLungDisease #Disability #ChronicObstructivePulmonaryDisease #ComplexRegionalPainSyndrome #InflammatoryBowelDiseaseIBD #IrritableBowelSyndromeIBS #Lupus #Fibromyalgia #Grief #ADHD #AnorexiaNervosa #Endometriosis #MightyTogether #MightMinute

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Where do you find joy in life?

Happy throwback Thursday, to happier times, when I was still able-bodied! I was in my early twenties & this was at the park. I had given birth to two girls before getting sick. Well, before being diagnosed I should say! I’ve been sick most of my young life. It just wasn’t until later on that it became more readily apparent. I used to love the outdoors & grew up near a lake. I was always very adventurous & outdoorsy growing up. It was my refuge. Now I’ve been entirely cut off & rarely if ever venture out. I stay isolated in my dark bedroom with little to no stimulation. My only access to the outside world is an iPhone. Ever since getting it a couple years ago my hands became deformed from arthritis. I have swan neck deformaties in my right hand & dupuytren’s contracture in the left. My elbows stay permanently bent & I have ankylosis of the shoulders. I have visited many orthopedic surgeons & upper extremities specialists to no avail. I have lost so much range of motion & mobility from chronic widespread inflammation. I’ve been trying to seek an official diagnosis for Sarcoidosis on top of my other rare disease. It’s very disheartening. #ChronicIllness #ChronicPain #ChronicFatigue #ChronicFatigueSyndrome #MyalgicEncephalomyelitis #Spoonie #CommonVariableImmuneDeficiency #Arthritis #ankylosis #Anxiety #Depression #Agoraphobia #BipolarDisorder #MentalHealth

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Looking for suggestions

Hi all, I'm looking for suggestions for a non-greasy topical pain relief for fingers and wrist joints. I'm in the US so I'd prefer things that are easyish to get here. Thank you in advance. #Arthritis

6 reactions 5 comments