I have been seeing a GI for a year though I probably should have been seeing one long before that. I have had other health issues for over three years and finally got my diagnosis in August. Ehlers Danlos, POTS, scoliosis, Celiac, EoE. There are still more pieces we are trying to find though. I just had an appointment with my GI doctor. After months of daily laxatives and enemas #Eww for chronic constipation we repeated my abdominal x Ray. It showed that I was exactly were I was when I started. So now we’re on to a third home clean out and if it doesn’t work (just like the last two) I’m going to be admitted for a NG tube. He also referred me to a new GI who specializes in motility problems. But I just feel so discouraged. I have done lots of research on EDS and dysautonomia and I know the ride I’m in for. I know that these are very common problems and there are only so many options. I’m just so tired of the daily nausea, distention and pain. I just want a way to fix it but yet I know the reality is that I will probably live with it for the rest of my life. I just don’t know how I can hold on to hope anymore. I have spent so many months clinging to that thread that this will get better. I have spent years being strong and I’m just so tired. I’m tired of being strong, I’m tired of doing everything they ask and nothing changing. I’m tired of giving my all and getting nothing in return. I’m trying so hard to hold on to hope but that string is just getting thinner am thinner. I just don’t want to be broke again. I just don’t know if I have any hope left in me. I just want to be done.
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