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#MightyTogether #Anxiety #Depression #Fibromyalgia #AutismSpectrumDisorder #PTSD #EhlersDanlosSyndrome #Scoliosis #ADHD
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Scoliosis
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Words cannot properly express how ridiculous my health is getting. After my ultrasound appointment yesterday (again as I have had many in my years of life trying to figure out why my stomach hurts so so much.).
Thanks to a gifted nurse we finally got a name put to my serious pain.
Yet again it is an instance where I have begged most doctors to help me but they all have brushed it off.
Apparently I have gallstones so much so that barely a trickle of things can get through.
It is caused by a medication I have been on for almost 10yrs.
When I was in fifth grade I had an ultrasound to try to figure out why my stomach hurt then too. I was 8 at the time. No answer until yesterday!
Funny that we cheered at this answer but one of the most common solutions to this being so very severe is to have my gallbladder completely removed.
*sniffle* I REALLY don't want another surgery but having all the severe pain symptoms that goes with this diagnoses, I am so so SOOOOO very ready to be rid of this particular suffering.
SO many instances I just keep assuming various pains are normal only to find out that my condition is the very worst it could be.
The average age for gallstones is 50+ years. And here I am at 29, though it started at 8 and worsened at 20ish years old.
My goodness my body is drowning in issues 😅 God bless this hot mess!!!
#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #bedbound #BoneSplints #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Eczema #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #JuvenileRheumatoidArthritis #Insomnia #MemoryLoss #MentalHealth #musclespasms #MultipleAutoimmuneSyndrome #MightyTogether #Migraine #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #Psychosis #PanicAttack #PanicAttacks #plantarfasciitis #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica #ShinSplints
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Remember: there is always tomorrow if today wasn't the best 💕💕💕
#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #AnkylosingSpondylitis #Anxiety #GallbladderDisease #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #JuvenileRheumatoidArthritis #Insomnia #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #Psychosis #PanicAttack #PanicAttacks #MentalHealth #MightyTogether #MemoryLoss #Migraine #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica #BoneSplints #ShinSplints
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I am 29 years old and have never watched Lord of the rings. Mostly because I don't like the main hobbit in it.
I just had never gotten around to watching it though I did watch one and two of The Hobbit movies. I really like the actors in that one!
This Lord's of the Rings TV show is set centuries before the first Lord of the Rings movies. 8 episodes per season and currently season two just released the first four episodes!
I have always been a HUGE fan of fantasy books and movies. Especially when there are a bunch of types of creatures. And even better if there is magic and a lot of action scenes!!
This series is SO GOOD for the first time ever I am planning on watching all the movies and episodes and might just be a HUGE fan of Lord of the Rings 💍 💖❤️💖❤️💖
I like it better than the Harry Potter series!!!! 😱😱😱
Which one is your favorite?
It always bothered me that Harry Potter and his friends were able to take down Voldemort even though he had been alive learning all sorts of magic decades before them. Though I really love the characters and by the end most of the characters have done selfless acts that warm the soul💕💕💕
Plus Lord of the Rings has epic music and incredibly wise lessons.
Do you have a favorite movie in either series? Have you seen the new TV series called the Rings of Power? Did you like it or love it?
Talk about an incredible imagination!! Some authors are just awe-inspiring with what they come up with.
Incredible!!!!!
#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Insomnia #Lupus #Lymphedema #MightyTogether #MentalHealth #MemoryLoss #Migraine #PosturalOrthostaticTachycardiaSyndrome #Psoriasis #PTSD #plantarfasciitis #PanicAttack #PanicAttacks #Psychosis #Hypersomnia #HighBloodPressure #Headache #JuvenileRheumatoidArthritis #AnkylosingSpondylitis #Eczema #bedbound #BoneSplints #ComplexRegionalPainSyndrome #Upallnight #SuicidalThoughts #Scoliosis #sciatica #ShinSplints
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A picture of true happiness 😊 😁
Being woken up by scratches is Rosie's favorite!!
#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Insomnia #JuvenileRheumatoidArthritis #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #Psychosis #PanicAttack #PanicAttacks #plantarfasciitis #Upallnight #IfYouFeelHopeless #MentalHealth #musclespasms #MultipleAutoimmuneSyndrome #MemoryLoss #MightyPets #MightyTogether #Migraine #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica #ShinSplints
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All throughout childhood and teenage years I have been so misunderstood.
So many adults being mean or cruel because they didn't realize how serious my pain is and was.
Life has been so hard as I have worked hard to stand up for myself because no one else would.
I have struggled with being angry that my parents ever brought me into this existence where every bad health condition on both sides of my family combined in me to maximize misery. Only recently did we learn that at 17 I had arthritis and still do. Genes and environment have worked cruelly together to bring about as many health issues as possible.
Having SO MANY health problems and things to deal with into the hundreds of symptoms has made it so I have had to work incredibly hard to keep wanting to live.
Today my mom said: Can I just tell you how sorry I am you have the body you do?
Suddenly it was like a balm was put on my soul and I had incredible relief after suffering so much these past years.
Vindication is something I crave after all these years of being overlooked and misjudged and so misunderstood.
Today is a good day Mighty friends ❤️❤️❤️
#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Headache #Insomnia #JuvenileRheumatoidArthritis #Lymphedema #MentalHealth #MemoryLoss #MightyTogether #Migraine #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #plantarfasciitis #PanicAttacks #PanicAttack #Psychosis #RareDisease #RheumatoidArthritis #musclespasms #MultipleAutoimmuneSyndrome #IfYouFeelHopeless #Upallnight #SuicidalThoughts #Scoliosis #sciatica #ShinSplints
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Found this at the dollar store and loved it right away! I love the idea of being our best or blossoming year round.
It has been my life choice to always be the best I can be. To be fully honest all the time. And to look and see the good in everyone.
To expect nothing but be happy when I get anything, to live in the moment and savor every bit of good that comes my way. To never judge others harshly and to look beyond the facade others may wear to hide their truth they don't want anyone to see.
Or in other words to search unerringly for any and all truth. To be the truth seeker!
Just my Lil bit of truth.
What is yours? What keeps you going and what gives meaning or purpose to you personally?
#AmplifiedMusculoskeletalPainSyndrome #Arthritis #AnkylosingSpondylitis #Asthma #Anxiety #bedbound #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Headache #Insomnia #JuvenileRheumatoidArthritis #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #Psoriasis #PsoriaticArthritis #plantarfasciitis #PTSD #PanicAttack #PanicAttacks #Psychosis #MentalHealth #MemoryLoss #MightyTogether #Migraine #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica #ShinSplints #Sleepwalking
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It takes me days after an appointment to be rested up especially with my chronic fatigue.
After a few months of appointments I quickly reach the point where I am so sick of them and I stop wanting to even answer my phone let alone go to appointments and go through the hoops of anything and everything medical. A short lifetime of constant appointments at least weekly since I was 13 and now being 29 I Have to plan rewards after my appointments or I don't even want to go in the waiting rooms. Now that I am older I purposely take weeks off of appointments though I prefer months off not that I ever get a full month off *sigh*
Anyone else get sick of appointments too?
If I have an appointment with a terrible doctor( even a lifetime of Dr appointments and I have only had 10 good ones from cardiologists to pain doctors to primary care physicians) my quota reaches my limit super fast. My psychosis was started and keeps happening with anything to do with bad doctors.
It is based on feeling I have no control in my life and rarely ever have. Being unable to live on my own, have a job, or even drive has significantly worsened my psychosis.
Though I have found that doing artistic things helps me feel more in control and makes me happy yo be who I am.
Oh how little health people know about the lives we live!
#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Upallnight #IfYouFeelHopeless #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Headache #Insomnia #JuvenileRheumatoidArthritis #Lymphedema #MentalHealth #MightyTogether #MemoryLoss #MightyTogether #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #Psychosis #PanicAttack #PanicAttacks #plantarfasciitis #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica #ShinSplints
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I accidentally woke her up while I was trying to get a picture of her sleeping face 😴
So close dang it! Lol next time! 😉
#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Headache #Insomnia #JuvenileRheumatoidArthritis #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #Psoriasis #PsoriaticArthritis #plantarfasciitis #PTSD #PanicAttack #PanicAttacks #Psychosis #MentalHealth #MightyPets #MightyTogether #Migraine #SuicidalThoughts #Scoliosis #sciatica #ShinSplints #BoneSplints #RareDisease #RheumatoidArthritis
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Ketamine Infusions for MS? Does any one get ketamine infusions? Frequency?
Does any one get ketamine infusions? Frequency? Dosage? Protocol? Who prescribed & oversees? Cost? Are you able to get insurance coverage, reimbursement, or any thing to help w expense? Has anyone head about the clinical trials of ketamine to improve fatigue for MS? I have a demyelinating syndrome & connective tissue dx (both have no name), degenerative spine disease, and I recently got diagnosed w DISH (diffuse idiopathic skeletal hyperostosis). I’ve had 8 spinal fusion surgeries w plates screws and rods. DISH causes extra bone growth, specifically bone spurs on my spine. These bone spurs connected to form a bridge, a bridged osteophyte complex T5-T11 #MultipleSclerosis #Scoliosis #SpinalFusion #SpinalStenosis #ComplexRegionalPainSyndrome #AnkylosingSpondylitis #MixedConnectiveTissueDiseaseMCTD #spinal
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