Scoliosis

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I'm new here!

Hi, my name is Tundra101. I'm here because my therapist suggested that I join Mighty for support, educational pieces, and to see how others with similar diagnoses cope. I am currently in the middle of health flare-ups and applying for disability, which comes with shame and embarrassment. I often compare myself to my "peers" and feel embarrassed about being where I am in life. I blame the impact of my mental health on myself and do not know who I am outside of my health issues. I look forward to seeing how The Mighty can help.

#MightyTogether #Migraine #Anxiety #Depression #Scoliosis

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My whole life is evidence of this and trust me, I have not had any easiness in life.

My mom asked me 10yrs ago if I felt peace ever since I had had constant pain for 7 years and severe pain my whole life.

I was able to answer with a resounding YES!

Thanks to gospel daily studies, they were the Only thing that helped me control my pain and the anger that comes from being in pain.
When all meds and doctors failed, a but if scripture or hours long study sessions both made my pain into something I could ignore on a big level.

My whole life has benefited so so much all thanks to time set aside for me and our merciful father in heaven to catch up with each other.

I am so indebted to my parents raising me as a Latter-day Saint. ❤️❤️❤️✨️✨️✨️

Such a priceless gift.

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #CheerMeOn #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #HypothyroidismUnderactiveThyroidDisease #Grief #Hypersomnia #Headache #JuvenileRheumatoidArthritis #Insomnia #Lymphedema #MentalHealth #MemoryLoss #MightyTogether #Migraine #musclespasms #MultipleAutoimmuneSyndrome #PosturalOrthostaticTachycardiaSyndrome #PTSD #plantarfasciitis #Psoriasis #PsoriaticArthritis #Psychosis #PanicAttack #PanicAttacks #RareDisease #RheumatoidArthritis #IfYouFeelHopeless #Upallnight #SuicidalThoughts #Scoliosis #sciatica #ShinSplints #Eczema #HighBloodPressure #Headache

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💪🏼💪🏼Too true!

I use to resent having to keep going and yes while life can be extremely hard especially being bedbound, I have been able to use my knowledge and experience to help many others. Finding optimism in every seemingly bad thing can be a challenge but we don't get better with no practice 😉

Things may seem like the darkest depths. But no amount of darkness can put out a small candle.

A small flicker of hope can sustain. I am living proof of that.

29 years of pain, 17 of constant pain so severe death would seem a blessing if I hadn't experience first hand the dearth and sadness suicide leaves behind.

Death may seem a blessing but we only get this one life and time doesn't have to be wasted as we wait for answers to our health or treatments or a cure. Or, in my case, a good knowledgeable doctor who wants the best for their patients.
It took me hundreds of doctors to find these three meant for me at last and I know a time will come when they will retire and I must find another good one.

Life has more sunshine to warm you than you can ever know until you live it. I have found more joy in the last year than I have thought possible. A long time coming but all the sweeter. Life is a GIFT.

No matter what, we go on!

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #Headache #Insomnia #Lymphedema #JuvenileRheumatoidArthritis #musclespasms #MultipleAutoimmuneSyndrome #MentalHealth #MightyPets #MightyTogether #MemoryLoss #Migraine #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #Psychosis #PsoriaticArthritis #PanicAttack #PanicAttacks #plantarfasciitis #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica #ShinSplints

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Strong thunderstorm kinda day. Rosie sticks close to my side.

To ease her worry of thunder I asked Alexa to sing lullabies and discovered that the country genre soothes her SO much! Lol I like the morose kind of lullaby songs.

Since we got Rosie she is enamored with my singing. It surprises me to no end how she will wake out of a deep sleep when I start to sing. She loves it! And she makes me love it all the more too!

I use to sing All the time jamming out to all sorts of pop and rock. Once my pain got drastically severe at 17, all vibrations hurt from movement like others walking around to any musical sounds. I haven't jammed to music in a good decade (12years really).

My best friend who committed suicide when we were around 16, was a HUGE fan of Sinatra and bluesy tunes. He was in every play as soon as we were in high school. He adored music.

Unbeknownst at the time, he gained bipolar disorder with major Depressive disorder.

I was able to help him keep going for a few years but it was hard and he slowly distanced himself from everyone but me.

No one else knew what was going on with him. After he died, I had to explain to his family, my family, police, and other friends how bad things were for him.

They were all so very surprised. I knew he romantically liked me as soon as we met 4 years before. He wasn't shy about it but I hated it so much. I knew I would never like him back.

After a hard first year we became very dear friends.

He knew me so well. To this day he is the only one who could know as soon as any pain hit-before it became full body 24/7. It was so wonderful and was the first time anyone just got me when it came to pain.

That last day he came right out and asked me to be his girlfriend. After I said no he became mean and tried guilt and everything to get me to say yes. Before we had said goodbye after walking home I knew he wanted to make me kiss him and would have assaulted me if I hadn't run inside my empty house and locked the door.

That fear caused nightmares that lasted 10years. I saw every side to him. But his friendship is something I miss so much. Just to talk to him like the old days.

I know when I see him again many years from now when I die, I am going to give him a stern talking to and then hug him and tell him absolutely EVERYTHING he has missed.

Because of how he ended things, I avoided plays and singing. And then my pain severely increased and music became something I would use earplugs to avoid.

Now with Rosie bringing music back into my life in a happy wonderful way, it is like coming home after a long long journey. It is like I have my best friend back again to join in sorrow, pain, joy, and happiness.

For the first time in a LONG while, I feel a lightness in my step and a big smile on my face, just as is meant to be. ✨️

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #CheerMeOn #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Eczema #BipolarDepression #BipolarDisorder #JuvenileRheumatoidArthritis #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #plantarfasciitis #PanicAttack #PanicAttacks #Psychosis #Hypersomnia #HighBloodPressure #MentalHealth #MightyPets #MightyTogether #Migraine #musclespasms #MultipleAutoimmuneSyndrome #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica #Upallnight #IfYouFeelHopeless #ShinSplints @

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In just a week Lil Rosie will be 5! The perfect fun sassy best buddy a girl could ever have!

When we got her I was more depressed than ever. Immediately we saw how much good she could bring to my life. She has been with me through so much already. Having her beside me makes the world a much brighter place!

Unlike most small dogs, Rosie doesn't bark or bite or nip. She is a quiet little thing though she LOVES to groan out her distress-it is hilarious!

When we got her she never wagged her tail though she did spin when she was happy. Now we have brought happiness and love in her life, her whole booty wiggles in happiness!! It is the most adorable funny thing!

She is the BEST!!!

WE LOVE YOU ROSIE!!!!!

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #AnkylosingSpondylitis #Anxiety #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Insomnia #JuvenileRheumatoidArthritis #musclespasms #MultipleAutoimmuneSyndrome #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #PanicAttack #PanicAttacks #plantarfasciitis #MentalHealth #MightyPets #MightyTogether #Migraine #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica #ShinSplints #IfYouFeelHopeless #Upallnight #CheerMeOn

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A great reminder for myself to chase after only happy things.

If I haven't felt happy in a bit it helps a Lot to plan something I love to do in the next few days. That way I can rest up and save any energy for the True Important Things!
In a world where daily life can be a true struggle with so many health struggles and trials, the good things in life are more important than Ever!

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #Depression #ComplexRegionalPainSyndrome #Upallnight #IfYouFeelHopeless #Hypersomnia #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Insomnia #JuvenileRheumatoidArthritis #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #plantarfasciitis #PanicAttack #PanicAttacks #musclespasms #MultipleAutoimmuneSyndrome #MentalHealth #MemoryLoss #MightyTogether #Migraine #HighBloodPressure #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica #ShinSplints

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