Dysautonomia

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Dysautonomia
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dysautonomia?

Well, Doctors have always been a challenge for me. Not only do I feel like my past continues to haunt and challenge me when it comes to living my life but I have been having dizzy spells and some chest pain.. sometimes sharp chest pain when I am overly stressed. My doctor is either just tired of me coming in or this could actually be a diagnosis that makes sense? She is going to get me to do a ecg. I have had one in the past but no results came back. I struggle with serverr depression and have some cptsd symptoms so having to do anything medical related can make me spiral a bit and feel guilty of not getting this dealt with sooner. When I researched dysautonomia I was surprised to find that the dizziness, irregular heart beat and blood pressure makes sense. Even the fainting makes sense as when I go to give blood I have to lay down after a fainting incident year ago. I also got horrible heat stroke as a child and would end up vomiting very easily if I could not cool myself down in time. I am hopeful that there is more research and understanding of this coming out there. I mean in the world of ai. I really think that the future of health will get better now that we can track symptoms and see what matches from data. Take care lovely people of the Mighty community.

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My Favorite Things by Melanie R.

My favorite Things by Melanie R.

My favorite things are not things at all.
To soak my whole spirit in His Holy word.
To sing of His praises;
Hallelujah all day long!

Telling my testament,
with His healing song.

Nothing in this world means more.

My hands clean, my heart made pure!

To be right in spirit,
He gave a new heart.

Your vision so clear, I hear of the Lord!

To love on His people,
to share from the heart.
and outdo in giving..
my favorite part!!!

Amen!!!

We thank you for gifts of healing…all my favorite things-
It’s all in your revealing.

Not things at all.

My favorite things in heaven,
stored up with the Lord.

These are a few of my favorite things.

Thank You Jesus!

Galatians 6:10
So then, as we have opportunity, let us do good to everyone, and especially to those who are of the household of faith!

Matthew 6:19-21
Do not lay up for yourselves treasures on earth, where moth and rust destroy, where thieves break in and steal, but lay up for yourselves treasures in heaven…for where your treasure is, there your heart will also be.

Keep your eyes on eternity!

If you are blessed by these messages, please be sure to see many more and the music that is inspired from above on my YouTube channel:

Melanie’s Melody.

God be with you, and bless you all in a mighty way! Please also share some of your favorite things!
Thank you!

#MitochondrialDisease #ChronicInflammatoryDemyelinatingPolyneuropathy #ChronicIllness #Dysautonomia #ChronicPain #MightyPoets #IfYouFeelHopeless #InsideTheMighty #IrritableBowelSyndromeIBS

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I’m new here!

1 car accident with 1 neck surgery with a damaged vagus nerve…..5 years, 136 tests, lost profession, financial collapse, mental breakdown, unanswered questions, life interrupted, medically educated by necessity, forced into disability.

#MightyTogether #Dysautonomia #HemiplegicMigraine #PosturalOrthostaticTachycardiaSyndrome #LongQTsyndrome #AdrenalInsufficiency #Gastroparesis

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11 yr old autistic son w/ new diagnosis of

I'm new to the platform. Our 11 yr old was recently diagnosed with Dysautonomia without specification. He frequently has episodes of dizziness, nausea, vomiting shaking, sweating, blood pooling and stomach discomfort.

With him being autistic, he sometimes struggles to tell us how he's feeling. We're keeping a journal of what he's eating, what he's doing when an episode occurs etc. We haven't known any common factors other than stress in some cases.

Any information or insight we can obtain in order to help him would be greatly appreciated. ❤️

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I'm new here!

Hi, my name is Nashnest. I'm here because our 11 yr old autistic son has recently been diagnosed with Dysautonomia. We want to know more about it and how best to support him along with his other diagnosis of ADHD & Tourette's.

#MightyTogether

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Is anyone else struggling as much as me?

Hi everyone, I'm new to The Mighty. I'm struggling and looking to connect. I want to know I'm not alone. I have anxiety, depression, PTSD, continuing trama, and struggling with diagnosis and treatment for Dysautonomia: CRPS, POTS, and another nurologic condition. Everything is related to rare variations in genes I've inherited. My brain processes only 50% of serotonin and dopamine. Dysautonomia is not well understood and all conditions sitting under this umbrella are diagnosis of exclusion (rule out every other possibility then call it this). I've been struggling with flare-ups my whole life. This most recent flair has lasted 9 months. So far all I've done are tests, blood work, genetic labs, NuroZoomer, CT, MRI's, EEG, LP and still have EMG and TiltTable test coming. I am beyond frustrated with all of it. All I do is wait and there is no sense of urgency and no direct treatments. I'm basically living in bed. I can't work, I can barely walk, brain fog is so intense.

Is there anyone out there as rare as I am? Anyone struggling as hard?

Picture of me and my new dog for attention. He's cute, and I hope he brings a smile to your face.

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