Dysautonomia

Well, Doctors have always been a challenge for me. Not only do I feel like my past continues to haunt and challenge me when it comes to living my life but I have been having dizzy spells and some chest pain.. sometimes sharp chest pain when I am overly stressed. My doctor is either just tired of me coming in or this could actually be a diagnosis that makes sense? She is going to get me to do a ecg. I have had one in the past but no results came back. I struggle with serverr depression and have some cptsd symptoms so having to do anything medical related can make me spiral a bit and feel guilty of not getting this dealt with sooner. When I researched dysautonomia I was surprised to find that the dizziness, irregular heart beat and blood pressure makes sense. Even the fainting makes sense as when I go to give blood I have to lay down after a fainting incident year ago. I also got horrible heat stroke as a child and would end up vomiting very easily if I could not cool myself down in time. I am hopeful that there is more research and understanding of this coming out there. I mean in the world of ai. I really think that the future of health will get better now that we can track symptoms and see what matches from data. Take care lovely people of the Mighty community.

Hi, my name is Bighorse. I've been diagnosed with cutaneous lupus, fibromyalgia, ME, hyper mobility, possible Sjögren’s and dysautonomia.

#MightyTogether #Anxiety #Depression #Fibromyalgia

1 car accident with 1 neck surgery with a damaged vagus nerve…..5 years, 136 tests, lost profession, financial collapse, mental breakdown, unanswered questions, life interrupted, medically educated by necessity, forced into disability.

#MightyTogether #Dysautonomia #HemiplegicMigraine #PosturalOrthostaticTachycardiaSyndrome #LongQTsyndrome #AdrenalInsufficiency #Gastroparesis

I'm new to the platform. Our 11 yr old was recently diagnosed with Dysautonomia without specification. He frequently has episodes of dizziness, nausea, vomiting shaking, sweating, blood pooling and stomach discomfort.

With him being autistic, he sometimes struggles to tell us how he's feeling. We're keeping a journal of what he's eating, what he's doing when an episode occurs etc. We haven't known any common factors other than stress in some cases.

Any information or insight we can obtain in order to help him would be greatly appreciated. ❤️

Hi, my name is Nashnest. I'm here because our 11 yr old autistic son has recently been diagnosed with Dysautonomia. We want to know more about it and how best to support him along with his other diagnosis of ADHD & Tourette's.

#MightyTogether

Hi, my name is Beryl907. I'm looking for community and resources related to Long COVID, dysautonomia/POTS, ME/CFS, and chronic illness.

#MightyTogether #AutismSpectrumDisorder #ADHD #Depression

#EhlersDanlosSyndrome

Hi, my name is RSight. I've been diagnosed with Ehlers Danlos, Dysautonomia and Mast Cell Disorder.

#MightyTogether