Use this for the days ahead, whenever you need it.
#PTSD #Agoraphobia #Anxiety #AnorexiaNervosa #AutismSpectrum #BipolarDisorder #BipolarDepression #BorderlinePersonalityDisorder #ChronicFatigueSyndrome #CeliacDisease #Cancer #Depression #Epilepsy #Dysautonomia #EatingDisorders #Grief #Selfharm #SuicidalThoughts #Fibromyalgia
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I got in my car for the first time in weeks yesterday to pick my son up from work. It was just a ten minute drive there, another ten back, but it was almost eerie being out of the house.
On the one hand, it felt liberating and energizing to be driving. Sun out, good weather. Change of scenery. On the other, it drove home (no pun intended) just how isolated I've been. I'm staring at the same walls day after day. Sometimes I can't take a shower because I just wouldn't be able to stand up in one place for that long. Thinking about installing a shower chair (or whatever they're called).
I have to wonder what isolation does to the physical body, to the nervous system, circulation, inflammation, etc. I am housebound because my health is not good, and I think my health gets worse because I am housebound... downward spiral.
I don't have a point here. Just sharing in case anyone else can relate.
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Crimson Red by Melanie R.
Crimson red-
against the snow.
My heartache bleeds, and nearly froze!
I turn to you
and say a prayer,
release me Lord,
from pain and spare
my heart from this deep suffering.
The ache.
The hurt.
My mind wandering.
Crimson red.
Down and blue.
White of snow.
Thoughts of you.
Buffalo blizzard.
A frozen cry.
Of time felt lost, and days gone by.
Your memory will never fade.
Swirls like wind, still falls like rain.
Our hearts hold onto memories,
Days up,
then down…like swaying trees.
Crimson red.
Hearts of truth.
Cold of snow.
Thoughts of you.
Red cardinal singing
love’s forever song of faith.
Holy water springing;
by pearl of heaven’s gate.
A timely whispered love song,
her music sung deep blue.
Sets free-
releases sadness,
as spirit’s called to you.
Consecrated!
Soul guided!
As He has heard our cries!
He knows of all the suffering,
every groaning,
every sigh.
Crimson red-
the blood was poured;
robes washed white-Calvary brought forth.
A poem/song about the untimely loss of my mother in the winter of 2021.🌹
#Grief #COVID19 #MitochondrialDisease #AutoimmuneImmunodeficiency #Dysautonomia #ChronicIllness #ChronicInflammatoryDemyelinatingPolyneuropathy #ChronicPain #PrimaryImmunodeficiency
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Hi, my name is Nox_05. I've been diagnosed with
multiple chronic illnesses and many of them cause me severe pain. I don’t have anyone in my day to day life that I can tell about it, and especially not have them understand instead of try to fix. I’m here because I need to talk about it, to people who understand
#MightyTogether #Anxiety #Migraine #AutismSpectrumDisorder #EatingDisorder #Grief #ehlers-DanlosSyndrome #MastCellActivationDisorder #polycysticovarysyndrome(PCOS) #PosturalOrthostaticTachycardiaSyndrome #Endometriosis #Dysautonomia
19 reactions •
5 comments
Hi, my name is Anna. I'm here because I want to find community within the chronic illness and mental health world, as well as find a creative outlet to share those experiences.
#MightyTogether #Anxiety #Depression #BorderlinePersonalityDisorder #AutismSpectrumDisorder #OCD #PTSD #Dysautonomia #PosturalOrthostaticTachycardiaSyndrome
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I am meeting a cardiologist today and my biggest fear is that I will walk away from the appointment receiving no help and no plan of action of where to go or what to try.
The last time I met a new doctor I walked away, feeling very defeated. I’ve been chronically ill since age 10. I’m now 27 and I’ve grown a lot. But when you explain something that’s going on to a doctor and their response is “that can’t happen”, you feel very lost and defeated and lose trust in the medical system.
Fingers crossed for a good appointment 🤞🏼. #POTS #PosturalOrthostaticTachycardiaSyndrome #Dysautonomia #MentalHealth #Anxiety #NewSpecialist
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5 comments
Hi, my name is BetsyS. I'm here because I want to learn more about MCAS, Ehlers-Danlos, Dysautonomia, and IBD.
#MightyTogether #Depression #Fibromyalgia #Crohn 'sDisease
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Today’s #chronicillness trading card is #FacePlant ! Many with chronic and rare diseases have bouts of #dizziness and #Fainting . Postural Orthostatic Tachycardia Syndrome (#pots ), #Epilepsy , and #Dysautonomia are some of the many conditions that have random #dizziness and #Syncope . #Maladiemon
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Stronger by Melanie R.
I’m about to get back up stronger-
Stronger than ever!
I’m about to get back up stronger-
Stronger than ever!
Got knocked down.
The wind taken from me.
From all the trials….The suffering.
I’m about to get back up stronger.
Even in dark places-
when I’m feeling overwhelmed.
Seven times I fell down-
and got back up again!!
(listen my enemies)
I’m about to get back up stronger-
Stronger than ever.
(Don’t gloat,)
I will get back up stronger
Even as I sit in darkness, the Lord be my shining light.
Stronger….Oh believe!
(Believe it and receive!)
Stronger in the Lord!
Even in dark places,
when I’m feeling all alone.
The Lord will not forsake me,
He is right here by my side!
The God of second chances-
Give me strength;
Be my guide.
2 Timothy 2:1
You then, my son, be strong in the grace that is in Christ Jesus.
Proverbs 24:16
For a righteous man falls seven times, and rises again…
Micah 7:8
Do not gloat over me, my enemy!
Though I have fallen, I will rise. Though I sit in darkness, the Lord will be my light.
#MitochondrialDisease #InsideTheMighty #IfYouFeelHopeless #MightyPoets #PrimaryImmunodeficiency #ChronicPain
#MightyTogether #CheckInWithMe #ChronicIllness #Dysautonomia #HypothyroidismUnderactiveThyroidDisease #ChronicInflammatoryDemyelinatingPolyneuropathy #MightyTogether
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Hi, my name is SassyKatie95. I’m here to learn more about what I’m going through and build connections
#MightyTogether #Anxiety #Depression #BorderlinePersonalityDisorder #ADHD #Migraine #AutismSpectrumDisorder #Gastroparesis #Dysautonomia
7 reactions •
1 comment
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