focal dystonia

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Sometimes I hate language #Autism #CommunicationDisorder #AugmentativeAndAlternativeCommunication #LanguageDisorder

Lately the stress in my life has been messing with my language abilities, more than usual. Mostly expressive, but of course, since I have developmental receptive language difficulties as well, that's affected too. It's reminded me (over and over again) that the basic, underlying , fundamental difficulties that have been with me all my life really haven't changed, even though I've got oodles more compensatory skills than I used to. Many of which I've been losing to various degrees, for varying lengths of time.

I really don't have anyone in my life anymore who understands what it's like to struggle with language, to struggle with communication, to struggle even with the concepts that underlie these things. Much less the physical difficulties that present themselves periodically as well. (Movement disorder type things, which may or may not be partially diagnosed). #Apraxia #ApraxiaOfSpeech #VocalCordDysfunction #FocalDystonia #SensoryProcessingDisorder #SensoryIntegration

I feel like such an alien sometimes... having difficulty understanding concepts other people (even children) take for granted, yet easily understanding and being able to do things other people find difficult, easily.

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Should I continue taking Baclofen after having Botox injection?

I had my first Botox injections yesterday and I'm wondering if I should continue taking Baclofen 2x a day or if I should taper off. Any advice? #FocalDystonia

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When the “miracle injections” don’t work..

5 weeks following neurotoxin injections (1200 units!) and I’m still severely locked up. They told me the injections provide significant relief for people and give them their life back, but my muscles and nerves say otherwise. Used to be a competitive long distance runner but that’s been stolen from me by multifocal dystonia. I can’t remember what it feels like to not have pain. #Dystonia #FocalDystonia #CervicalDystonia #ChronicIllness #ChronicPain