hnf4cmt

April 17 @7pmEST
How it works:
Introduce us to your furry, feathered & four-footed family members! Join us on video for a fun meet & greet ZOOOM-a-thon. We’ll be sharing tips, tricks and favorite pet products.
Once you’ve registered, be on the look-out for a confirmation email with your Zoom link.
Register today: www.hnf-cure.org/zooom-a-thon
*Special prize for the best dressed pet!
#CMT #CharcotMarieToothDisease #RareDiseases #hnf4cmt #cmtwegotthis

Respiratory weakness is only recently being acknowledged as a symptom of CMT, so there is still a lot that we, as patients, need to learn regarding standard of care so that we (and our loved ones) can be our best advocates. Having CMT doesn’t necessarily put you in the “high risk” category for COVID-19.

On March 20, 2020, HNF teamed up with Dr. John Bach of Rutgers Medical School to answer some of our community’s most vital questions regarding pulmonary health and the specific risks and precautions pertaining to COVID-19 in an online webinar.
Watch the webinar and download the FAQ
www.hnf-cure.org/covid19 #CharcotMarieToothDisease #COVID19 #hnf4cmt #cmtwegotthis

With this handy dandy Stress Survival Guide from @crazyheadcomics. Our stress manifests in many different ways so making sure your taking care of yourself like your body, mind and soul can help to lower stress when you’re feeling overwhelmed.
#CharcotMarieToothDisease #Stress #Disability #cmtwegotthis #hnf4cmt