invisiblebattle

Join the Conversation on
1 person
0 stories
1 post
Explore Our Newsletters
What's New in
All
Stories
Posts
Videos
Latest
Trending
Post
See full photo

VNS- D Day

in about 6 hours my VNS device will either be turned on or fake turned on for the clinical trial. Trying to be positive about it but feeling physically sick with anxiety. I know there isn’t anything I can do about things, in terms of whether I’m a control patient or receive the treatment, but I’m blinding grasping at anything I think could tip the scale in my favor- despite how illogical I know it is.
I guess this is the beginning of a new chapter on the bipolar rollercoaster ride from hell. Starting now I’m going to have to learn to live with the uncomfortability of the unknown, try to tuck it away in the back of my mind, and put one foot in front of the other and control what I can.
This will be the first day I’m going to actively engage with my illness and swim against the current.

#VNS #Bipolar1 #invisiblebattle #SinkorSwim

3 reactions
Post
See full photo

Invisible Illness, Invisible Struggle

Lately I feel like Dr Jekyll/Mr Hyde/Dr Jekyll on Speed. And it just seems to keep going… like I’m so tired of not knowing how I’m going to feel when I wake up. What do you do when you start to become a stranger to yourself?
It’s not “supposed” to go like this, I’ve done all the studying and the extra reading and the research and this is not what I signed up (ok I didn’t sign on for any of it but still). Isn’t it supposed to be short periods of altered moods with periods of “normal” moods in between.

So why the f*ck have I felt amazing, terrible, amazingly-terrible multiple times throughout the last few days? Am I now having rapid cycling mixed episodes because that basically an urban legend making it incredibly difficult to treat.

I hate this illness and what it’s robbed me of. I feel so helpless because I don’t know anyone who’s been through this type of Bipolar Disorder to ask them how to cope.

I’m filled with shame- ashamed I can’t just “push past it” like I’ve been able to at most other time in my life, ashamed of how much I’ve lost, and really deeply ashamed of how sometimes I feel like I have to fight to adjust my perspective and still be able to care, either more or less, about things or people.

After years of being dismissed, I once had someone who was trying to be supportive and understanding say to me “I think I get it now- I just have to remind myself it’s like you have cancer, you can’t help it and didn’t ask for it”.

Except, it’s not cancer. I don’t know what it’s like to have cancer bc cancer is a completely different illness. But it was the only thing the person could relate it to bc since mental health is so taboo, stigmatized, and barely understood. You can’t “see” it, so it either must not be there or must not be serious.

I think my mood started to lift after having surgery because there were visible scars. For the first time, I had people ask me how I was was doing, how I was feeling, if I needed something- showing genuine concern without the undercurrent of annoyance or feeling like the help is unwarranted, that I’m underserving, a burden.

I feel like I wake up everyday fighting an invisible battle, and not able to identify my comrades in arms because we fly no flags.
#Bipolar1 #invisiblebattle #MentalHealth #Anxiety #PTSD #BingeEatingDisorder #VNS

27 reactions 8 comments