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Community Voices

Mast cell after covid vaccine

Hi I am new and needing to know if anyone has suffered a rash that was ongoing after covid vex,
Eight days after second vaccine I developed a terrible facial rash that itched and burned.
The rash was treated with ice and antihistamines and resolved, but returned every time I tried to stop or lower antihistamines.
Now I have a terrible rash on upper chest!
I need some hope..please anyone.
Thank you💓 #mast cell rash after covid vaccine

4 people are talking about this
Community Voices

Isolation w/ multiple challenges

Hi everyone, I don’t usually post. I just read because my experience is that I scare people off due to my multiple and challenging diagnoses. It’s like they don’t know how to talk to me like any regular person or maybe they think they might catch one of my non—communicable conditions or something. See a very short list in my hashtags. People I do speak with feel that all I talk about is medical stuff but when you ask how I am, how can I NOT bring it up? This is my life and my world is surrounded by medical considerations. And yes, I do other things that are life affirming and creative to stay afloat but the conversation never goes there. It’s like they only see and talk about medical and then blame me for it and excuse themselves from my life. So, I don’t know how to get my feelings out. There is a lot of grief left from the functioning life left behind. I need community but I really don’t even know where to start.

#Disability #myasthenia Gravis#Dysautonomia #Deafness #sjogren ’s Syndrome#mast cell activation disorder#CPTSD

15 people are talking about this