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    Jade Wright

    10 Things Under $100 That Help With Functional Neurological Disorder

    Living with a disability can be expensive and aids such as wheelchairs or bathroom renovations can really break the bank to make life livable. Here are ten of the most useful tools and services I use to make my life with functional neurological disorder, sensory issues, and a disorder of the corpus callosum easier to cope with. 1. Spotify and Audible Subscriptions These might seem like obvious answers to this question, but when my body refuses to co-operate and my fine motor skills go out the window? Spotify and Audible have saved the day, grounded me, and distracted me from the tics and grunts that fill my days. As an added bonus, living in regional Australia means I have to travel for specialist appointments quite often and these apps are an excellent companion on those long drives to the nearest big city. 2. Earplugs (and learning how to put them in properly) Earplugs made of either silicone or foam have been a disabled girl EDC staple for me for a long time. Cheap and effective, these earplugs cushion the blow of loud, overwhelming spaces and make trips to the grocery store possible. An important note though is that proper insertion of earplugs makes a world of difference! Check out the short clip below from the National Institute on Deafness and Other Communication Disorders for a step-by-step guide to getting a proper seal with your earplugs. 3. Laminated Emergency Card This one is essential for giving me the confidence to go out in public knowing I will be taken care of during a pseudo-seizure — and it’s practically free! I have written out a short set of need-to-know facts on a business card for strangers to read if I am unable to communicate with them properly. I used some clear sticky tape to cover the card completely and make it more durable. You could also laminate the card. This item gets tucked in my phone wallet or on a lanyard with sunflowers on it (a common signal at airports internationally that a person has additional needs when traveling.) Now, when I leave the house I know that my day won’t end with an unnecessary hospital visit! 4. Medical ID Band In this same vein, a Medical ID band gives me the confidence to leave the house, knowing that in a true emergency, paramedics will understand my health conditions and treat me in the most effective way possible. This one is especially important. Mostly though I wear this band to assure myself that even if the worst case scenario really does come to pass, I have the best chance of surviving it. 5. Medication Container for Keyring I have PRN. That stands for Pro Re Nata which is some medical Latin for “take as needed medication.” As another self-assuring measure, I like to have these medications on me at all times while in the stress-inducing environment which is the outside world. So I found a small metal container with an O-ring seal that attaches to my house keys. This small item keeps my pills dry while also being conveniently unforgettable when combined with my house keys. 6. Stuffed Toy Heat Pack Weighted soft toys that double as reusable heat packs? Yes, please! These toys come in a variety of sizes and species (including unicorns!). snuggly and comforting as well as soothing for sore joints or aching innards. This is an upgrade from your favorite teddy that is well worth the investment. Add a few drops of essential oils to the microwaveable pouch and you’re got a scrumptious sensory experience! 7. Pop-Up Flower Cards One of the benefits of connecting with disabled friends is that you meet a lot of people who are going through the same struggles as you. However, this also might also mean more visits to those friends in hospital wards. I like to have a stack of cards that I can send or hand-deliver to flower-free wards that open up and become a vase of sunflowers or a jacaranda tree. This gift takes up next to no space in your drawer and can really make someone’s day while they’re stuck in the hospital. As an added benefit? You’ll make friends with the nurses too who will appreciate not having to go find a vase for you during hand-over! 8. Harmonica This is a bit of an odd one, especially since I can’t actually play the harmonica, but hear me out. If you struggle to “focus on your breath” to ground yourself and have found that you never really seem to get much comfort from deep breathing? Try getting an inexpensive harmonica. Since harmonicas make a sound both on the in breath and the out breath, it’s a sensory cue of how your breath is going. I try to pucker my lips to include two or three notes, and breathe as quietly and consistently as I can. This auditory cue really helped me to distinguish between fast, shallow breaths and deeper ones. You can even get harmonica necklaces for a portable reminder to pause and open your lungs every once in a while. 9. Webster-Paks or Pill Organizer I used to go to the cheapest, franchise pharmacy I could find and resigned myself to the judgmental looks from clerks and customers. Why does such a young person have so many medications? I bet she is selling them. How sad… and on and on. That was until I swapped to a family-owned pharmacy with the added benefit of Webster packs. Now, every month, the pharmacist portions out my medication into one convenient sheet. This is especially useful for the tiny pills when my fine motor skills are being tested by FND. Rather than popping out four, tiny tablets, I know to just press open the bubble labeled “BEDTIME” and we are off to the races. Another benefit of this system is if you have carers dispensing your medication, you need not worry about getting the wrong doses! The transition to your local, family pharmacy, despite the increased cost, is extremely worth it in my opinion. 10. Flowers for Someone Who Helps My mum is an unpaid carer for me. She is an absolute saint who makes my life liveable in a very real sense. For this reason, when I learned that Mum really appreciates fresh flowers in the home, they became a must-have item for keeping the peace. Keeping Mum happy and letting her know I appreciate everything she does for me through flowers is my small way of giving back to a woman who gives me so much.

    'Mickey Mouse Funhouse' Furthers Inclusion With New Deaf Character

    Fans of Mickey Mouse who use ASL to communicate will be seeing themselves represented by a new character, Fig, a gnome friend who is deaf. Fig made his debut in Disney Junior’s “Mickey Mouse Funhouse” earlier this month. A drummer and music enthusiast, Fig and his sister Olive help Minnie and Daisy understand how he communicates. “The Music of the Seasons” will re-air throughout the month of May and beyond and Fig will appear in additional upcoming episodes alongside Mickey and his friends. RespectAbility Vice Chair Delbert Whetter and his brother Jevon Whetter, who are both deaf, consulted on the development of this character. “Jevon and I feel so privileged and honored to connect young deaf and hard of hearing children with such iconic characters as Mickey and Minnie using ASL, a language that is visually accessible to them,” said Delbert Whetter, who has more than 20 years of experience in producing animated feature films. Kate Moran, who wrote the episode, has close family members who are deaf and strives to bring more inclusion to the deaf community with her work. “We need to see everyone in children’s media,” Moran told Romper. “Expanding the represented world means that when a child meets a child who is deaf, for example, they will have some understanding of deafness and what that means, and be able to communicate and play and become friends.” Moran spoke about working with Whetter in an interview with The Laughing Place. “My focus was to make sure that I got the story right,” she said. “We worked with really amazing consultants from RespectAbility who made sure that not only was the story told as correctly as possible, but also that, that translated visually too.” In addition to ensuring the accuracy of Fig’s portrayal, the Whetter brothers helped ensure that the character of Fig is not defined by his deafness. “Our familiarity with the animation production workflow, and how animators work, was very useful in helping to ensure that the ASL dialogue performed in this show is optimized for both dramatic impact and production efficiency,” Whetter said. The Whetter brothers have consulted on a number of animated children’s series, including DreamWorks Animation’s “Madagascar: A Little Wild” and Disney’s “Big City Greens.” They are intentional in choosing ASL signs that are appropriate for young singers with a developing ASL vocabulary. “Without a doubt, there is a clear uptick of interest and enthusiasm for deaf/hard of hearing animated characters and ASL dialogue, and for other characters with other disabilities as well,” Whetter added. Geared to kids ages 2-7 and their families, “Mickey Mouse Funhouse” features Funny, an enchanted talking playhouse voiced by Harvey Guillén (“What We Do in the Shadows”), who leads the Sensational Six on magical adventures. The series demonstrates imaginative play and imparts age-appropriate social and emotional lessons about friendship, creativity, and ingenuity. Meet Fig, his sister Olive, and the rest of their gnome friends in “The Music of the Seasons,” a brand-new episode of Mickey Mouse Funhouse that premiered Friday, May 13th, at 8:30 a.m. ET on Disney Junior. This episode will be rebroadcast throughout the month of May on both Disney Junior and Disney Channel.

    Community Voices

    Any one here Who is deaf and Would like to be friends im New to the app!

    5 people are talking about this
    Community Voices

    10 items under $100 that changed my life with a disability #FunctionalNeurologicalDisorder #AgenesisOfTheCorpusCallosum

    Living with a disability can be an expensive and aids such as wheelchairs or bathroom renovations can really break the bank to make life more liveable. Here are ten of the most useful tools and services I use to make my life with Functional Neurological Disorder, sensory issues and a disorder of the corpus callosum easier to cope with.

    1. Spotify and Audible subscriptions


    These might seem like obvious answers to this question but when my body refuses to co-operate and my fine motor skills go out the window? These apps have saved the day, grounded me and distracted me from the tics and grunts that fill my days. As an added bonus, living in regional Australia means I have to travel for specialist appointments quite often and these apps are an excellent companion on those long drives to the nearest big city.

    2. earplugs (and learning how to put them in properly)


    Earplugs made of either silicone or of foam have been a disabled girl EDC staple for me for a long time. Cheap and effective, these ear plugs cushion the blow of loud, overwhelming spaces and make trips to the grocery store possible. An important note though is that proper insertion of earplugs makes a world of difference! Check out the short clip below from the National Institute On Deafness and Other Communication Disorders for a step-by-step guide to getting a proper seal with your earplugs.

    -
    3. Laminated Instruction cards


    This one is essential for giving me the confidence to go out in public knowing I will be taken care of during a pseudo-seizure- and it's practically free!

    I have written out a short set of need-to-know facts on a business card for strangers to read if I am unable to communicate with them properly. using some clear sticky tape to cover the card completely and make it more durable, This item gets tucked in my phone wallet or on a lanyard with sunflowers on it (a common signal at airports internationally that a person has additional needs when travelling.) Now, when I leave the house I know that my day won't end with an unnecessary hospital visit!

    4. Medical ID Band


    In this same vein, a Medical ID band gives me the confidence to leave the house, knowing that in a true emergency, paramedics will understand my conditions and treat me in the most effective way possible. This one is especially important.

    Mostly though I wear this band to assure myself that I even if the worst case scenario really does come to pass? I have the best chance of surviving it.

    5. medication container for keyring


    I have PRN. That stands for Pro Re Nata which is some medical latin for "take as needed medication". As another self-assuring measure I like to have them on me at all times while in the stress-inducing environment which is the outside world. So I found a small metal container with a O-ring seal that attaches to my house keys. This small item keeps my pills dry while also being conveniently unforgettable when combined with my house keys.

    6. stuffed toy heat pack


    A weighted soft toys that double as reusable heat packs? Yes, please! These toys come in a variety of sizes and species (Including unicorns!). They are snuggly and comforting as well as soothing for sore joints or aching innards. This is an upgrade from your favourite Teddy that is well worth the investment. An a few drops of essential oils to the microwaveable pouch and you're got a scrumptious sensory experience!

    7. pop-up flower cards


    One of the benefits of connecting with disabled friends is that you meet a lot of people who are going through the same struggles as you. However, this might also mean more visits to those friends in hospital wards. I like to have a stack of cards that I can send or hand-delivery to flower-free wards that open up and become a vase of sunflowers or a jacaranda tree. This gift takes up next to no space in your drawer and can really make someone's day while their stuck in hospital. As an added benefit? You'll make friends with the nurses too, who will appreciate not having to go find a vase for you during hand-over!

    8. harmonica
    This is a bit of an odd one, especially since I can't actually play harmonica; but hear me out. If you struggle to "focus on your breathe" to ground yourself and have found that you never really seem to get much comfort from deep breathing? Try getting an inexpensive harmonica. Since harmonicas make sound both on the in breath and the out breath, it's a sensory cue of how your breathing is going. I try to pucker my lips to include two or three notes then breathe as quietly and consistently as I can, for as long as I can. This auditory cue really helped me to distinguish between fast, shallow breaths and deeper ones. You can even get harmonica necklaces for a a portable reminder to pause and open your lungs every once in a while.

    9. Webster Packs
    I used to go to the cheapest, franchise pharmacy I could find and resigned myself to the judgemental looks from clerks and customers. Why does such a young person have so many medications? I bet she is selling them. How sad... and on and on. That was until I swapped to a family-owned pharmacy with the added benefit of Webster packs.

    Now, every month, the pharmacist portions out my medication into one convenient sheet. This is especially useful for the tiny pills when my fine motor skills are being tested by FND. Rather than popping out four, tiny tablets, I know just press open the bubble labelled "BEDTIME" and we are off to the races. Another benefit of this system is if you have carers dispensing your medication, you need not worry about getting the wrong doses! The transition to your local, family chemist, despite the increased cost is extremely worth it in my opinion.

    10. flowers for mum


    My mum is an unpaid carer for me. She is an absolute saint who makes my life liveable in a very real sense. For this reason, when I learnt that mum really appreciates fresh flowers in the home? It became a must-have item for keeping the peace in this house. keeping mum happy and letting her know I appreciate everything she does for me through flowers is my small way of giving back to a woman who gives me so much.

    Community Voices

    EPIC Players presents The 25th Annual Putnam County Spelling Bee in NYC!

    <p>EPIC Players presents The 25th Annual Putnam County Spelling Bee in NYC!</p>
    Community Voices

    I’m new here!

    Hi, my name is AnneMitra. I’m new to The Mighty and look forward to sharing my story.

    #MightyTogether #Deafness

    5 people are talking about this

    CODA Wins Best Picture, Makes Academy Awards History

    “This is dedicated to the Deaf community, the CODA community, the disabled community. This is our moment,” Troy Kotsur said when making history after winning the Oscar for Best Actor in a Supporting Role for “CODA.” Indeed, it was Kotsur’s – and the deaf and disability community’s – moment during the 94th Academy Awards, as “CODA” won all three awards it was nominated for, including Best Picture. “CODA” first made news when it sold for a record-breaking $25 million during the 2021 Sundance Film Festival to Apple TV+. Kotsur then broke several records throughout this year’s awards season, and on Sunday evening, he became the first deaf male actor to win an Oscar. He is the second deaf person to win an Oscar after Marlee Matlin (“CODA” costar) won Best Actress in 1987 for Children of a Lesser God.” “For decades, disabled filmmakers have been working to ensure disability is included in diversity conversations, and ‘CODA’s’ win will help ensure this,” said Lauren Appelbaum, Vice President of Entertainment and News Media at RespectAbility. “It is important, however, to ensure that the narrative of future films is good. We have to be included in an authentic way, ensuring disabled individuals are leading the way. And we can achieve this by truly hiring people with disabilities behind the camera in an inclusive way to tell diverse, complex stories of the disability experience.” “CODA’s” nominations and wins also enabled a wider audience to see ASL being incorporated throughout the Oscars ceremony. Early on, co-host Amy Schumer gave “CODA” its first shout-out, signing “I love ‘CODA.’ It’s my favorite movie.” When last year’s supporting actress winner Yuh-Jung Youn announced this year’s supporting actor winner, she first signed congratulations before announcing Kotsur’s name verbally. She then stayed onstage to hold the award so Kotsur’s hands would be free to sign. Audience members waved their hands, signing applause, instead of the traditional clapping of hands. Siân Héder took home the Oscar for Best Adapted Screenplay, bringing Heather Rossie on stage with her to interpret her acceptance speech, ensuring deaf folks in the audience could understand her. Heder showed that having an interpreter on stage for all acceptance speeches in the future could easily become normalized. “CODA” was announced as Best Picture by Liza Minnelli, who used a wheelchair to present, showing a wider range of disability representation. Minnelli presented Best Picture alongside Lady Gaga. During the team’s acceptance speech, a team of interpreters ensured that both the cast and audience members were aware of everything being spoken. Throughout the ceremony, viewers both in-house and at home had the option of watching an additional broadcast featuring certified ASL interpreters. Viewers at home could watch via a free YouTube link, while viewers in the audience were given tablets to utilize. In addition to featuring several deaf cast members, including Kotsur and Matlin, “CODA’s” win made history in several other ways. “CODA” was the first film distributed by a streaming service to win Best Picture, the first Sundance Film Festival premiere to win Best Picture, and the first film since 1932’s “Grand Hotel” to prevail in the category without nominations for directing and editing. “I felt that American Sign Language and the talents of the deaf community were truly acknowledged tonight on so many levels – the official ASL livestream, Amy Schumer’s use of ASL in her opening and closing remarks, Yuh-Jung Youn’s signing of ‘congratulations’ as she announced Troy Kotsur’s win, and Sian Heder’s bringing her interpreter, Heather Rossi, with her onstage so that the world could see her acceptance speech translated in ASL,” Deaf advocate, film executive, and RespectAbility Board Vice Chair Delbert Whetter told The Hollywood Reporter. “One of the more profound sights for me was seeing nearly everyone in the audience doing the ‘deaf applause’ on multiple occasions – witnessing industry leaders in the room fully embrace what is such a fundamental part of Deaf culture and ASL fills me with so much hope for the countless deaf and disabled filmmakers and performers who are out there waiting in the wings.” The pace of diversity of all marginalized populations has been increasing, allowing new voices to be heard. With Hollywood striving to boost diversity and inclusion, opening the inclusion umbrella for the one-in-five people living with a disability is the right thing to do as well as economically smart given that the disability market is valued at more than $1 trillion. However, the lack of representation – just 2.8 percent of characters on TV and 2.3 percent on film – means that millions of people are unable to see themselves in media today. “As the Academy makes gradual progress with racial and ethnic inclusion, the best picture winner is a reminder that disability is also diversity,” The Hollywood Reporter’s Rebecca Sun wrote Sunday evening. More people with disabilities need to be visible in front of – and behind – the camera. An increase in diverse, accurate, and authentic portrayals of disabled people in television and film can significantly help to end stigmas that undermine their opportunities to receive the education, training, and employment opportunities needed to succeed.

    Community Voices

    Isolation w/ multiple challenges

    Hi everyone, I don’t usually post. I just read because my experience is that I scare people off due to my multiple and challenging diagnoses. It’s like they don’t know how to talk to me like any regular person or maybe they think they might catch one of my non—communicable conditions or something. See a very short list in my hashtags. People I do speak with feel that all I talk about is medical stuff but when you ask how I am, how can I NOT bring it up? This is my life and my world is surrounded by medical considerations. And yes, I do other things that are life affirming and creative to stay afloat but the conversation never goes there. It’s like they only see and talk about medical and then blame me for it and excuse themselves from my life. So, I don’t know how to get my feelings out. There is a lot of grief left from the functioning life left behind. I need community but I really don’t even know where to start.

    #Disability #myasthenia Gravis#Dysautonomia #Deafness #sjogren ’s Syndrome#mast cell activation disorder#CPTSD

    15 people are talking about this
    Community Voices

    Accept and overcome #Love

    <p>Accept and overcome <a class="tm-topic-link ugc-topic" title="Love" href="/topic/love/" data-id="5b23ce9600553f33fe996c91" data-name="Love" aria-label="hashtag Love">#Love</a> </p>
    Community Voices

    Questions from a mom of a boy 12 years old

    Hi I hope this note finds you well. My son is 12 in the 7th grade he has struggled to tie his shoes, button a shirt, use a knife and fork. I kept asking for help because I didn’t feel it was right and they kept putting it off. I finally had a Dr. send him for occupational therapy which opened up a door to learning he has manual dexterity disfunction, ADHD also poor core and shoulder strength. He also has single sided deafness and has exotropia which was surgically corrected however still is a struggle to control at a distance. He will be having a tri annual IEP meeting March 1. Can you give me any suggestions on things that could help him in school. He hates it. Doesn’t want to go at all. I appreciate your taking time to read this.
    Christine Higgins